AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by Suzie on Friday. 5355 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Stars-r-Aligned Jun 23, 2016. 39 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

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Latest Activity

Suzie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Awesome news Katrina!  It looks amazing!  I received tape-in extensions to help with filling in my patches.....now I have advanced to Dream Catchers which are great....no stress at all on your hair.  My hair thinned out so…"
Friday
katiegirl replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you all, I so wish that something even more promising than xeljanz would be available for everyone who doesn't respond. Isles love nothing more than for this awful disease to have a cure"
Friday
Suzie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That's awesome Katigirl!  It's nice to hear that you can go off of it and still have hair!  Congrats on your baby!"
Friday
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So happy for you kAtiegirl this is how we all hoped xeljanz would work for everyone!Question has anyone used xeljanz and it didn't work Then switched to ruxolitnib or barcitinib and saw results."
Friday
katiegirl replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi star shine. I did completely stop xeljanz in June of 2016 after having full regrowth from AU. I became pregnant shortly after. I have not resumed xeljanz at this point. My doctor wasn't sure if it was the pregnancy that kept my hair or maybe…"
Friday
Starshine replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Katiegirl, are you still taking Xeljanz and if so, what dose are you on.  I have had full regrowth and would like to reduce the dose now.  I thought you had also reduced the dose at some point.  Congrats on baby!"
Friday
katiegirl replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You could very well be wig free before than! I had hair extensions placed when my hair was about three inches long. The girl who did hem was amazing but very expensive. If you look around though anything is possible there are so many things out…"
Friday
Katrina replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank u!! Hoping to be wig free by New Years... how are u?! How's the baby? And your hair?"
Friday
katiegirl replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Katrina!! Amazing regrowth. So happy to see everything is still going well. Your eyelashes look great also. Thank god for makeup and brow tattooing lol mine have never fully grown back and I don't think they ever will."
Friday
Katrina replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"1 year on Xeljanz and my mullet is growing strong! Just one stubborn eyebrow that need to fill in still. Weight gain and acne still issues for me."
Friday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi more experienced Xeljanz users - just hoping for some advice as my next appt with my immunologist isn't for another month- can I take berberine with Xeljanz? Someone said no but I'm not sure of the reasoning. Would it enhance or detract…"
Wednesday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think that their target audience is for natural balding from genetics. i think that is where the money is at for drug companies. That will probably be addressed before alopecia disease. But Ill try and stay optimistic!"
Tuesday
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am thrilled that so much research is being done but I'm afraid it's going to be years before anything ever gets approved.Just take a look at xeljanz it's an approved drug already and it seems to help about 70 percent of people with…"
Tuesday
singh replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"https://www.sciencedaily.com/releases/2017/08/170814134816.htm What you think of this people ? They found a new potential way to grow hair stem cells.."
Tuesday
Patchesforlife replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Is xeljanz working for you??"
Aug 8
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Anybody try allegra for alopecia? My derm said to try it but Im not expecting much. Wish it was that simple. Got two shots of cortisone in butt to try and stimulate some growth w xeljanz. I am startinh to see black hairs on brows, even some strays…"
Aug 8

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (12 comments)

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At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, The_Flyest gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
At 4:25pm on December 22, 2014, itzmejudy said…

Thanks for friend request.. Hope you are doin well.

At 12:01pm on November 23, 2014, Morgan said…
Thanks for the updates and for trying this out so we all can get more answers
Morgan
 
 
 

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