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Merari's Page
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Javier A. Santiago left a comment for Merari's Page"Hello Merari!! How are you? I can see that you are doing great and so beautiful like always!! This is your cousin Javier from Puerto Rico (I'm Zoe's brother) I want to tell you something very quickly; first: I really care you and love…"
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- My name is Jennifer I am making this page with my niece Merari,she is only six years old and she has Alopecia areata. She is a wonderful little girl with a BIG heart. She loves to read and write her own books, going to church and singing. I am making this page for her because my family and I do not know much about Alopecia and we would like to learn as much as we can about it. We want to find ways to help Merari deal with this at times frustrating disease, that has taken 100% of her hair in less then a year. Merari is beautiful and energetic, she is one of the brightest kids in her first grade class and her grades reflect it. Although Alopecia areata has taken away her once long curly hair, she is still very healthy and we thank God for that every day. We hope threw this page to meet great people that can help us understand Alopecia more. Thank you for viewing our page and Welcome!!
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Choose one
Hi my name is Miraida and I am Merari's mom. Jennifer is my sister. My daughter is trying to understand what this is and why her hair is falling off the way it is. Like my sister said my daughter has lost 100% of her hair since April of this year. It has happened really fast. Although she has had Alopecia Areata since she was 2 1/2 years old but is was just one or two spots at a time. She would get shots and her hair would grow back. We seemed to have it under control. But this year it has been different. We have done topical treatment as well as shots and oral medication to control the loss. It hasn't really worked the way I would want. She wears a hat and she is getting really tired of it.
As of December 2008 Merari wears a wig and feels very comfortable and happy with it. Thank God for those organizations out there like childrenwithhairloss.org that help children like my daughter. We are not under any type of treatment right now, we are letting things be as they are. Until we see a miracle!.God has given us peace through all of this and this is important to me.
As of December 2008 Merari wears a wig and feels very comfortable and happy with it. Thank God for those organizations out there like childrenwithhairloss.org that help children like my daughter. We are not under any type of treatment right now, we are letting things be as they are. Until we see a miracle!.God has given us peace through all of this and this is important to me.
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An update on Merari's new Wig!!
Posted on January 3, 2009 at 7:32pm 5 Comments 0 Favorites
Here is an update on how Merari's first wig consultation went....well...it went VERY WELL!! Thank God.
Phew :-) ....because we were very nervous at first and were unsure what to expect. We had many question and some concerns, as you can image. The consultant was very kind and was able to answer all the questions. The most important thing to us was that Merari find a wonderful wig that she would love to wear.The other concern was the cost. We wanted Merari to have a nice and natural… Continue
Phew :-) ....because we were very nervous at first and were unsure what to expect. We had many question and some concerns, as you can image. The consultant was very kind and was able to answer all the questions. The most important thing to us was that Merari find a wonderful wig that she would love to wear.The other concern was the cost. We wanted Merari to have a nice and natural… Continue
Tomorrow is a big day for Merari!
Posted on December 8, 2008 at 6:05pm 5 Comments 0 Favorites
Hi everyone this is Jennifer, Merari's aunt. I just wanted to share with all of you that tomorrow is a big day for Merari, she will have her first wig consultation. This is a bitter sweet moment for me and I think for my sister Miraida as well.Merari seems to be excited about it! But us big people are still trying to get our heads around this whole thing. You see we just recently started to talk about the idea of Merari possibly wearing a wig. We knew at some point we would have to talk about… Continue
Comment Wall (17 comments)
- At 9:21am on October 30, 2009,
Mallory Crowner said… - Hi there..my name is Mallory and I'm from Michigan. Just looking for some others with AA around the state. ;o)
- At 1:13pm on February 13, 2009, Javier A. Santiago said…
- (:)
- At 1:12pm on February 13, 2009, Javier A. Santiago said…
- Hello Merari!! How are you? I can see that you are doing great and so beautiful like always!! This is your cousin Javier from Puerto Rico (I'm Zoe's brother) I want to tell you something very quickly; first: I really care you and love you!! For me you will be the little cousin that at this time I don't have here in Puerto Rico that always has a great smile and funny humor. I remember your last vacation with your sister and parents in Puerto Rico. In that moment I saw a little girl that shows a lot of great feelings and extraordinary and unique style! For me you are unique, you are important for your parents, grandparents, aunts, uncles, cousins and FOR ALL OF THE MEMBERS in this great web page. I wish you the best and I know God will help you a lot during the next years! We believe in miracles, we believe that God knows all!! So!! Let see what happens with this!!
