RoxyT
  • Female
  • Rockville, MD
  • United States
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Latest Activity

RoxyT commented on Celia UK's group Frontal Fibrosing Alopecia
"In a discussion thread ,Toby alerted us to an interesting study from March. In case you missed it, too: https://www.nature.com/articles/s41467-019-09117-w"
Jul 1
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Toby, thanks for sharing the article and your results with taking iron.  I was able to regrow some eyelashes and hair on my arms, legs and public area with oral minoxidil. I have some regrowth on non-frontal part of my scalp. I'm guessing…"
Jul 1
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Lu, I forgot to to ask: Do you have hypothyroidism,granuloma annulare, and/or Ehlers-Danlos?"
Jun 30
RoxyT replied to Lu's discussion Lichen planus in the group Frontal Fibrosing Alopecia
"Hi, Lu. Yes, I have both FFA and vulvar lichen sclerosis. For about 18 months, I visited dermatologists showing them scalp and vulva. I eventually stopped having them look at the latter because 7 different docs told me I was "normal," and…"
Jun 30
RoxyT replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"I'm curious why you believe dutasteride is better than finasteride. Thanks!"
Jun 12
Plf replied to RoxyT's discussion Do you have these symptoms? in the group Frontal Fibrosing Alopecia
"Hi Roxy t, for me it's just frontal hair line loss, approx 3.5 cm if I'm honest, ..white shiny area where hair once was, Loss of hair on arms and legs..no other horrid stuff at this stage"
Feb 23
RoxyT added a discussion to the group Frontal Fibrosing Alopecia
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Do you have these symptoms?

Hello, everyone. I'm a new group member who has been lurking and learning tons for the past few weeks. Thank you for the straight scoop on this vexing condition.I'll share my story in a separate post. I'm just very curious to know if any of you have these symptoms:1) The loss of many hairs no longer than 3 or 4 millimeters, when you shake or scratch your head. At times, it's like being inside a snow globe, with hundred of these little hairs floating around. (For optimum effect, stand in a…See More
Feb 22
RoxyT joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Jan 18
RoxyT is now a member of Alopecia World
Jan 18

Profile Information

Relationship Status:
Married
About Me:
Diagnosed with FFA in January 2019
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 9:07am on February 2, 2019, Joyce said…

Good Day,

How is everything with you, I picked interest on you after going through
your short profile and deemed it necessary to write you immediately. I have
something very vital to disclose to you, but I found it difficult to express
myself here, since it's a public site.Could you please get back to me on:
(mrsstellaabudheir200@gmail.com ) for the full details.

Have a nice day

Thanks God bless.

Stella.

 
 
 

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