texas2016
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After 2 Years...Xeljanz Did Not Work For Me

Started this discussion. Last reply by mtran2000 Jun 10. 2 Replies

Hi all...I haven't posted anything in a few years.   I will get to the skinny of the post.  I generally am interested to see if anyone else experienced similar results as me.I have AU (with some…Continue

Xeljanz not working?

Started this discussion. Last reply by mtran2000 Sep 27, 2016. 11 Replies

This post is to discuss my experience thus far taking Xeljanz. I am not trying to discourage anyone for taking Xeljanz. And I am happy for those that are responding and growing hair on Xeljanz.First…Continue

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mtran2000 replied to texas2016's discussion After 2 Years...Xeljanz Did Not Work For Me
"On Xeljanz 2 years and aside from some improvement with fingernails and some body hair isn't doing much for me. Did 10 MG a day and then 20 MG a day."
Jun 10
Football fan replied to texas2016's discussion After 2 Years...Xeljanz Did Not Work For Me
"Xeljanz does not work for me either.I was called in for the baricinitib trial also and they would not take me because I already tried xeljanz.It doesn’t make sense to me because I would be a good candidate to see if a different jak would be…"
Jun 10
texas2016 posted a discussion

After 2 Years...Xeljanz Did Not Work For Me

Hi all...I haven't posted anything in a few years.   I will get to the skinny of the post.  I generally am interested to see if anyone else experienced similar results as me.I have AU (with some eyebrows as I get shots there). I was on Xeljanz for 2 years.  I was fortunate that my insurance covered 100% of the cost of the drug.  The results were nonetheless shocking and disappointing to say the least.  And frustrating...First, I am happy to see that the drug has worked for others...I only…See More
Jun 10
texas2016 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Squaric acid and/or DCPC my work....these are meant to create an allegric reaction to the applied area...the theory is that it "confuses" your immune system to stop attack your hair follicles and to attack the allergen...I did it and for…"
Feb 20, 2018
texas2016 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have had alopecia since I was 9...I am 44 now...most of my life I dealt with areata with one or two small spots...however it got worse in my early 30's and got better to where I basically had a full head of hair by 40-41...I started to lose…"
Feb 20, 2018
texas2016 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I took the standard doses...2 a day...then I took 3 a day....then I took 4 a day...I also used the topical xeljanz cream...none of it worked"
Feb 20, 2018
texas2016 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been in Xeljanz for 2 years and it did not work for me...I did get some initial growth within 2-3 months, but it stopped about month 5...and hasn't done anything for the reminder of the time I have been taking it...I have been lucky that…"
Feb 20, 2018
Susan McAdams and texas2016 are now friends
Oct 12, 2016
texas2016 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Thanks Susan I will reach out to you"
Oct 4, 2016
texas2016 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"What is odd to me is that I was responding (I think pretty well) for the first 5 months or so...then all of sudden I stopped responding and started to lose the hair that grew back...there has been nothing that changed in my life, from a stress…"
Oct 4, 2016
texas2016 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"I have been on 2-3x per day and upped to 4x per day last month...additionally I am using the topical Xeljanz...however my response to the drug has gotten worse over time...initially I responded very well on 2-3x...growing hair within 2…"
Oct 3, 2016
texas2016 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"So I am starting my 8 month...and nothing to show for it so far...most of the hair I did gain has fall out and now most of the new signs of growth have stopped and begun to recess...not really sure what to do now for treatment...I felt like Xeljanz…"
Oct 2, 2016
texas2016 replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Susan...I have AU...I have had AA since I was 9 (I am 43 now)...but it was only a spot here or there...it turned aggressive about 1.5 years and transitioned into AU...before I lost all my hair (around August 2015) six months prior I had a full head…"
Sep 28, 2016
mtran2000 replied to texas2016's discussion Xeljanz not working?
"I am on month five on Xeljanz and not seeing any growth on my head. I am seeing more body hair. I saw my doctor yesterday and she said to hang in there and give it more time. I guess I am a slow responder."
Sep 27, 2016
texas2016 replied to texas2016's discussion Xeljanz not working?
"I am starting my 8 month of Xeljanz and it seems now my eyebrows are losing hair..Not sure what to do now...I am not sure if I stay on Xeljanz anything will change..."
Sep 26, 2016
Nicolas replied to texas2016's discussion Xeljanz not working?
"Thank you i think you put too much xelijanz and it caused now this effect ..."
Sep 11, 2016

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Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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