"Hi Carla: I just started what was supposed to be prescribed and that is tacrolimus 0.3% in Cetaphil cleanser. That is what was used in a research study Shapiro et al did, "Prognosis, treatment, and disease outcomes in frontal…"
I also was prescribed a tacrolimus ointment called Protopic. It definitely was greasy & I applied it only at bedtime. It made my eyelids swell overnight & did not help at all with the hairloss on my scalp or eyebrows. Currently I…"
"that seems to be a recurring theme, no one really knows, maybe something helps, maybe not, is it worth it to withstand side effects???
I too take pretty good care of myself though I admit I have been eating a lot of sugar and not exercising. …"
"yeah, my impression is that they sort of throw things on my head to make themselves (and me) seem like we are doing *something* but honestly they don't know what the hell to do.
I no longer am on Clobestasol, but just the Bethamethasone.…"
"I think the injections are a way for Western Medicine doctors to ease into Plaquenil. The injections pretend to make it better for a week or two. It’s just BULLSHIT. THEN AFTER IT DOESNT REALLY WIRK, move to Plaquenil. …"
"Thank you for your story! Freak-out is a good way to describe it, I felt this sudden panic.
Even by going to 2 specialists sounds like there are not many answers or quick fixes. Well, I am not sure it will be worth it to…"
"Hi to you, Maria! Glad you have found us here! I haven’t posted in a while, but I remember how upset I was after my diagnosis about a year ago now. I’ve lost about 2 inches from a band in front of my head. On the right side it’s…"
"I am convinced that my FFA was triggered by Botox.... I know FFA is really caused by autoimmune disease, but is it possible that Botox triggered the autoimmune disease and therefore is somehow related? There isn’t a dermatologist in town…"
"Thanks Diart: I think I am a little stuck on the grief stage of denial! I dont want to have this. And I am working with a health coach because I have not been able to lose weight and feel lethargic all the time so she has…"
"Thanks, I saw your post about the dimples and looked and discovered I had them too! My derm also said they would go away in a couple of weeks.
I hear you on the waves - I felt sick to stomach but now it is less so, maybe I am moving into…"
"Thank you! I have not measured in cm but at least 1 finger from original hairline in the front, the temples looks like a couple of inches and the sides a couple of inches, that part still has some hair but super thin.
I have done…"
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