Alo-mom
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  • Palm Desert, CA
  • United States
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Alo-mom's Discussions

Chronic Fatigue Syndrome

Started Oct 22 0 Replies

Just wondering if any of our AW members have developed Chronic Fatigue Syndrome and if so how are you doing and any tips. Thank youContinue

Repealing Obamacare

Started Sep 19 0 Replies

Just received an action alert from the National Alopecia Areata Foundation. The proposed legislation would allow insurance companies to charge more for those people with pre-existing health…Continue

Tags: now., email, or, now, Call

Obamacare

Started this discussion. Last reply by Tom May 20. 4 Replies

I am devastating that congress has passed this bill to hurt so many americans. Those of us with Alopecia or those of us who love someone with this condition should be contacting their Senators and…Continue

Tags: NOW, Senators, your, Call

Los Angeles Support Group

Started Mar 25 0 Replies

I recently contacted a lovely lady who is running the Alopecia Support Group and it appears that this group is not that active at this time. Are there many Los Angeles Alopecians who would like more…Continue

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Latest Activity

Alo-mom replied to emygemy's discussion travelling
"Ok, if this was me I would find two reasonable priced synthetic wigs that you can take with you. Hopefully your hair style is not really long hair because it might be quite warm there. I recommend the Noriko brand because they have styles that have…"
Dec 7
Alo-mom replied to kspeicher's discussion Wearing a Wig while playing sports
"Hello from one mother to another. I know that you are always looking at what is best for your daughter because I was on the mission too. Here is my advice to you. You need to take your daughter to a wig salon that has a variety of wigs that are…"
Dec 7
Alo-mom and Lee13 are now friends
Dec 7
Alo-mom replied to GemmaB's discussion Alopecia Areata newbie.
"Contact the National Alopecia Areata Foundation and they will give you a list of groups in your area and hopefully there is a Phone Support Person you can contact to talk. I am a phone support person in Indian Wells, Ca. If you would like to contact…"
Dec 6
Alo-mom replied to Chris90's discussion Help do I have alopecia areata/universalis?
"The best test is a scalp biopsy. It can tell what the follicle is doing. I think I realize my daughter was heading to AU when the hair on her legs started to look different. Unfortunately only time will tell, it is a wait and see game with this…"
Dec 6
Alo-mom replied to Lee13's discussion Does it ever stop...alopecia Areata
"Having a daughter lose her hair I had to find the best hair solution for her possible. Read my journey to China to better understand the wig industry. There is a great lady called "Chris for Hair" that does Skype work and she can help you…"
Dec 6
Alo-mom replied to Newjack's discussion Is taking a biopsy always necessary?
"The biopsy can tell the doctor the condition of the follicle and if there is inflammation. It does confirm AA."
Nov 12
Alo-mom replied to Shocked's discussion Alopecia universalis and cobalt chromium poisoning from hip relacement
"We could rack our brains to death about how and why it happened, but unfortunately there is no real answer. There are many theories, but again no one really knows what triggers any autoimmune diseases. "
Nov 10
Alo-mom replied to Yessi's discussion Fasting for autoimmune cure
"No, I have never heard of this and am very skeptical about it. VERY SKEPTICAL Sorry"
Nov 10
Alo-mom replied to thechaseisreal's discussion Help I'm unsure if I have alopecia areata
"I would have thought that the biopsy would have confirmed whether or not you have AA."
Nov 8
Alo-mom replied to Hope4mySON's discussion Two year old with Alopecia
"As the mother of a daughter with Alopecia I suggest you contact the National Alopecia Areata Foundation. They will provide resources and answers to the questions you are asking. Find them on the web, call them and they will be happy to share what is…"
Nov 8
Alo-mom replied to Katie-skywalker's discussion Decisions
"Alopecia is a wait and see kind of condition. I had a boss years ago that lost spots of hair and it grew back in over a period of months. Have they done a biopsy of your scalp.? I wish there was something you could do, but there is not. Removing…"
Nov 1
Alo-mom replied to judy65's discussion Newly diagnosed with alopecia areata - Depressed
"I know you are looking for answers. We have all been there, either for ourselves or those we love. AA is an autoimmune condition and colonics are not going to do anything. Let me share with you how we supported our 21 year old daughter as she lost…"
Nov 1
Alo-mom replied to Alopeciagirl202's discussion Freedom Wigs - How Long Does It Take To Get One
"I believe it would take no less then 2 months. Most custom wigs take this amount of time if not a bit more. "
Oct 24
Alo-mom posted a discussion

Chronic Fatigue Syndrome

Just wondering if any of our AW members have developed Chronic Fatigue Syndrome and if so how are you doing and any tips. Thank youSee More
Oct 22
Alo-mom replied to Bridget's discussion Using regaine for almost 12 weeks
"Hello, honestly hard to say, The lighting seems different. Regaine has been used for years and has been successful without any side effects that I know of. Best of luck and I would certainly keep using it. "
Oct 22

Profile Information

Relationship Status:
Married
About Me:
When my 22 year old daughter developed AU I really struggled to find her the best hair pieces possible. I found that salons for the type of wigs she wanted were in the thousands of dollars. I decided to do my research for over a year for human hair factories in China. I decided to go to China and found the best factory and met with the owner. My goal is to bring this knowledge to those who want to wear a wig. My passion is to help others to live a full and confident life. I would be glad to help anyone find the best human hair wig for medical hair loss at a price point that hopefully can work. These are all custom made and all hand tied units. Thank you for taking the time to read about my journey. All my best Lisa
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 3:43pm on August 10, 2017, Karla said…
Hi can you please recommend me a few contacts / websites in china
I'm desperate to find a blonde wig
Thanks
At 10:57am on March 7, 2017, asp2014 said…

Hey, Thanks for your reply. Currently I'm not living in the states but will very soon. I'm also a citizen in case that has anything to do with receiving help from Xelsource. My concern when I apply for the hardship program is getting stuck in the bureaucratic muck. Since a handful of folks have already been in the trenches I was hoping I could get the ins and outs to have a seamless and hassle-free experience. It's great to hear that the folks over at Xelsource are nice and helpful.  

At 3:27pm on June 4, 2016, Lexi said…

Hi....when you buy from China, do they also have online website to order from? 

At 10:06pm on March 27, 2016, LeslieAnn Butler said…

Hello and welcome!

How are you and your daughter today?

At 11:24am on March 9, 2016, laurenseav said…

I added you as a friend. Thanks for responding. Not too many do. I bought a human hair wig from China at XCSUNNYHAIR. It was inly $233 Elaine buys hers there and says they last a few months, but she bonds hers on and wears blond which does';t last as long. This is my first attempt with human hair and i am very nervous. I bought a full lace, non glue less wig. I dont plan to wear it daily, so maybe it will last longer.  I am tired of the synthetics, as they are not as thick as they used to be. I think Noriko changed fibers, definitely not as good as couple years ago.  Figure this is cheap foray into human hair. Will see I have had Alopecia for 39 years and its ruined a lot of my life. I live in AZ and the heat melts, ruins long synthetic wigs. The underneath gets so tangled up and no matter what i do for maintenence, constant struggle What do you use to keep long synthetics looking good?. 

 
 
 

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