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Andrea's Discussions

Rheumatologist or Dermatologist?

Started this discussion. Last reply by Andrea Oct 29, 2009. 2 Replies

My hairloss is medically related. I am not going to call it "alopecia" at this stage as I have not officially been diagnosed but I chose "Other form of alopecia" on my profile because there was no…Continue

Tags: issues, medical, dermatologist, rheumatologist

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Andrea's Page

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Andrea commented on alopeciachangedmylife's blog post 'Everyone from Alopecia World please read this and comment or inbox me x'
I lost about 95% of my hair before it started regrowing. I spent hours staring into the mirror trying to get used to the idea of it not growing back. I learned to play up my features, particularly eyes. I found that caps and scarves were much more…
Oct 7, 2011
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M.A.D. (Multiple Autoimmune Diseases)

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Raise your hand if you have Multiple Autoimmune Diseases. I have noticed that a lot people here have more than just Alopecia. I myself have Alopecia Areata, Crohn’s Disease, Psoriasis, and some form of Arthritis not yet diagnosed.
Andrea joined Devin's group Feb 24, 2011
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Andrea left a comment for Devin
Hi Devin, thanks for stopping by. I've actually recently added Psoriasis to my list of stuff. You would be unusal for Lupus since you are male, but not unheard of. The hair is doing really well right now. I'm prepared to lose it again if…
Feb 24, 2011
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Devin left a comment for Andrea
Hi Andrea, I just came across your page and I can totally relate to your story, I was reading your posts between you and Christine and I am struggling with my rheumatologist between Psoriatic arthritis or Lupus disease. You should join my group I…
Feb 24, 2011
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Cheryl, Co-founder left a comment for Andrea
Thanks Andrea!
Jan 23, 2011
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Christine left a comment for Andrea
Hi Andrea, yes I'm very much praising the Lord this day! I had read something about the fish oil too, so I had a few up in the cupboard and started taking one a day, I am out but will go buy some more, I know that fish oil is so good for us in…
Jan 22, 2011
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Andrea and alice are now friends Jan 21, 2011
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Andrea commented on Andrea's photo
Oh Libelula I didn't see this when you posted it...I'm sorry. Thank you RE the eyes. My diagnosis is Lupus. Sheilagh, I hope you get good results too. It actually is quite long and rather curly too! I'll keep you in prayer! Do you…
Jan 21, 2011
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Andrea left a comment for Christine
That is a major praise to the Almighty God! A good friend of mine suffers from extreme dry eyes and what helps her is an agressive regiment of fish oil. There are so many benefits to fish oil and it certainly can't hurt. I take one a day, but…
Jan 19, 2011
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Christine left a comment for Andrea
Hi Andrea, thank you so much for the prayer, you and others have been so faithful, My test came back negative for Sjogrens and I am so relieved, they do not have and answer for the eyes, but right now I don't care, I made a deal with God, that…
Jan 19, 2011
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Andrea left a comment for Christine
Oh yes, my ANA was high, but what was really off the charts was my sed rate. It was 100! I do have dry eyes, but have always had them as long as I can remember, so I guess I don't know any different, LOL! I've also been limited in my…
Jan 18, 2011
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Christine left a comment for Andrea
Thank you so much Andrea, so sorry to hear about the Lupus, My niece was told she had lupus a few years back, her ANA levels were unbelievable, she was sent to a specialist who gave her the diagnosis, low and behold she has been told you don't…
Jan 18, 2011
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Andrea left a comment for Christine
Hi Christine...just stopping by to tell you I am lifting you up in prayer. I was tested for sjogren's in Dec 2009. It was negative but I did test positively for Lupus (severely so) which was the root cause of my hair loss. Since autoimmunes go…
Jan 17, 2011
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Andrea replied to amy vasconcelos's discussion 'Can God heal Alopecia?!' in the group Christians With Alopecia
This is encouraging, but I would caution all not to expect a physical healing and to hinge your faith on that. A year ago I was very literally fighting for my life and was losing my hair to boot. Since then the exact diagnosis was given (Systemic…
Jan 13, 2011
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Andrea commented on Maya's group 'Hat Lovers'
I found a hat pattern package last fall at JoAnn Fabrics. Of course I never actually made them, lol!
Nov 25, 2010
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Andrea commented on Megan's group 'Christians With Alopecia'
Ladies, I've been deep in James. Reading it daily for a month. Pouring over it. So much in this short epistle. I think being Jesus's little brother, James had a unique insight to the mind of Christ!
Oct 28, 2010

