Angie P's Page

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Denise favorited Angie P's video
May 14
Theresa left a comment for Angie P
"Hello Angie...I am your neighbor I guess, I too live in Pearland. Did the Alopecians in Houston every get together as a group? Very interested."
Apr 16
Sue commented on Angie P's video
Dec 13, 2011
Sue favorited Angie P's video
Dec 13, 2011
Angie P commented on Danielle Pace's blog post Reaching out to anyone who will listen
"{{{Danielle}}} I co-sign everything said by Tallgirl. Lots of support and outlets here. A great bunch of people who are more than willing to listen. Folks who really understand. Also, you may wish to make plans to attend the 2012 NAAF Conference…"
Nov 6, 2011
Angie P commented on Nachiketa Sanyal's blog post Hair oil use?
"Just don't use mineral oil (petro-chemical). It's like covering your skin in plastic. Jojoba oil, which is actually a wax, is the closest to our sebum. Alternatives, are almond, coconut, shea, olive or sesame. A little goes a long way."
Nov 6, 2011
Angie P replied to jlkramer's discussion Is it bad if I don't want my hair to grow back?
"Bwahahaaaa! I laughed out loud. You are too funny!"
Nov 6, 2011
Angie P replied to Sarah's discussion Shampoo recommendations?
"I found that shampoo, which is meant to "de-gunk" hair, was too harsh for my scalp. I use the same stuff on my head that I use on my face. It's a mild facial cleanser with no SLS, triclosan, or petro-chemicals. About twice per week…"
Nov 6, 2011
Angie P replied to Sarah's discussion Gel eyeliner
"I don't know if it's considered a gel or not, but I've had good luck with the bargain brand, NYC. http://www.newyorkcolor.com/products/eyes/eyeliner-pencil/liquid-eyeliner That stuff doesn't budge all day."
Nov 6, 2011
Angie P commented on Roger's event NAAF 27th Annual Conference
"I'm ready to go! Wait, wut, it's only November??? Darn."
Nov 6, 2011
Angie P is attending Roger's event
Thumbnail

NAAF 27th Annual Conference at Hyatt Regency Washington on Capitol Hill

July 19, 2012 at 8am to July 22, 2012 at 6pm
NAAF 27th Annual Conference.
Nov 6, 2011
Angie P posted a status
"My first winter with no hair is fast approaching. Ought to be interesting! ;)"
Nov 6, 2011
Angie P is now friends with balding79, PJ and Hannah Dennis
Nov 6, 2011
Angie P replied to NoUseForAName's discussion Question about Clobetasol Topical Solution...... in the group Newly Diagnosed with Alopecia
"Here's some more info on clobetasol --> http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000859/ When I was diagnosed with lichen planopilaris/cicatricial alopecia, I was prescribed Olux-E foam (one of the many brand names for clobetasol) to…"
Aug 18, 2011
Angie P left a comment for NoUseForAName
"If you're wrapped in a burrito, you'd better not step foot in Texas. We have the salsa all ready and waiting!"
Aug 17, 2011
Angie P commented on Kristen's group Texans with Alopecia
"I met Donna at the NAAF conference. Cool people!"
Aug 17, 2011

Profile Information

Relationship Status:
Single
About Me:
I'm trying to think of what to say about me. I'm not accustomed to talking about myself, so here goes:

I was diagnosed with cicatricial alopecia/lichen planopilaris in June of this year. I was prescribed Olux-E foam for the itching/pain which I am happy with at the moment. I was also prescribed Rogaine 5% which I am NOT happy with since the strong smell set off my asthma/allergies and it grew hair just about everywhere BUT my scalp. It cost me $75 to get my face waxed!! Bwahahahaaaa! I can laugh about it now, but maaaaannnnnnn three weeks ago I was highly annoyed.
Now, I'm just strategizing when to get out the headblade. My derm doesn't think I should do it since I still have plenty of thick hair on the back and sides, for the moment She actually suggested a perm. Yes, ya'll read it right, a PERM. I couldn't believe it either.
To me putting lye on my head so I can pull off a comb-over is out of the question, and I'm getting annoyed of hair being everywhere in the house.
So, the next logical** step for me is to get rid of it.