PS: Miraida... I don't have idea about Merari's condition since last Sunday. I can't believe this but I really know that God have something special for this situation!! I know who you are...I know what kind of person you are and believe me that I KNOW WHAT KIND OF MOTHER YOU ARE! I can imagine it is hard for you but I know that you can continue with this because you have a lot of people that praying for you and Joel. I wish you the best like always! I will not cry...I will be happy because I know that God have a special purpose for this!! God Bless You!! With love...
Miraida/Merari/Joel/Damaris and all of the family and members:
Deuteronomy 31:6
Be strong and of good courage, fear not, nor be affrighted at them: for Jehovah thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.
Thessalonians 5:16-18
Rejoice always; pray without ceasing; in everything give thanks: for this is the will of God in Christ Jesus to you-ward.
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Javier A. Santiago
jasv83@hotmail.com
- At 5:30pm on December 23, 2008,
Kelsey said… - your welcome glad to help and thank you for thanking me. ha ha ha!!!!!!!!! : )
- At 7:17pm on December 22, 2008,
Cindy and Samantha said… - Hi Jennifer, how is Merari doing? Did she have a good experience with looking for a wig?
- At 11:52pm on December 10, 2008,
Karen said… - Your little one is so cute. She is exactly like my daughter because Amber also has a disney princess obssession as well. Her birthday cake also had the princess picture on it as well.
It is though I know and I just wanted to let you know that you are indeed not alone on this journey eventhough at times you might feel as if you are.
Amber did loose 90% of her hair within about six months as well. But it did all grow back and than she started getting pactches and now it is growing back again so I guess this is the unpredictability of it and we just need to take it as it goes. It is sad sometimes so I can understand exactly where you are coming from but I always keep reminding myself to thank the lord that it is nothing else....and this has helped me come to acceptance. I have my days but all in all I have come a long way and I talk openly about it to other parents at her school and teachers. This has help me and her alot.
- At 5:53pm on December 9, 2008,
Char said… - Hi north neighbor :) I'm from Northwest Ohio, 45 minutes south of Toledo, so I've heard of Lansing. I've had alopecia areata since I was 11, and universalis since I was 23. Unfortunately as I got older my disease progressed. Merari seems like a sweet girl and looks like she has a load of love surrounding her, which is very important! My family was my strength during this process and haveing their acceptance and encouragement is what helped me accept my self. Everyone is different, sometimes the difference is more obvious in some than others.
- At 6:10pm on December 8, 2008,
Lyndsey said… - We live about half an hour west from Coldwater. I'm not supposed to give out the name of the town to people on the internet. Thanks for giving me the information about Merari.
- At 3:05pm on December 7, 2008, Kelsey said…
- She is adorable i do not no much about alopecia ether and o my gosh she is cute.
- At 6:57pm on December 2, 2008,
Zoe Santiago said… - Hi Meraris...This is Zoe your cousing from Puerto Rico. I just want to let you know that you are special for us and for GOD. You are beautiful and have a lot of people that loves you. There is a purpose for everything in life, Romans 8:28 says:"We know that God is always at work for the good of everyone who loves him".
Miraida...I will be praying for you all...I wan to share with you my favorite's Bible verses: Isaiah 41:10 "fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand".
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