2Dachshunds
  • Female
  • Houston, TX
  • United States
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2Dachshunds's Friends

  • Wyobalance
  • Meme

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2Dachshunds's Page

Latest Activity

Meme left a comment for 2Dachshunds
"Hi thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care"
Sunday
2Dachshunds and Meme are now friends
Aug 9
2Dachshunds left a comment for Meme
"Hi Meme: thanks for your post, that is very brave and I am glad you feel good!  I was wondering about wigs and how hot they will be.  I am excited for you and your confidence to be you! Best Maria"
Aug 9
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Carla:  I just started what was supposed to be prescribed and that is tacrolimus 0.3% in Cetaphil cleanser.  That is what was used in a research study Shapiro et al did, "Prognosis, treatment, and disease outcomes in frontal…"
Aug 9
Carla replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Maria, I also was prescribed a tacrolimus ointment called Protopic. It definitely was greasy & I applied it only at bedtime. It made my eyelids swell overnight & did not help at all with the hairloss on my scalp or eyebrows. Currently I…"
Aug 8
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"that seems to be a recurring theme, no one really knows, maybe something helps, maybe not, is it worth it to withstand side effects??? I too take pretty good care of myself though I admit I have been eating a lot of sugar and not exercising. …"
Aug 8
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Do you think the Plaquenil is working? My derm said she wanted to see if anything else worked before starting that or any other "strong" medicine."
Aug 8
Halfbakedwho replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"yeah, my impression is that they sort of throw things on my head to make themselves (and me) seem like we are doing *something* but honestly they don't know what the hell to do.  I no longer am on Clobestasol, but just the Bethamethasone.…"
Aug 8
BubbaLu replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I think the injections are a way for Western Medicine doctors to ease into Plaquenil. The injections pretend to make it better for a week or two.  It’s just BULLSHIT.   THEN AFTER IT DOESNT REALLY WIRK, move to Plaquenil.  …"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thank you for your story!  Freak-out is a good way to describe it, I felt this sudden panic.   Even by going to 2 specialists sounds like there are not many answers or quick fixes.  Well, I am not sure it will be worth it to…"
Aug 7
Halfbakedwho replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi to you, Maria! Glad you have found us here! I haven’t posted in a while, but I remember how upset I was after my diagnosis about a year ago now. I’ve lost about 2 inches from a band in front of my head. On the right side it’s…"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Interesting, I see your point. Maybe it did.  I do wonder too about stress & hormone fluctuation since I have definitely had both."
Aug 7
Bloomingdalekid replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I am convinced that my FFA was triggered by Botox.... I know FFA is really caused by autoimmune disease, but is it possible that Botox triggered the autoimmune disease and therefore is somehow related?  There isn’t a dermatologist in town…"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks Diart:  I think I am a little stuck on the grief stage of denial!  I dont want to have this.  And I am working with a health coach because I have not been able to lose weight and feel lethargic all the time so she has…"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks, I saw your post about the dimples and looked and discovered I had them too!   My derm also said they would go away in a couple of weeks. I hear you on the waves - I felt sick to stomach but now it is less so, maybe I am moving into…"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thank you!  I have not measured in cm but at least 1 finger from original hairline in the front, the temples looks like a couple of inches and the sides a couple of inches, that part still has some hair but super thin.   I have done…"
Aug 7

Profile Information

Relationship Status:
In a Relationship
About Me:
I was diagnosed with FFA a couple of months ago. I am looking for solutions since no one in Houston seems to have any.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 3:56pm on August 12, 2018, Meme said…

Hi

thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care

 
 
 

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