Jacqui
  • Female
  • SA
  • Australia
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  • Airam-FFA
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Latest Activity

Jacqui and Airam-FFA are now friends
Jan 21
Jacqui updated their profile
Jan 21
Jacqui replied to lynetter's discussion Possible Burnout in the group Frontal Fibrosing Alopecia
"Lynette thanks for sharing and I am thrilled you might be in burn out!  Fingers crossed for you! x"
Jan 1
Jacqui replied to Jacqui's discussion Medication Break in the group Frontal Fibrosing Alopecia
"Hi AnnieMay, I am sorry I missed your reply from September!   I totally agree.... everytime I took my meds it reminded me of my FFA and even though I still know I have it... I don't feel like I am thinking about it as much. It is a…"
Jan 1
Lo liked Jacqui's discussion Medication Break - 3 months on
Dec 20, 2017
Jacqui replied to Jacqui's discussion Medication Break - 3 months on in the group Frontal Fibrosing Alopecia
"I think this was one of the reason I stopped meds.... to see if they were actually doing anything as I couldn't tell either way.  I do hope though that those meds will kick in for you!  xx"
Dec 18, 2017
Halfbakedwho replied to Jacqui's discussion Medication Break - 3 months on in the group Frontal Fibrosing Alopecia
"thanks for this news! I am currently using Minoxidil and Clobestan (spelling) but am losing hair anyway... definitely moth-eaten. I am going to keep this up until March or so, get the biopsy, and see what's next. I don't know if it's…"
Dec 18, 2017
Jacqui replied to Jacqui's discussion Medication Break - 3 months on in the group Frontal Fibrosing Alopecia
"Awesome news Sallywess and your "quietness", I hope you continue to be silent!  My FFA seemed to be a slow progression anyway... I was happy things didn't speed up off the meds. I still get the crawling, itching feeling at the…"
Dec 18, 2017
sallylwess replied to Jacqui's discussion Medication Break - 3 months on in the group Frontal Fibrosing Alopecia
"Hi Jacqui.  I have also stopped all meds and not treating at all.  I say my derm this past week for my three month check-up, and like you, the news was good.  He said that he saw no evidence of inflammation for the first time in the…"
Dec 17, 2017
Jacqui added a discussion to the group Frontal Fibrosing Alopecia
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Medication Break - 3 months on

Hello friends, thought I would update you on my med break. I am now 3 months on after stopping Cellcept and Finasteride (after previously trying Planquinil and steroid injections). I saw my derm yesterday and she thought my scalp was not as inflamed. I think I still have some thinning and also "stray, moth eaten hairline" with raised follicles so can't say I have burned out. So no real change off meds which means I guess I have no real change on them either.  So I feel good about this as I…See More
Dec 17, 2017
Airam-FFA replied to Jacqui's discussion Medication Break in the group Frontal Fibrosing Alopecia
"Hi Jacq I will see if I can find it.   xOx"
Dec 16, 2017
Jacqui replied to Jacqui's discussion Medication Break in the group Frontal Fibrosing Alopecia
"I just posted un update on my medication break in a new discussion :)"
Dec 16, 2017
Jacqui replied to Adie503's discussion Hi Ladies in the group Frontal Fibrosing Alopecia
"I am so sorry for your diagnosis.  It's not fun at all but you will find this group a great source of support and knowledge.  I have no pearls of wisdom for you other than to give yourself time with your diagnosis.  I am 3 years…"
Dec 16, 2017
Jacqui replied to Erika B's discussion biospy results in the group Frontal Fibrosing Alopecia
"HI Erika, I just wanted to share I have FFA, classic in presentation.  I have never had a biopsy. My derm never suggested it she knew straight away.  Having researched FFA I have no doubt I have it, I match all the symptoms and pictures of…"
Dec 16, 2017
Marytee liked Jacqui's discussion Medication Break
Oct 14, 2017
Jacqui replied to Jacqui's discussion Medication Break in the group Frontal Fibrosing Alopecia
"Let us know if you find a new foundation, I have had no luck yet with one... let alone trying to blend something into my receding hairline..."
Sep 25, 2017

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 11:06pm on September 15, 2015, LeslieAnn Butler said…

You will find a lot of support here!

At 7:37pm on September 14, 2015, LeslieAnn Butler said…

Hello and welcome!

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