Karen Smith
  • Female
  • Chesterfield, MO
  • United States

Karen Smith's Friends

  • nychead
  • SDMel
  • TDC13
  • wclawvs
  • AlopeciaDestroyedMyLife
  • Sindy
  • Shel
  • jeannine
  • May
  • lenna
  • Kristin
  • Dena
  • Suz
  • Hope2012
  • Kevin H

Karen Smith's Discussions

Spontaneous growth after AU for 5 years

Started this discussion. Last reply by Aly Jan 9. 12 Replies

Hi, I have been following the exciting new treatments closely in hopes that my daughter would benefit from them in the near future. Meanwhile she has started growing hair. It started with a few…Continue

Wig site

Started this discussion. Last reply by AnGeL May 31, 2012. 4 Replies

Hi, I decided to go ahead and provide the link of where I get my daughter's wigs since I see others doing this.…Continue

Wig website

Started this discussion. Last reply by Lexi Jan 2, 2013. 8 Replies

I wanted to report that I have been giving out a website and the prices have just increased about 15%. They are still a great deal but I am also ordering from a new site call Van Hair Art. Has anyone…Continue

Diet and Alopecia

Started this discussion. Last reply by Karen Smith May 29, 2012. 17 Replies

Hi, I know that this has been discussed before but I would like to know if anyone is currently having good results from diet changes and alopecia. A friend sent me an article connecting gluten free…Continue

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Karen Smith's Page

Latest Activity

nychead and Karen Smith are now friends
Nov 11
Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for posting this. There is promising treatment on the horizon which was not the case when it first occurred with my daughter 9 years ago. We all wish the research process would happen faster. Your baby boy is fortunate to have a father…"
Nov 9
Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is exciting news. If these drugs work on MPB then the big pharm companies should take notice and get it to market much faster which will help all of us. "
Oct 27
Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for posting this information. I really believe reliable treatment is coming soon. "
Oct 24
Karen Smith replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is great news!! Hopefully it will get approved for Alopecia and we will not have these insurance battles in the future. I do believe we are on the verge of finding effective treatments. "
Oct 1
Karen Smith and SDMel are now friends
Jun 20
TDC13 left a comment for Karen Smith
"Thank you for the information, it's extremely helpful.  Your daughter is very lucky to have such a wonderful and supportive mother. "
Jun 1
Karen Smith left a comment for TDC13
"Hi, My daughter's wigs look good for about 6 months but she rotates through several identical wigs at a time. They are very long and she sleeps in them so I am sure they would last longer if she took better care. The quality is very good."
Jun 1
Karen Smith and TDC13 are now friends
Jun 1
Karen Smith replied to laurenseav's discussion Can you sleep in a lace wig with human hair without ruining it?
"Those companies are on the internet. My daughter washes the wigs on her head after 2 days of wearing them and then she changes them every 3rd to 4rth day and washes them off her head."
May 17
Karen Smith replied to laurenseav's discussion Can you sleep in a lace wig with human hair without ruining it?
"We buy all lace wigs with human hair from qdbeautywigs or royalwigs for my daughter.. She sleeps in them. They don't last forever but their prices and quality are good. She uses tape and leaves them on for 3-4 days before she changes wigs."
May 15
Karen Smith replied to Susan McAdams's discussion My Stanford trial experience, part 2 (Xeljanz)
"Thank you so much for sharing your story and for being a pioneer for a cure."
Apr 2
Karen Smith replied to Giusep's discussion Xeljanz 2 month update: My fiancé's progress
"Thanks to everyone for sharing their stories. I am hoping for quick approval from the FDA so we can all get the meds without such huge insurance fights."
Apr 2
Karen Smith and wclawvs are now friends
Mar 26
Karen Smith replied to Deanna Sweetland's discussion Where's a good place to buy human hair wigs?
"Hi, I use the sites QDbeauty or Royal wigs for my daughter."
Mar 25
Karen Smith replied to Halina Svetana's discussion Eyelash extensions
"I think they are hard on lashes so I would be careful with this."
Mar 4

Profile Information

Relationship Status:
About Me:
I am the mother of an 19 year old girl with alopecia universalis. She developed alopecia universalis during her senior year of high school.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Karen Smith's Blog

