AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by Return_life 3 hours ago. 5672 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Stars-r-Aligned Jun 23, 2016. 39 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

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Latest Activity

Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"https://sites.google.com/site/dudleyslowdosenaltrexonesites/home/drugs-to-avoid-on-ldn Personally I would not mix anything with xeljanz if you are still in the early phase... just be patient and embrace these little hair growing."
3 hours ago
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys, any thoughts or knowledge anyone has re using Low dose naltrexone alongside tofacitinib? I have hashimotos disease as well as alopecia and have read it's very good for hashimotos but don't want it to counteract the xeljanz....…"
10 hours ago
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"He said there are many interested parties in finding a cure and things are moving fast. He didn't say anything about FDA approval for Xeljanz, however. In my opinion, a cure for male pattern baldness would be a financial windfall for whoever…"
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I didn't ask. But my son has an app't Monday and I'll ask him to ask the dr...hope he remembers...he just turned 18 :-/...I'll report back and hopefully with an answer better than, "I'm sorry but he forgot to ask"."
yesterday
Patchesforlife replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"thank you so much. Does Dr Vanderweil have any vlue when xeljanz will be fda approved for alopecia?"
yesterday
Lindzzej replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was wondering if you knew what other drug Northwestern is currently doing trials on?"
yesterday
Christopher's_mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Northwestern has a hair loss clinic and is currently doing research on a drug other than Xeljanz. It's double blind so only a 50/50 chance of getting the drug but it would be free since it's a research trial. My son sees Dr. Vanderweil and…"
yesterday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good luck Shad! Hopefully you get a great response. Be warned it can take time though but try not to get discouraged. The first six months is trial and error in my experience with dosage and responding status. Some people are much quicker then that…"
Tuesday
Frrankie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good luck, it most likely will be a slow walk. Try not to get discouraged. Sorry you have to go the Turkish rout. I know nothing about the Turkish product just assume it takes more effort."
Tuesday
Hopemom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good luck! "
Tuesday
Shad replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone, I have alopecia from my childhood and going to start xeljanz very soon, waiting to get it from Turkey, hope everything goes well:)"
Tuesday
Patchesforlife replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"anyone here from Chicago know someone who prescribes xeljanz? thank you so much"
Saturday
MavisKwok replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Where can I get more information on Xelijanz? i find it can help alopecia. I got alopecia at 3yrs old and have RA at 23yrs old. I fight for the RA for 10years and start with Biologics for 3year and finally RA condition have improved. I have asked my…"
Saturday
singh replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Amazing Rascal ! So happy got you man ! Any pics man do share. Will give others some inspiration "
Saturday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes! Such a great result. Thanks for sharing. "
Friday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So been on xeljanz for over a year, starged w 10mgs.... nothing, 15 mgs ... nothing, went to 20 mgs started getting white hairs everywhere. Got a steroid shot in upper glute and it came back a little better.. at first had fascial hair then full…"
Friday

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (12 comments)

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At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, The_Flyest gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
At 4:25pm on December 22, 2014, itzmejudy said…

Thanks for friend request.. Hope you are doin well.

At 12:01pm on November 23, 2014, Morgan said…
Thanks for the updates and for trying this out so we all can get more answers
Morgan
 
 
 

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