Karen Smith
  • Female
  • Chesterfield, MO
  • United States
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Karen Smith's Discussions

Spontaneous growth after AU for 5 years

Started this discussion. Last reply by Rose Marie' Sep 29. 9 Replies

Hi, I have been following the exciting new treatments closely in hopes that my daughter would benefit from them in the near future. Meanwhile she has started growing hair. It started with a few…Continue

Wig site

Started this discussion. Last reply by AnGeL May 31, 2012. 4 Replies

Hi, I decided to go ahead and provide the link of where I get my daughter's wigs since I see others doing this.…Continue

Wig website

Started this discussion. Last reply by Lexi Jan 2, 2013. 8 Replies

I wanted to report that I have been giving out a website and the prices have just increased about 15%. They are still a great deal but I am also ordering from a new site call Van Hair Art. Has anyone…Continue

Diet and Alopecia

Started this discussion. Last reply by Karen Smith May 29, 2012. 17 Replies

Hi, I know that this has been discussed before but I would like to know if anyone is currently having good results from diet changes and alopecia. A friend sent me an article connecting gluten free…Continue

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Karen Smith's Page

Latest Activity

Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitnib Citrate): My experience on the trial
"Thank you for posting the update. I am hoping for continued good reports from you."
Oct 20
Karen Smith replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"I am sorry that you are dealing with this again and agree that treatment is on the horizon in the next few years. Thank you for the encouraging words."
Sep 29
Karen Smith replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"Hi, I use QD beauty and talk to a lady named Emily. They do a good job. They cost about $100 more than the other sites but the hair is nicer quality. I do not know what to make of this remission but I am happy she is growing hair and hopeful for a…"
Sep 29
Karen Smith replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"I hope it comes back for you also but eyelashes are a blessing. I think that was one of the most difficult losses to deal with."
Sep 29
Karen Smith replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"Thank you. They still have gaps but are filling in. "
Sep 29
Aimee replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"How exciting! I'm just past the 5 year mark of having AU.  I suddenly have eyelashes, which may be from iron, but that's about it.  I was actually hoping my hair would grow back after the 5-year-mark, since I've heard of…"
Sep 29
Nick Barlulis replied to Karen Smith's discussion Spontaneous growth after AU for 5 years
"Hi Karen. When I was a 4 year old boy I went AU. My hair regrew at about age 6 or 7. I had a bald spot when I was 11 and then I went into remission for nearly 34 years! So, this crazy disease has no rhyme or reason. Sadly at age 45 I went AU again,…"
Sep 29
Karen Smith posted a discussion

Spontaneous growth after AU for 5 years

Hi, I have been following the exciting new treatments closely in hopes that my daughter would benefit from them in the near future. Meanwhile she has started growing hair. It started with a few patches, which was nothing to get excited about because this has happened before but, it has continued over the last 9 months. She now has about 60% of her hair back, eyelashes and eyebrows are filling in. She went to her derm and was asked what she is doing and when she said nothing the Dr. just shook…See More
Sep 29
Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitnib Citrate): My experience on the trial
"Thank you so much for posting this. I am hoping these become FDA approved for alopecia soon so that they will be covered  by insurance. If you can get to Dr, King is the treatment expensive or covered since it is a "trial?""
Aug 25
Karen Smith replied to Taz's discussion New drug cancer treatment pill cures alopecia
"Thank you so much for posting this. It is very encouraging. "
Aug 19
AlopeciaDestroyedMyLife and Karen Smith are now friends
Aug 14
Karen Smith replied to shoff39's discussion New to wigs, please help!
"We are happy  with wigs from a Chinese site called qdbeauty."
Aug 11
Karen Smith replied to DJ88's discussion Tofacitinib citrate clinical trials
"Please keep us posted!!!!"
Aug 11
Karen Smith replied to zjd's discussion Swimming with wigs
"My daughter swims, surfs, skis in all lace wigs that we get from China. She tapes them on with super tape that she gets from ebay. She washes them on her head and only changes them about twice a week. This has been the best answer for her active…"
Aug 11
Karen Smith and Dominique are now friends
Feb 18
Karen Smith and Kristin are now friends
Feb 12

Profile Information

Relationship Status:
Married
About Me:
I am the mother of an 19 year old girl with alopecia universalis. She developed alopecia universalis during her senior year of high school.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Karen Smith's Blog