Off to college

Posted on August 14, 2011 at 10:54pm 3 Comments

My daughter is starting her sophomore year and changing to a large university. We moved her down to her new apartment today because she is "rushing" this week. I really don't understand the whole sorority thing because I went to nursing school but it is important to her so, I support her. She has a new friend staying with her and she pulled me aside today to tell me this girl's dad is dying of cancer. I asked her if she had shared her condition with this new friend and she said no. I said, "you… Continue

Water activity, wigs and update

Posted on June 20, 2011 at 10:00am 7 Comments

I just wanted to update everyone that it is possible to enjoy water sports with a wig. We went to the lake this weekend and my daughter went boating and when a friend of ours pulled up in his cigarette boat she didn't hesitate to jump in. He found several boats to race and goes over 100mph. She did not think twice about her wig. She then went wake skating and fell at least 5 times, I was her spotter. She has given up on eyelashes in the water but wears waterproof eyeliner and sunglasses when in… Continue

Update on my college freshman

Posted on December 2, 2010 at 8:50pm 2 Comments

My daughter has had AU for over a year now and she has grown so much! She told me today that she told one of her new close friends and she said, "yea I already knew but didn't want you to be uncomfortable." She said the girls that know don't care and the boys just think you are gorgeous. This was a relief for her to reveal this since she never really knew if her new friends knew are not. I think this will help her courage to tell people in the future. She has been on sulfasalazine and has good… Continue

1 year anniversary of my daughter's alopecia

Posted on October 9, 2010 at 10:25am 1 Comment

Today marks the 1 year anniversary of when my daughter's hair started falling out. She told me this yesterday and wanted to contact some of the friends that helped her the most last year. She lost all of her beautiful waist lenth hair in 2 weeks. She was a highschool senior. She continued to cheer, party, do well in school and live a normal life. I shed alot of tears and have bought 8 wigs from all different makers and spent hours researching the disease. This site helped so much. Her boyfriend… Continue

Comment Wall (13 comments)

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At 10:06am on June 1, 2015, TDC13 said…

Thank you for the information, it's extremely helpful.  Your daughter is very lucky to have such a wonderful and supportive mother.

At 3:20pm on July 10, 2012, Erin said…

Hi Karen! I was reading your post on Swimming in wigs and would you be able to tell me what wig she has? I am desperate to take my son swimming and not worry about my hair coming off. also does she just use 2 sided tape?
Thank you!

At 7:58pm on March 16, 2012, Amy said…
Can you send me the site where you get your daughter's wigs?
At 3:51pm on March 1, 2012, Jeannie Terrel said…

I was reading some of the info on this site and came across a post that said that you buy your daughters wigs online for a good price. Can you send methe link. I also sent you a friend request. The wig I bought about a year ago was $1500 and it was long and human hair but I was thinking of getting a shorter one because they seem to be a little easier to deal with. Thanks for the info


At 10:13am on September 16, 2011, PATTY said…
I need to buy my fist full-lace, can I have some info about your chinese seller of full lace???
Can you send me a private message?
At 4:14pm on September 14, 2011, Shelly said…
Thank you. Take care
At 9:45am on July 21, 2011, Nikki said…
Hi Karen - Thanks for your comment. Could you please send me the link to that site you were talking about? Thanks SO much! :)
At 10:43pm on June 6, 2011, C said…
Hi Karen thanks for "friends" ing me. Im so new at all this I wasnt sure how to get in touch with you. Please give me any info you can think of. I appreciate all. Thank you and I admire you and your daughter..this is hard.
At 2:35pm on June 6, 2011, Brandy Snap said…
Hi Karen, it seems that I have the same query as Cathy Clark in regards to the wig company you mentioned. The only difference is that I wear light blonde to strawberry coloured hair. Any help is much appreciated.
At 9:41am on May 10, 2011, cathy clark said…
Can you send the info or link for the lace wigs you have mentioned. I think you said that it is possible to get these wigs in European hair-what price range is that. Is their order form or ordering process easy or a bit tricky, as some are. I worry most about color-since I am Caucasian and wear medium blond highlighted wigs.Any info much appreciated.




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