"I understand the emotiinal struggle( s) you must be goung through. I want to thank you for your courage to be so transparent and honest in revealing the totality of your experiences. Though I can not compare my body dilemnas to yours, I can come…"
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Amy
- Female
- St. Cloud, MN
- United States
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Amy's Discussions
Wigs 101
Started this discussion. Last reply by Lexi Aug 22, 2010. 3 Replies 0 Favorites
Help - newly diagnosed with androgenetic alopecia and don't know what to do
Started this discussion. Last reply by Gill Nov 22, 2008. 2 Replies 0 Favorites
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Lili replied to Amy's discussion Hair loss + excess hair in the group Female Pattern Baldness"A slew of symptoms came before I starting losing hair. Acne, oiliness, excess hair (I pluck 'em gone!) and my body shape changed. I did blood tests with a doctor and found that I don't have PCOS. However, the doctor agreed I had androgen…"
Christy Ingram replied to Amy's discussion Hair loss + excess hair in the group Female Pattern Baldness"Hi Amy, I seem to have quite a bit of very pale downy like hair, mutton chop area on my face. My legs and arm pits seem to have about the usual amount of hair for me....I would really love not having to shave here these areas anymore. I have never…"
Virginia replied to Amy's discussion Hair loss + excess hair in the group Female Pattern Baldness"well my hormone levels are with the range of normal, but high up on the "normal" scale. As for the thyroid, it was always missed because all the labs came back "borderline" so no one thought to go any farther, even though my…"
"The dr. recommended that weight loss might help for me as well - I lost 35 lbs (still 30 lb from my goal weight - my "pre-children" weight), but hair issues continuing without any sign of improvement. Did you have any abnormal lab results…"
Virginia replied to Amy's discussion Hair loss + excess hair in the group Female Pattern Baldness"I'm with you on this and it sucks. I have been tested for everything, for a little while the doctors thought I had PCOS , but I don't have cystic ovaries. Then the doctors thought it was a metabolic immune disorder and that I need to loose…"
Profile Information
- Relationship Status:
- Married
- About Me:
- Just diagnosed with female pattern baldness (had a scalp biopsy). I am having a hard time with this. My hair was always my pride and joy and now I am losing it at a very rapid rate.
- Do you have alopecia?
- Female pattern baldness
- Are you age 18 or older?
- Yes
Comment Wall (12 comments)
- At 11:39am on March 14, 2009,
Ally said… - Hi, I'm sorry I never got back to you, I had the same experience with derms/docs, I saw some very horrible derms who offered me no form of treatment, a year later after not getting anywhere in terms of looking for a cosmetic solution (wigs/hairpieces) to cover my hairloss (wasn't impressed with anything I saw) I started really researching the treatment route. I found out that treatment can work for some people (stats aren't great) but anywhere I thought I'd give it a try as I felt I had no other options, anyway I'm on dianette, minoxidal, cyproterone and dht inhibitor, this was after seeing numerous derms/endos so I would advise you to not give up, do your own research and then go to the derms/endos prepared. Thats what I should have done at the beginning. I think their good for stabilisation but not good for regrowth, I don't see any real improvement yet (6 months in) in fact I get worried it's worse..but I know in terms of treatment I think I'm doing everything I can. I lost at least 50% of my hair. Apparently can lose up to 50% to start noticing. I was diagnosed a year ago, but unfortunately due to lazy doctors had been suffering from it 3 months before I was officially diagnosed. I am willing to do anything to get my own hair back (literally sell my soul!) so I'm on some pretty strong drugs but it's a risk I feel I have to take. I know not all women are the same so I wouldn't expect everyone to do the same as me.
- At 2:57pm on February 13, 2009, Ally said…
- Hi I'm in my early twenties, I'm on minoxidal and 2 types of bcp. I really want to save my hair, but I'm also trying to look for cosmetic solutions at the same time. I don't have a hormonal problem, so I'm not sure the drugs will do much. Do you mind me asking what your scalp biopsy come back as? What did your dermatologist recommend? Congratulations about the baby!
Ally
- At 9:20am on February 7, 2009, Ally said…
- Hi, how are you? I have the same type of hairloss and am having a very hard time aswell, I was wondering if you'd got far in terms of treatment or looking for a cosmetic solution?
Ally
- At 5:46pm on December 22, 2008,
Rachel H. said… - Well, before it closed down, I went to La Dolce Vita. The owner's name is Michelle, and I believe she has now opened up a new shop in Sauk Rapids. Michelle is great at what she does, and she provides a very comfortable, private environment to look at what she has. I now order my wigs from www.namebrandwigs.com. It's actually a local company, and I have yet to find another site that beats their prices!
- At 5:01pm on December 12, 2008, Rachel H. said…
- Oh wow! I've actually never met anyone else with Alopecia before, I have friends who have friends or relatives with Alopecia, but have never actually met anyone face to face! It's nice to know there is someone close by with the same stuff going on!
- At 10:14am on November 26, 2008,
Marina said… - Hi Amy, I was diagnosed AGA when I had just turned 21 (now I'm 23) and I had the same experience you write about. I am now walking my way towards acceptance... i hope we can stay in touch.
- At 2:34pm on November 21, 2008,
LeslieAnn Butler said…
- Hi Amy,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn
- At 9:43pm on November 18, 2008,
Cheryl, Co-founder said… - Hi Amy, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
- At 6:08pm on November 18, 2008,
Cherylnz said…
- Hi Amy
Welcome to Alopecia World
- At 4:57pm on November 18, 2008,
rj, Co-founder said… - Hi, Amy. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
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