My photos
I put the most recent on here of Alyssa. The one says date stamped 1-1-04.. that was taken on 7-21-08 :o) .. Then there is a pic of her and her siblings..
Alyssa is a great little girl.. I took her to U of M and that is when they told me what she had and that there is a 2% chance that she will ever grow her hair. She is a funny little girl. She makes me smile and laugh. When I first found out that she had this, I was devastated. I cried for days.. But as she has gotten older, it's alyssa :o) She knows she doesn't have hair, she told me the other day that she dont want any because it would make her sweat.. but she says "fweat" lOL.. She starts kindergarten next school year.. 2009-2010 so I am hoping she will have a wig or what not by then.. :o)Or I may opt out and let her be her!:o)