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  • Palm Desert, CA
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Alo-mom's Discussions

Repealing Obamacare

Started Sep 19 0 Replies

Just received an action alert from the National Alopecia Areata Foundation. The proposed legislation would allow insurance companies to charge more for those people with pre-existing health…Continue

Tags: now., email, or, now, Call


Started this discussion. Last reply by Tom May 20. 4 Replies

I am devastating that congress has passed this bill to hurt so many americans. Those of us with Alopecia or those of us who love someone with this condition should be contacting their Senators and…Continue

Tags: NOW, Senators, your, Call

Los Angeles Support Group

Started Mar 25 0 Replies

I recently contacted a lovely lady who is running the Alopecia Support Group and it appears that this group is not that active at this time. Are there many Los Angeles Alopecians who would like more…Continue

Presidents proposed cuts to the National Institute of Health (NIH)

Started this discussion. Last reply by Alo-mom Mar 17. 3 Replies

We can talk all day long about this condition, but until we start to call our legislators and tell them that these proposed cuts are unacceptable we are all going to be waiting a lot longer for the…Continue

Tags: Research, Alopecia, to, Cuts

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Latest Activity

KK and Alo-mom are now friends
Oct 10
Alo-mom replied to KK's discussion Freedom Wigs
"Good morning. There are three different caps that I suggest to ladies with AA  that have not lost all their hair. My daughter developed AU while attending college. Please read my post about my trip to China to meet with factories to design the…"
Oct 1
Alo-mom replied to kendall123's discussion Hair shedding process, need some answers. :)
"Many Dermatologist are not that familiar with AA. Yes, the bald spot is smooth but most AA is not scarring alopecia so the follicles are not harmed they just cannot produce hair because the ammunine system tells the body hair is bad. My daughter was…"
Sep 28
Alo-mom replied to Lbytwerk48's discussion Recently diagnosed with AA and questioning a few things
"Hence, the problem with AA is no one knows where it ends up. In my daughters case it did shed till it was all gone in 4 months. Everyone is different. There is no real answer to your question, unfortunately it is a wait and see. What I did when I…"
Sep 28
Alo-mom replied to Hemanth's discussion Mens Wigs NYC
"I know this might sound crazy and not sure the site will be happy that I suggest this, but my daughter has AU and has many custom wigs made up in many colors and lengths that she has never worn. They are designed for medical hair loss and I am…"
Sep 28
Alo-mom replied to Erica1985's discussion Losing hair since 2011
"The problem with AA is that your immune system really calls the shots. No problem taking supplements according to directions. My guess is that you have seen your doctor and they have checked your hormones etc to be sure you do not have to little of…"
Sep 28
Alo-mom replied to TMB's discussion Jak Inhibitor Drugs
"My 28 year old daughter has been on Xeljanz for close to a year and has amazing regrowth. Most of lashes and brows however they are not as full as they were before AA. Next the hair on her head grew very well but it is still thinner then her hair…"
Sep 25
Alo-mom replied to Lauri's discussion Freedom wigs volume effect
"What they are talking about is density of the wig. What that means is how much hair you want added to the cap. A cap with more volume or density is one that has more hair in it. IF you have too much hair it will look like a helmet but if you have to…"
Sep 19
Alo-mom replied to Erica1985's discussion Any Trusted Websites for Ordering Caucasian Curly Human Hair Wigs?
"Hi Beth, I am here to help. There are certain types of wig caps best for those for AA. I am a fan of Human Hair wigs that are all hand tied. They move and feel so much more naturally. You can also have it styled and cut to what you want, not what a…"
Sep 19
Alo-mom posted a discussion

