2Dachshunds
  • Female
  • Houston, TX
  • United States
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2Dachshunds's Friends

  • Wyobalance
  • Meme

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2Dachshunds's Page

Latest Activity

2Dachshunds commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Erika:  thanks so much for sharing this.  I will try it!!! Maria"
Thursday
2Dachshunds replied to Betty's discussion Have you tried Low Light Laser Therapy for FFA?
"Hi Betty: I am interested in what Dr. Shapiro has treated you with.  I have used tacrolimus in cetaphil cleanser on my hairline for about 3 months.  He was an author on research article where that treatment showed some results. What has he…"
Wednesday
2Dachshunds replied to Toby's discussion Help any medicines that work? in the group Frontal Fibrosing Alopecia
"Hi Toby: I got the steroid injections around hairline 2X then I have been treating hairline topically with tacrolimis compounded into cetaphil cleanser per a research article I found that said about 40% of small study group showed some good results.…"
Sep 28
2Dachshunds replied to number21's discussion Need Opinions Please - Awaiting Biopsy Results in the group Frontal Fibrosing Alopecia
"Hi there, the process you describe about the itching and flakes sounds familiar to me, however, I did not have huge flakes but I could see a silverish scale right where the hair comes out of the scalp.  That started first for me and derm said…"
Aug 31
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Kathy:  my dr. didnt want to put me on finesteride because I am still perimenopausal, she didnt explain exactly, and I wasnt sure what to ask, but I assume it is because if there is a potential for pregnancy, they wont do it.  I do not…"
Aug 31
Kathy in Denver replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I was diagnosed 2 years ago. I go to Dr Newman at UC Health in Denver. My condition has been inactive for over a year and a half. She has me taking Hydroxychloroquine and finastreide with no side affects. I also live a pretty clean…"
Aug 30
Meme left a comment for 2Dachshunds
"Hi thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care"
Aug 12
2Dachshunds and Meme are now friends
Aug 9
2Dachshunds left a comment for Meme
"Hi Meme: thanks for your post, that is very brave and I am glad you feel good!  I was wondering about wigs and how hot they will be.  I am excited for you and your confidence to be you! Best Maria"
Aug 9
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Carla:  I just started what was supposed to be prescribed and that is tacrolimus 0.3% in Cetaphil cleanser.  That is what was used in a research study Shapiro et al did, "Prognosis, treatment, and disease outcomes in frontal…"
Aug 9
Carla replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Maria, I also was prescribed a tacrolimus ointment called Protopic. It definitely was greasy & I applied it only at bedtime. It made my eyelids swell overnight & did not help at all with the hairloss on my scalp or eyebrows. Currently I…"
Aug 8
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"that seems to be a recurring theme, no one really knows, maybe something helps, maybe not, is it worth it to withstand side effects??? I too take pretty good care of myself though I admit I have been eating a lot of sugar and not exercising. …"
Aug 8
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Do you think the Plaquenil is working? My derm said she wanted to see if anything else worked before starting that or any other "strong" medicine."
Aug 8
Halfbakedwho replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"yeah, my impression is that they sort of throw things on my head to make themselves (and me) seem like we are doing *something* but honestly they don't know what the hell to do.  I no longer am on Clobestasol, but just the Bethamethasone.…"
Aug 8
BubbaLu replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I think the injections are a way for Western Medicine doctors to ease into Plaquenil. The injections pretend to make it better for a week or two.  It’s just BULLSHIT.   THEN AFTER IT DOESNT REALLY WIRK, move to Plaquenil.  …"
Aug 7
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thank you for your story!  Freak-out is a good way to describe it, I felt this sudden panic.   Even by going to 2 specialists sounds like there are not many answers or quick fixes.  Well, I am not sure it will be worth it to…"
Aug 7

Profile Information

Relationship Status:
In a Relationship
About Me:
I was diagnosed with FFA a couple of months ago. I am looking for solutions since no one in Houston seems to have any.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 3:56pm on August 12, 2018, Meme said…

Hi

thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care

 
 
 

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