"Hi AnnieMay, I am sorry I missed your reply from September!
I totally agree.... everytime I took my meds it reminded me of my FFA and even though I still know I have it... I don't feel like I am thinking about it as much.
It is a…"
"thanks for this news! I am currently using Minoxidil and Clobestan (spelling) but am losing hair anyway... definitely moth-eaten. I am going to keep this up until March or so, get the biopsy, and see what's next. I don't know if it's…"
"Awesome news Sallywess and your "quietness", I hope you continue to be silent! My FFA seemed to be a slow progression anyway... I was happy things didn't speed up off the meds. I still get the crawling, itching feeling at the…"
"Hi Jacqui. I have also stopped all meds and not treating at all. I say my derm this past week for my three month check-up, and like you, the news was good. He said that he saw no evidence of inflammation for the first time in the…"
Hello friends, thought I would update you on my med break. I am now 3 months on after stopping Cellcept and Finasteride (after previously trying Planquinil and steroid injections). I saw my derm yesterday and she thought my scalp was not as inflamed. I think I still have some thinning and also "stray, moth eaten hairline" with raised follicles so can't say I have burned out. So no real change off meds which means I guess I have no real change on them either. So I feel good about this as I…See More
"I am so sorry for your diagnosis. It's not fun at all but you will find this group a great source of support and knowledge. I have no pearls of wisdom for you other than to give yourself time with your diagnosis. I am 3 years…"
"HI Erika, I just wanted to share I have FFA, classic in presentation. I have never had a biopsy. My derm never suggested it she knew straight away. Having researched FFA I have no doubt I have it, I match all the symptoms and pictures of…"
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