**I know, what's logic got to do with it, right? ;)

UPDATE: Got tired of the spots and shaved on 2/25/2011.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Angie P's Blog

Wig Watch 2011

Posted on February 19, 2011 at 2:25pm 9 Comments

So after a lengthy delay, I got my hair buzzed last night. The non-bald portions had gotten way too long, so my fro was full of "dents". {Yes, it was kind of hilarious to see.} I asked her to take it as low as possible fully aware that I had the bald spots. I assured her it was okay. She really didn't want to do it until I told her I had a wig on standby. I also told her that I'm eventually going to shave it all anyway because the bald part isn't growing back. She asked why ... I told her… Continue

Well as long as we're venting, let's discuss my shins!

Posted on January 22, 2011 at 10:56pm 7 Comments

What the hell do my shins have to do with my scalp?



WITHOUT FAIL, when my shins start itching, my scalp starts within the next day.



How could shins and scalp possibly be connected?



Who thought up this madness?



And what, praytell, do I do with a bottle of Desonide (that's still at least half full) that no longer works on the itchy shins? That doggone prescription cost US$62!!



Enquiring minds want to know,… Continue

Why are you staring? You've never seen a pink elephant before?

Posted on November 9, 2010 at 12:21am 14 Comments

Okay, on Laura's discussion "Is it time to shave?", Mary said this:



"I finally realized that I had a choice between suffering physically (being miserable and hot) or suffering emotionally/mentally (people staring, not able to be anonymous)."



I immediately keyed in on "suffering emotionally/mentally (people staring, not able to be anonymous)" because I was having this EXACT argument with myself last week. (Yes, I do argue with myself. I've been told that as… Continue

Conventional beauty standards be damned!

Posted on November 1, 2010 at 5:46pm 6 Comments

Sometimes I feel like shaving my head just out of spite!



Yeah, I have cicatricial alopecia that has left some interesting "spaces" in my TWA, so I guess I have a good enough "reason" to shave, but I don't really need to yet.



What really gets me going is the experiences that ladies here are sharing. What gives anyone the right to denigrate a person for something they have ABSOLUTELY no control over? The hurt that has been experienced over this is maddening to… Continue

Comment Wall (36 comments)

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At 12:12am on April 16, 2012, Theresa said…

Hello Angie...I am your neighbor I guess, I too live in Pearland. Did the Alopecians in Houston every get together as a group? Very interested.

At 9:35pm on June 26, 2011, Pamela Rosse said…
Hey Angie
I hope you had a good flight home.
It was so wonderful seeing & meeting you at the conference you are a very special lady & once again I am so proud & pleased to not only call you friend but Alopecian Sister.
Take Care,
Love
Pam
At 6:31pm on May 16, 2011, Norm said…
The Ange! 'Tis yourself!
Yeah, I'm fine, thanks - not been on here that much meself. Life is still unintentionally hilarious... a friend gave me some extra RAM for my computer a short while back, and as I was leaving, I said (without thinking) "Thanks for the memory".... *sigh* Sometimes I terrify myself.

How's you, anyway? Still the cynical, bitter, twisted old hag you always were? ... which is why I like you so much? :) xxx
At 9:51am on May 9, 2011, Sandra Dubose-Gibson said…
Thank you Angie for your comment. Stay connected and stay beautiful.
At 9:38pm on April 13, 2011, Lili Añel (aka Eulalia) said…
Thank you for the feedback Angie. I researched photographers and in my area it was slim pickin's. Kyle Ober was a perfect match for me. He captured me. I told him all about my recently losing my hair. He knew just what to do.
At 7:19pm on March 24, 2011, Diana Carter said…
Angie!!! I am loving your new profile picture! You are beautiful! Who needs the hair, honey, you are so sexy!! WTG girl!!
At 9:02am on March 10, 2011, Reginia S. said…
Thanks for the welcome to this site. It's actually a welcome back for me. I stepped away from this site and most things Alopecia about a year ago. I had to grieve the loss and regroup. I hope to inspire those who want to be inspired. And maybe in turn gain a little more altitude and a better attitude as I live life against the grain.
At 9:21pm on February 24, 2011, Tallgirl gave Angie P a gift
At 9:01pm on February 21, 2011, kastababy said…
Hey there! Thanks for the comment!!
At 10:48am on February 19, 2011, Tiffani said…
Thanks for your comment-you completely answered my questions and more. I may also refuse some forms of treatment if it becomes too costly or painful. I will be returning to the Derm on Monday and she noted she will suggest and perform some treatment to stimulate growth, but my main focus is to keep the hair that I have. I'm not really concerned about the hair that won't come out to play. Hopefully soon, I will post some pics. Your hair looks great. TTYL.

Tiffani
 
 
 
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