Repealing Obama Care

Just received an action alert from the National Alopecia Areata Foundation. The proposed legislation would allow insurance companies to charge more for those people with pre-existing health conditions.Allow states to more easily opt of of requiring quality health insurance options and comprehensive benefitsExpand the ability for people to purchase low quality health insurance benefits in lieu of more comprehensive coverage Eliminate bate the employer mandatesDramatically reduce the federal…See More
Sep 19
Alo-mom replied to janeg72's discussion My hair fell out over the weekend!
"You have found a good website to contact. It is a wait and see type of thing. Your doctor will do blood work and ask him to do a scalp biopsy and they can tell if you infect do have Alopecia. This condition has no easy answers or magic potions. I…"
Sep 19
Alo-mom replied to Seanyy210's discussion Hair system too dense, wrong colour?
"Hair systems for men are a whole different thing then for women. The base must be thin and the density less, because less is more, so to speak. There is a gal named Chris for Hair in Northern California who really does amazing work for men. She is a…"
Sep 19
Alo-mom replied to Gon's discussion AU and Hyperpigmentation after months of using DCP, does it go away?
"Daughter used DCP treatments for about 6 months. Did not work. Her scalp blistered without a single hair showing up. I think Dr. that push this are after your time and money. Sorry to be negative but I have yet to meet someone that this treatment…"
Sep 18
Alo-mom replied to eva's discussion Anyone wear a clip in wiglet without hair to attach to?
"Chrisforhair is a company in Northern California that provides amazing kindness, knowledge and service to those with medical hair loss. She has prepared a number of toppers and wiglets for clients. She can be trusted, She has a website and takes…"
Sep 18
Alo-mom commented on BrianH1972's blog post Off the Xelganz
"You bring up a very important issue, risk vs. reward. Yesterday the FDA listened to many voices of those with alopecia in Maryland. As the move forward to approving drugs this process has become part of the analysis. NAAF most likely will have this…"
Sep 13
Alo-mom replied to Erica1985's discussion Any Trusted Websites for Ordering Caucasian Curly Human Hair Wigs?
"Try  She is a small business owner in northern California who has been around for a while and really takes care of her customers. 1 925 245 0194.  She will talk to you about caps, type of hair, hair density and color. She…"
Sep 13

Profile Information

Relationship Status:
About Me:
When my 22 year old daughter developed AU I really struggled to find her the best hair pieces possible. I found that salons for the type of wigs she wanted were in the thousands of dollars. I decided to do my research for over a year for human hair factories in China. I decided to go to China and found the best factory and met with the owner. My goal is to bring this knowledge to those who want to wear a wig. My passion is to help others to live a full and confident life. I would be glad to help anyone find the best human hair wig for medical hair loss at a price point that hopefully can work. These are all custom made and all hand tied units. Thank you for taking the time to read about my journey. All my best Lisa
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 3:43pm on August 10, 2017, Karla said…
Hi can you please recommend me a few contacts / websites in china
I'm desperate to find a blonde wig
At 10:57am on March 7, 2017, asp2014 said…

Hey, Thanks for your reply. Currently I'm not living in the states but will very soon. I'm also a citizen in case that has anything to do with receiving help from Xelsource. My concern when I apply for the hardship program is getting stuck in the bureaucratic muck. Since a handful of folks have already been in the trenches I was hoping I could get the ins and outs to have a seamless and hassle-free experience. It's great to hear that the folks over at Xelsource are nice and helpful.  

At 3:27pm on June 4, 2016, Lexi said…

Hi....when you buy from China, do they also have online website to order from? 

At 10:06pm on March 27, 2016, LeslieAnn Butler said…

Hello and welcome!

How are you and your daughter today?

At 11:24am on March 9, 2016, laurenseav said…

I added you as a friend. Thanks for responding. Not too many do. I bought a human hair wig from China at XCSUNNYHAIR. It was inly $233 Elaine buys hers there and says they last a few months, but she bonds hers on and wears blond which does';t last as long. This is my first attempt with human hair and i am very nervous. I bought a full lace, non glue less wig. I dont plan to wear it daily, so maybe it will last longer.  I am tired of the synthetics, as they are not as thick as they used to be. I think Noriko changed fibers, definitely not as good as couple years ago.  Figure this is cheap foray into human hair. Will see I have had Alopecia for 39 years and its ruined a lot of my life. I live in AZ and the heat melts, ruins long synthetic wigs. The underneath gets so tangled up and no matter what i do for maintenence, constant struggle What do you use to keep long synthetics looking good?. 





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