Donna
  • Female
  • Seattle, WA
  • United States
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Donna's Discussions

Microblading

Started this discussion. Last reply by Lilly Feb 22. 11 Replies

i had my eyebrows microbladed yesterday .  I have frontal fibrosising alopecia.  After she started with the microblading she was having a hard time with my skin on the eyebrows.  She said it was very…Continue

Using rogaine

Started Oct 30, 2017 0 Replies

With frontal fibrosing Alopecia I am only using the rogaine on the temples & hair line area. Not all over. What are other doing

FFA how much hair loss will happen

Started this discussion. Last reply by Murmo Aug 14, 2018. 2 Replies

How much hair loss is average for FFA? I’m so worried I’m going to lose half my head of hair. I saw a woman that was almost bald except for the back half of her head.

I’ve read some that Tramadol can cause hair loss

Started this discussion. Last reply by Return_life Oct 10, 2017. 3 Replies

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA

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Donna replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I feel the same way. I wish they could find a cure or close to it. almost 2 weeks since diagnosis. I can still hide it a bit except when wind blows. Also I almost feel bald when the wind blows, so cold. But I have to say I’m very thankful I…"
Oct 18, 2017
illustr8r replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I hear ya Nina. I’m right there with you. Although I think the AIP diet is helping (and I feel better because of it beyond the hair) I find some weeks I drift into analyzing every hair shaft in my close up mirror and fretting about my…"
Oct 18, 2017
Nina Jones replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi All - As difficult as it might seem, I really do think acceptance is the key. I read about all these different things each of us are trying, so many, that I get lost in the detail, and totally confused. It just seems so mad,…"
Oct 18, 2017
Lo replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Wanda - did you end up going to the specialist on the 11th - and if so, how did it go? Anything promising? "
Oct 16, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Not sure if you were notified of my post on Monday. I answered most of your questions except whether I take supplements.  I have taken the normal array of healthy supplement but stopped them 2 years ago. I have noticed no effect on my hair loss…"
Oct 10, 2017
Return_life replied to Donna's discussion I’ve read some that Tramadol can cause hair loss
"alopecia universalis"
Oct 10, 2017
Donna replied to Donna's discussion I’ve read some that Tramadol can cause hair loss
"I’m sorry but what is AU?"
Oct 10, 2017
hagster replied to Donna's discussion I’ve read some that Tramadol can cause hair loss
"A study concluded hair loss occurred in people over 60 who are taking Humira along with Tramadol. Humira can also cause Lymphoma (cancer). The Tramadol did not cause hair loss. And, I bet they were talking about hair loss as in thinning like after a…"
Oct 9, 2017
Donna replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"What is the AIP diet?"
Oct 9, 2017
WandaRussell replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I'm scheduled to meet with Dr. Desai Wednesday the 11th.  I've already had a biopsy through Kaiser who identified that I have FFA.  I was told that Dr. Desai is the best so that is where I'm going.  Even though…"
Oct 9, 2017
AnnieMay replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Wanda and Donna- I am so sorry that you both are dealing with this awful disease. It is a roller coaster ride trying to navigate through everything but you will find everyone here so supportive. If you go back through the posts you'll find a…"
Oct 9, 2017
Donna posted a discussion

I’ve read some that Tramadol can cause hair loss

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA
Oct 9, 2017
WandaRussell replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks for letting me know.  Are you using Monoxidil 5% and a steroid on your scalp?  Are you using special shampoo? Are you on any special diet plan or supplements.  Have you done any injections on your scalp.  I'm so sorry…"
Oct 9, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"generic Dutasteride 0.5mg one pill daily."
Oct 9, 2017
illustr8r replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks Airam for the info. So many decisions to make in how to treat or not treat this stupid condition...!"
Oct 9, 2017
Airam-FFA replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
Oct 9, 2017

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At 7:56pm on November 14, 2017, illustr8r said…

Hi Donna,

This is the thread where the essential oils were listed:

http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils

It was posted by "April"

Here is the recipe:

4 tsp. grapeseed oil + 1/2 tsp jojoba oil

2 drops cedarwood EO

2 drops thyme EO

3 drops lavender EO

3 drops rosemary oil

Here is  a link to the study

http://www.ncbi.nlm.nih.gov/pubmed/9828867

I have a friend who has always had thin hair. She hasn't been diagnosed with anything- just unlucky in the hair dept. She started using essential oils and had some success. She used something call Ylang Ylang along with lavender and cedarwood. I'll try this concoction since it was a scientific study. I have been using cod liver oil and it's soothed my itchy scalp. Dr. says to stop with Clobetasol for awhile...*sigh* It's always something isn't it! :)

 
 
 

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