ohnonotme
  • Female
  • Rockaway, NJ
  • United States
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  • Halfbakedwho

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Latest Activity

ohnonotme replied to HeathNJ's discussion Recommendations from NJ members in the group Frontal Fibrosing Alopecia
"Hey Clazsis, Do you use oral or topical tacrolimus? Maybe I will ask about this med bec I have used clobatasol and Rogaine with little improvement. Thanks. --Coleen"
Jan 18
ohnonotme replied to HeathNJ's discussion Recommendations from NJ members in the group Frontal Fibrosing Alopecia
"And if you get better results than I have, I will try your dermatologist. Lol."
Jan 14
ohnonotme liked Danielle's discussion Stem cell therapy???
Jan 14
ohnonotme liked HeathNJ's discussion Recommendations from NJ members
Jan 14
ohnonotme replied to HeathNJ's discussion Recommendations from NJ members in the group Frontal Fibrosing Alopecia
"Hey Heather, I have been treated by Dr Ellen dabela in parsippany, NJ. The treatments we have done so far have not stopped my hair loss. Have done clobatasol, oral antibiotics, oral steroid, steroid scalp injections. Starting on an anti-inflammatory…"
Jan 14
ohnonotme commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi everyone, Has anyone seen Dr. Lindsey Bordone at Columbia in NYC? My NJ dermatologist referred me to her stating that she is a dermatologist who specializes in hair issues and is doing clinical trials. Might give her a shot but wanted to hear if…"
Jan 13
ohnonotme replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Can you be more specific about what you have read about FFA medications and cancer risk? I am curious about this because I had breast cancer in 2018 and was diagnosed wiith FFA in 2019 so I want to do things to help the FFA without increasing the…"
Jan 4
ohnonotme commented on Celia UK's group Frontal Fibrosing Alopecia
"Sometimes I wonder if I could have had ffa for years and not realized exactly what was going on until recently. I have always had a "big forehead" and I have always shed lots of hair all the time (in the shower, in brushes) but never paid…"
Oct 28, 2019
ohnonotme commented on Celia UK's group Frontal Fibrosing Alopecia
"Not sure if the link below will work. Doesn't give hard numbers, but apparently FFA is increasing in frequency of occurrence, as there is now considered to be "an epidemic" of cases: https://www.ncbi.nlm.nih.gov/m/pubmed/30815440/"
Sep 27, 2019
ohnonotme replied to ohnonotme's discussion Minoxidil regimen in the group Frontal Fibrosing Alopecia
"Tks for your answers. I follow a couple of hair loss groups on Reddit where some people mention doing it 2x per day. The dermatologist told me to do minoxidil 1x per day in the morning and clobatasol in the evening. She did steroid shot on Aug 26th…"
Sep 24, 2019
Donna replied to ohnonotme's discussion Minoxidil regimen in the group Frontal Fibrosing Alopecia
"I use the foam once a day at night "
Sep 23, 2019
Bab replied to ohnonotme's discussion Minoxidil regimen in the group Frontal Fibrosing Alopecia
"You apply the foam 1x per day.  I use it at night before going to bed.  "
Sep 23, 2019
ohnonotme added a discussion to the group Frontal Fibrosing Alopecia
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Minoxidil regimen

For those using minoxidil 5% foam, do you aplly 1x per day or 2x per day? Thanks!See More
Sep 23, 2019
ohnonotme and Halfbakedwho are now friends
Sep 17, 2019
Halfbakedwho left a comment for ohnonotme
"Hi Oh no, I have never been much into meds. I already take an antidepressant long-term and will need to for the rest of my life most likely. I hated birth-control pills (when I was young) and today couldn't tolerate HRT. I tried Finasteride for…"
Sep 17, 2019
ohnonotme left a comment for Halfbakedwho
"Hey Halfbakedwho, Can you discuss a bit about your decision not to take Finasteride? Just wondering about the downsides of that medication. My dermatologist does not like to prescribe it, but she did not go into detail. Thanks!"
Sep 17, 2019

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 1:44pm on September 17, 2019, Halfbakedwho said…

Hi Oh no,

I have never been much into meds. I already take an antidepressant long-term and will need to for the rest of my life most likely. I hated birth-control pills (when I was young) and today couldn't tolerate HRT. I tried Finasteride for about a week but just didn't like it - maybe it was just the idea of it I didn't like but in any case, I stopped. Today I'm just calmly watching my hair leave my head (sometimes not so calmly ; ) ! ). Voilà !

 
 
 

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