Profile Information

Relationship Status:
Single
About Me:
I started noticing my hairloss in mid September of 2009, after a trip to the Emergency Room for a severe pain and have been consistently losing it since in patches as well as general thinning. We are still in the discovery stage of what is wrong with me medically, though I have been treated for Lyme disease, we know it is on the rheumotological spectrum. I have displayed symptoms off and on for over 5 years, but the hair loss is new.

I have not been diagnosed with alopecia but I chose "Other type of alopecia" because "Unknown hairloss" is not an option.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Andrea's Blog

Andrea

New Growth!

Posted on January 11, 2010 at 4:02pm 4 Comments

Okay, my hairloss was about 80-90% due to my Lupus. I have now been on Plaquinel since Nov 23 and a Biotin/Fish Oil regimen since Nov 1. The first picture shows the peak of my loss before I noticed that I didn't seem to be losing and the second picture is today. Just Friday I thought I saw 1/2" hairs among the 2-3" hairs. My mother looked and sure enough she saw a lot. So I got the rest of my hair shorn to 1" to even it out. I tried to duplicate the exact lighting so it shows the same but you… Continue
Andrea

Back to the Rheumatologist

Posted on December 29, 2009 at 11:12am 3 Comments

Well, I went back and got my official diagnosis after extensive testing. I mean extensive! I had 15 vials of blood drawn. Because he was confident what he would see, he started me on treatment a month ago. I am on Plaquinel (a quinine based anti-malarial) and Neurontin (an anti-seizure) to treat the symptoms of Lupus. It's not an exact science...there's a lot of trial involved in regulating medications.



I've been dealing with Pleurisy, an inflammation in the Lungs which can… Continue
Andrea

Abuses in the Indian Human Hair Trade

Posted on December 28, 2009 at 3:17pm 0 Comments

Below is an excerpt from the film "Good Hair" by Chris Rock showing the inner-workings of the "human hair" weave trade. Featured is a religious ceremony called "tonsure", practiced in India. Also featured is hair stylist Elgin Charles Williams. I haven't purchased a human hair wig yet (one 50/50, unsure of origin) but when/if I do I will make sure it is not Indian hair. I thought these women were being paid for their hair, they are… Continue
Andrea

Merry Christmas

Posted on December 24, 2009 at 2:42pm 1 Comment

I rarely make my YouTube videos embeddable, but I wanted to share this with you all! Be… Continue

Comment Wall (22 comments)