Off to college

Posted on August 14, 2011 at 10:54pm 3 Comments

My daughter is starting her sophomore year and changing to a large university. We moved her down to her new apartment today because she is "rushing" this week. I really don't understand the whole sorority thing because I went to nursing school but it is important to her so, I support her. She has a new friend staying with her and she pulled me aside today to tell me this girl's dad is dying of cancer. I asked her if she had shared her condition with this new friend and she said no. I said, "you… Continue

Water activity, wigs and update

Posted on June 20, 2011 at 10:00am 7 Comments

I just wanted to update everyone that it is possible to enjoy water sports with a wig. We went to the lake this weekend and my daughter went boating and when a friend of ours pulled up in his cigarette boat she didn't hesitate to jump in. He found several boats to race and goes over 100mph. She did not think twice about her wig. She then went wake skating and fell at least 5 times, I was her spotter. She has given up on eyelashes in the water but wears waterproof eyeliner and sunglasses when in… Continue

Update on my college freshman

Posted on December 2, 2010 at 8:50pm 2 Comments

My daughter has had AU for over a year now and she has grown so much! She told me today that she told one of her new close friends and she said, "yea I already knew but didn't want you to be uncomfortable." She said the girls that know don't care and the boys just think you are gorgeous. This was a relief for her to reveal this since she never really knew if her new friends knew are not. I think this will help her courage to tell people in the future. She has been on sulfasalazine and has good… Continue

1 year anniversary of my daughter's alopecia

Posted on October 9, 2010 at 10:25am 1 Comment

Today marks the 1 year anniversary of when my daughter's hair started falling out. She told me this yesterday and wanted to contact some of the friends that helped her the most last year. She lost all of her beautiful waist lenth hair in 2 weeks. She was a highschool senior. She continued to cheer, party, do well in school and live a normal life. I shed alot of tears and have bought 8 wigs from all different makers and spent hours researching the disease. This site helped so much. Her boyfriend… Continue

Comment Wall (12 comments)

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At 3:20pm on July 10, 2012, Erin said…

Hi Karen! I was reading your post on Swimming in wigs and would you be able to tell me what wig she has? I am desperate to take my son swimming and not worry about my hair coming off. also does she just use 2 sided tape?
Thank you!

At 7:58pm on March 16, 2012, Amy said…
Can you send me the site where you get your daughter's wigs?
At 3:51pm on March 1, 2012, Jeannie Terrel said…

I was reading some of the info on this site and came across a post that said that you buy your daughters wigs online for a good price. Can you send methe link. I also sent you a friend request. The wig I bought about a year ago was $1500 and it was long and human hair but I was thinking of getting a shorter one because they seem to be a little easier to deal with. Thanks for the info

Jeannie

At 10:13am on September 16, 2011, PATTY said…
Hi,
I need to buy my fist full-lace, can I have some info about your chinese seller of full lace???
Can you send me a private message?
Thanks...
Patty
At 4:14pm on September 14, 2011, Shelly said…
Thank you. Take care
At 9:45am on July 21, 2011, Nikki said…
Hi Karen - Thanks for your comment. Could you please send me the link to that site you were talking about? Thanks SO much! :)
At 10:43pm on June 6, 2011, C said…
Hi Karen thanks for "friends" ing me. Im so new at all this I wasnt sure how to get in touch with you. Please give me any info you can think of. I appreciate all. Thank you and I admire you and your daughter..this is hard.
At 2:35pm on June 6, 2011, Brandy Snap said…
Hi Karen, it seems that I have the same query as Cathy Clark in regards to the wig company you mentioned. The only difference is that I wear light blonde to strawberry coloured hair. Any help is much appreciated.
At 9:41am on May 10, 2011, cathy clark said…
Can you send the info or link for the lace wigs you have mentioned. I think you said that it is possible to get these wigs in European hair-what price range is that. Is their order form or ordering process easy or a bit tricky, as some are. I worry most about color-since I am Caucasian and wear medium blond highlighted wigs.Any info much appreciated.
At 4:32pm on April 19, 2011, mouna said…
Hi Karen,
cindy babs told me that your daughter wears lace wigs and does water skiing.
Can you tell which me glue/adhesive and methods she uses?
i want to try a lace wig for summervacation and go swimming with it, if thats possible???
thank you and bye bye mouna
 
 
 

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