Kami
  • Female
  • Roy, Utah
  • United States
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  • gabe inostroza
  • Jasmine and mommy
  • KIM - Jessica's Mom
  • Shannon
  • Char
  • rj, Co-founder

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Kami's Discussions

eyebrows

Started this discussion. Last reply by Danielle Royce Jul 30, 2009. 8 Replies

the color

Started this discussion. Last reply by Wigsthatwow Aug 28, 2016. 9 Replies

Has anyone ever thought?

Started this discussion. Last reply by Kami Sep 18, 2008. 4 Replies

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Profile Information

Relationship Status:
Married
About Me:
Im a 22 year old stay at home mommy. I have 2 little boys Trestin that is just shy of 3 with alopecia and my 10 months old Tucker. My boys and My husband are my everything!
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes

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Kami's Blog

I have to share

Posted on October 12, 2008 at 12:55am 10 Comments

Couple weeks ago my mom had a lady that kept coming in to have her blood drawn over and over on her thyroid and then white blood cell count and etc so finally my mom asked why are we doing all this. She told my mom that she was losing her hair again and they want to see if its alopecia , My mom told her oh yea my grandson has that and started explaning trestin whole process to her and she said yea i went through the same things when i was in the 1st grade i had lost all my hair well her mom… Continue

as anyone tried thymus king

Posted on September 19, 2008 at 11:57am 1 Comment

I found this website, and i was wondering if anyone has ever tried it? please let me know

www.ThymusKing.com


Thanks

Kami

getting onion juice tomorrow

Posted on September 16, 2008 at 12:30am 8 Comments

Tomorrow im going to start to buy onion juice, for anyone who would like to know. I will start it on my son wednesday and we will go from there. I will keep everyone updated weekly to let you know how it is going, thanks

Comment Wall (10 comments)

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At 1:54am on July 26, 2009, Sharon said…
Hi there Kami your little boys are so cute! The eyebrows are the hardest bit I reackon......with Nicole she used eyebrow tattoos and the silicone ones but now she prefers the tattoos and even tho her eyebrows are growing in she still wears them...........headcovers is where we get them from.....good luck with it all
Sharon
At 7:45am on October 14, 2008, Cindy said…
HI Kami, Samantha is doing a treatment called squaric acid which maybe too harsh for a 3 yr old. The treatment works as follows: First you sensitize the arm with .02% of acetone to see if your body will produce a response in the form of a rash. Once that is established a dosage of acetone is applied to a different area of the head weekly. The idea is to produce a rash in the area of treatment each time. If you don't get a rash the meds is not working. We are basically working to confuse the immune system so it will let her hair grow. Samantha has had some road blocks with he bodies response, but she has stuck through it and we have been able to take it work for her. You also get an itchy scalp. We started the process in Dec, by March we started weekly treatments and by mid June hair started growing. We have had to halt in between for various reasons. Now she has a layer of hair on about 60% of he head and brows are making an appearance. In addition, I give her a biotin supplement, vitamin, aloe juice and cod liver oil. When I saw your post on the biotin diet and looked up foods and we are going to incorporate them into her diet. Now, this kid will have salad daily..Amazing what she will do for hair!!
At 9:44pm on September 19, 2008, dollydreadful said…
they're both really cute :)
At 12:39am on September 16, 2008, Karen said…
Hi Kami,

I was wondering why are you using the onion juice. Does it help?
At 7:29pm on September 7, 2008, LeslieAnn Butler said…
Hi Kami,
I just wanted to stop by and say hello and see how you are doing today. Your kids are ADORABLE!
LeslieAnn
At 11:51pm on September 5, 2008, lauren said…
hi and welcome
At 11:17pm on September 5, 2008, Cheryl, Co-founder said…
Hi Kami, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 9:12pm on September 5, 2008, Linda said…
Tooo cute! Welcome Kami!
At 8:33pm on September 5, 2008, JeffreySF said…
Ahhhhh They are both adorable!!!

Welcome to Alopecia World.

Jeff
At 7:30pm on September 5, 2008, Roger said…
Welcome.

Roger.
 
 
 

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