Susan McAdams
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  • Pacific Palisades, CA
  • United States
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Susan McAdams's Discussions

Xeljanz and Looking Ahead to the Future...

Started this discussion. Last reply by NYC_Gal_1981 Jul 13. 101 Replies

Hi Everyone--I decided to start a new discussion group for those of us who are taking, have taken, or are thinking about trying Xeljanz.  As we all know by now, the medical trials that took place at…Continue

Tags: Trial, cure, treatment, Stanford, insurance

Xeljanz Users...Let's Stay Connected Here in 2016!

Started this discussion. Last reply by Mohit Oct 26. 197 Replies

Hi Friends--I want to thank so many for following my discussion link, "My Stanford trial experience, Part 2 (Xeljanz)" throughout the bulk of 2015. I began participation in the trial in late January,…Continue

Tags: Columbia, Yale, Stanford, treatments, Xeljanz

Xeljanz options...Mexico? Compounding pharmacy? Please share!

Started this discussion. Last reply by singh Dec 27, 2015. 13 Replies

Hi Everyone--I have been posting on another discussion my progress on Xeljanz. I did the trial up in Stanford, and after 3 months, continued on as a post-patient. I purchase the drug out-of-pocket…Continue

Tags: pharmacies, compounding, Mexico

My Stanford trial experience, part 2 (Xeljanz)

Started this discussion. Last reply by Alma Jan 21, 2017. 179 Replies

My first post on this topic got buried somewhere in "Discussion" purgatory, so I am providing an update on my experience as a participant in the Stanford trial for Xeljanz...After contacting Dr. King…Continue

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Latest Activity

Mohit replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Hi All, I was suffering from Alopecia Areata from 3 years, now regrowth has started and I am getting my hairs back. I was frustrated, tried every treatment in the past. Had more than 15 patches on all body, 1 big patch on my beard which covers…"
Oct 26
Zuzu liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
Oct 23
NYC_Gal_1981 replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"I recently stopped xeljanz and most of my hair fell off after 2 months of stopping. I've gotten back on the medication (been a month in) and I think shedding has slowed down a little bit (not stop fully though) - just wanted to get feedback on…"
Jul 13
Bubbles liked Susan McAdams's profile
Jul 1
Bubbles replied to Susan McAdams's discussion Xeljanz Users...Let's Stay Connected Here in 2016!
"Hi Susan, I friended you about a year ago.  I hope you remember me.  I live in Houston and am looking for a doctor in this area who will prescribe Xeljanz.  My hair Loss has become dramatically worse......I have now lost over…"
Jun 14
kims liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
May 20
karen liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
May 7
Pat liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
May 5
Cri1964 liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
May 4
LittleSadEyes replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Hey has anyone here got androgenetic alopecia also, or just androgenetic alopecia and tries xeljanz?"
May 4
Football fan replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Sounds like the culprit could have been the tooth infection.Thats how I got when I needed a root canal..Six months before I started xeljanz I got deviculitis if I started xeljanz six months earlier I probably would have blamed  the medication…"
May 1
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"CTP-543 has been fast tracked by the FDA - might end up being the first treatment approved for alopecia: https://www.naaf.org/news-room/fda-grants-fast-track-designation-to-concert-pharmaceuticals-ctp-543-for-the-treatment-of I was (very briefly) in…"
May 1
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Sorry I didn't see your response until just now. We tried for Xeljanz and it was rejected by the insurance company (they want me to try methotrexate or, Humira and Enbrel first before approving Xeljanz). My doctor is currently appealing their…"
May 1
deveze marc replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Bonjour Kévin merci pour tes reponses es -tu sorti de l 'essal clinique Il2 ? j' avais cru comprendre qu'il y avait des contrôles après 1 an... Le Pr Passeron est il au courant de ton traitement avec Xeljanz? …"
May 1
kevin replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Mon analyse de sang va bien niveau du il2 , j'ai eu une amélioration de mes ongles et cheveux mais une légère repousses. Donc 1ans après il2 j'ai décidé de passer à xeljanz je paie 425euro…"
Apr 28
tannorthanyou liked Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
Apr 23

Profile Information

Relationship Status:
Single
About Me:
I'm a divorced mother of three daughters. I am currently working on an interior design certificate at UCLA Extension. Looking to meet new friends in the LA area.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Susan McAdams's Blog

My AA and mercury poisoning?

Posted on February 26, 2014 at 7:00pm 4 Comments

I have been reading some recent posts of members of this site who are watching their hair grow back--congratulations! It is a great feeling to see progress. I had my first major attack of AA in 2007 and lost about 70% of my hair. I wore a wig for a few months, and then it grew back pretty rapidly, and I was able to ditch the wig and add in extensions to even out the short areas.

During the summer/fall of 2007, I went to every doctor I could think of and had all sorts of blood work…

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At 8:20pm on January 14, 2016, Tracy said…
I have had JRA since the age of 5, am now 40. In 2011 my hair rapidly fell out and it left me completely hairless. In summer of 2014 I heard about the xeljanz story. Being that I had RA I talked to my doctor about trying. With some hesitation she agreed. I seen immediate results with eyelashes and eyebrows. In 1 year all my hair was back. However I just recently started methotrexate in addition to the xeljanz and now my hair is falling out again. I am not sure if it has anything to do with the methotrexate or just a relapse as I am still taking the xeljanz. I don't see a Dr. For alopecia just my RA which I will be seeing on the 20th. Not sure if I can handle loosing my hair again...
At 10:59pm on January 4, 2015, RICHARD said…

My hair won't coe back and Im cool with DAT!   like my page if you are too-

At 1:12am on July 21, 2014, Rose Marie' said…

Hello Susan

I just wanted to thank you for your dating insights.  My daughter is 23 and recently finished a long term relationship.  Being able to read what you have written has been helpful for me (the mum who hopes her quiet guidance is helpful).  I will show my daughter what you have written as I believe it will give her that little extra boost she may need. 

Thanks

Rosy

At 5:01pm on July 5, 2014, LindaSue said…

Hi Susan- looking forward to hearing from you. Linda

At 1:08am on January 12, 2014, LeslieAnn Butler said…

Hello and welcome, Susan!

How are you today?

Leslie Ann

 
 
 

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