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At 2:46pm on February 24, 2011, DevinDevin said…
Hi Andrea, I just came across your page and I can totally relate to your story, I was reading your posts between you and Christine and I am struggling with my rheumatologist between Psoriatic arthritis or Lupus disease. You should join my group I started called M.A.D. for people with multiple autoimmune diseases. I’ve noticed that a lot of people on AW seem to have two or more autoimmune diseases. Well besides all of these problems I hope everything else is going great for you. Take Care!
At 11:17pm on January 22, 2011, Cheryl, Co-founderCheryl, Co-founder said…
Thanks Andrea!
At 12:07am on January 22, 2011, ChristineChristine said…
Hi Andrea, yes I'm very much praising the Lord this day! I had read something about the fish oil too, so I had a few up in the cupboard and started taking one a day, I am out but will go buy some more, I know that fish oil is so good for us in so many other ways, I'm glad to start something I should have been taking anyways...this just gives me more incentive. My eyes are better, but can't cry still, and seemed to get a bit worse, think I was slacking on the artificial tears, as long as I can see, to work and do what I need to. I'm ok with where I'm at right now, I know that
God is in control, and it is in his loving hands...God bless you again Andrea!
At 3:05am on January 19, 2011, ChristineChristine said…
Hi Andrea, thank you so much for the prayer, you and others have been so faithful, My test came back negative for Sjogrens and I am so relieved, they do not have and answer for the eyes, but right now I don't care, I made a deal with God, that I would strive to not always think the worse, every time something weird happens to me, I always think its some horrid auto-immune disease, Ive been in fear of them for so long, I'm so crazy about it, when the soles of my feet became supper itchy, and still are, I found a awful disease called primary biliary cirrhosis, and was just sure I had that, (you basically die from liver failure) when I got a bad pneumonia that took 4 months to clear and left me with Asthma, a pulmonologist told me she believed I had Sarcoidosis, (an auto immune that causes your lungs to fail) now every time something rears it's ugly head I'm sure it's because of that. Talk about a spiritual attack. Its almost turned me into a hypochondriac, I'm going to do my best to move on past this, I just keep praying that these crazy symptoms I keep having will quit doing a number on me, and sending me into a tailspin. The niece that I told you about talked to me today and said, the test will probably come back negative, mine always do too, she struggles with fear too. Again thank you Andrea, I will pray for you again tonight.
At 1:54am on January 18, 2011, ChristineChristine said…
Thank you so much Andrea, so sorry to hear about the Lupus, My niece was told she had lupus a few years back, her ANA levels were unbelievable, she was sent to a specialist who gave her the diagnosis, low and behold she has been told you don't have lupus now, and her blood levels are normal, so as you can imagine Lupus was in the back of my mind, I have read that Lupus and Sjogren's run hand in hand a lot of time, funny my niece has alot of symptoms of Sjogren's too, her eyes get dry at times, not quite like mine (tearless) but her salivary glands keep swelling?? They took a bunch of blood from me on Friday, and I'm expecting to hear this week sometime of the results, honestly I hope I don't have Sjogrens, and my eyes are doing much better, although cant cry still :-( I feel like alot of the things that go wrong with me are weird, I bet you feel the same, sometimes, everyone I've told about my eyes are so shocked, oh my gosh they say "I've never heard of such a thing" just what they all say about my Alopecia...frankly I've never heard of anyone whose eyes were so dry they couldn't cry tears either, lol oh by the way I saw the film that Chris Rock did too about Good hair, my goodness it sickened me that these women were "sacrificing" their hair literally at the temple, and the guy would go gather it all up and cash in on it, I think they use Indian hair primarily to make wigs? I didn't see the whole film, but got me thinking too. Thank you again for the response to my dilemma, have an awesome day, I hope you are doing well, thank you for the prayer, I'm sending up one for you, that God will heal you!
At 2:28pm on November 5, 2010, alletsallets said…
Hey Andrea! How have you been? Haven't seen you around AW in quite a while. I hope you are doing well. How's your regrowth coming along?

Keep looking up! :)
At 11:45am on July 30, 2010, joshjosh said…
hi Andrea, thanks for the add, its nice to meet people who understand this.
At 5:37pm on May 27, 2010, VeroniqueVeronique said…
Thanks a lot Andrea for sharing your story with me. It is true the guy will love me for who I am and not for what I look like, and if not, then he is not worth it. I am sure the problem is not him, but me, being so uncomfortable with my situation, like being ashamed. Some other time, I'm just like whatever, nobody cares about that, my parents my friends they love me and they don't care, so it should just be the same for him...if not then: next one ;-) I love this website because it helps to share how you feel with other and to hear other people stories! Thanks again!
At 11:51am on April 11, 2010, Heather L gave Andrea a giftHeather L
Gift
HAPPY BIRTHDAY!!!! Enjoy! Heather
At 3:58pm on January 12, 2010, GabrielaGabriela said…
Hi Andrea,
How did you discover your disease? Do you think it’s possible for a doctor to confuse alopecia caused by Lupus with AA? I’m asking that because my alopecia areata is atypical and I’m dealing with all kind of other disorders witch doctors can not diagnose: breathing problems, abnormal local reactions after vaccines, sunlight allergies, etc. Doctors exclude the possibility of having Lupus because of normal results for basic blood tests (HLG, VSH, PCR, ASLO, fibrinogen). Based on what test were you diagnosed and what doctor have you seen?
Thank you,
Gaby
 
 
 
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