2Dachshunds
  • Female
  • Houston, TX
  • United States
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2Dachshunds's Friends

  • Wyobalance
  • Meme

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2Dachshunds's Page

Latest Activity

2Dachshunds commented on Bloomingdalekid's photo
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Bonded hairpiece

"Wow, you look great!"
Nov 27
2Dachshunds liked Bloomingdalekid's photo
Nov 27
2Dachshunds replied to Hailey's discussion Someone please help! Is this early FFA? in the group Frontal Fibrosing Alopecia
"Hi Hailey: If I pull my hair back like you have in the first picture, I do not see any short hairs poking out so I am wondering if those short hairs of yours are new growth. How is the side and temple area of your hairline?  I first started…"
Nov 21
Dianna left a comment for 2Dachshunds
"I am so glad! It has been such an journey of experimentation and learning. I would love to find something for the scarred over areas but so far I have not found anything to reverse that. Dianna :)"
Nov 13
2Dachshunds left a comment for Dianna
"Dianna, thank you for all of this info!  I have noticed new hair growth after using cbd oil.  Im encouraged you are having results as well.  I am going to add massage and acupuncture as well!  thanks! Maria"
Nov 13
2Dachshunds commented on Celia UK's group Frontal Fibrosing Alopecia
"Brewing my spearmint tea now!  Hope this helps."
Nov 1
2Dachshunds replied to Robin's discussion Abstract about FFA....becoming an epidemic.... in the group Frontal Fibrosing Alopecia
"Wow, ok I hope some research money will finally go to this condition.  Fingers crossed!"
Oct 25
2Dachshunds replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Hi Robin: after reading your first post I have been trying CBD oil in tincture sublingually and using a topical salve at night.  CBD is legal in all states in US.  I think it has been helping and I also am using tacrolimus so not sure…"
Oct 25
2Dachshunds commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Erika:  thanks so much for sharing this.  I will try it!!! Maria"
Oct 11
2Dachshunds replied to Betty's discussion Have you tried Low Light Laser Therapy for FFA?
"Hi Betty: I am interested in what Dr. Shapiro has treated you with.  I have used tacrolimus in cetaphil cleanser on my hairline for about 3 months.  He was an author on research article where that treatment showed some results. What has he…"
Oct 10
2Dachshunds replied to Toby's discussion Help any medicines that work? in the group Frontal Fibrosing Alopecia
"Hi Toby: I got the steroid injections around hairline 2X then I have been treating hairline topically with tacrolimis compounded into cetaphil cleanser per a research article I found that said about 40% of small study group showed some good results.…"
Sep 28
2Dachshunds replied to number21's discussion Need Opinions Please - Awaiting Biopsy Results in the group Frontal Fibrosing Alopecia
"Hi there, the process you describe about the itching and flakes sounds familiar to me, however, I did not have huge flakes but I could see a silverish scale right where the hair comes out of the scalp.  That started first for me and derm said…"
Aug 31
2Dachshunds replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi Kathy:  my dr. didnt want to put me on finesteride because I am still perimenopausal, she didnt explain exactly, and I wasnt sure what to ask, but I assume it is because if there is a potential for pregnancy, they wont do it.  I do not…"
Aug 31
Kathy in Denver replied to 2Dachshunds's discussion Newly Diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I was diagnosed 2 years ago. I go to Dr Newman at UC Health in Denver. My condition has been inactive for over a year and a half. She has me taking Hydroxychloroquine and finastreide with no side affects. I also live a pretty clean…"
Aug 30
Meme left a comment for 2Dachshunds
"Hi thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care"
Aug 12
2Dachshunds and Meme are now friends
Aug 9

Profile Information

Relationship Status:
In a Relationship
About Me:
I was diagnosed with FFA a couple of months ago. I am looking for solutions since no one in Houston seems to have any.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 5:26pm on November 13, 2018, Dianna said…

I am so glad! It has been such an journey of experimentation and learning.

I would love to find something for the scarred over areas but so far I have not found anything to reverse that.

Dianna :)

At 3:56pm on August 12, 2018, Meme said…

Hi

thank you for your support. The wig is hot especially in this heatwave but in that case I just wear a baseball cap, I don't make eye contact with people so don't see if they stare. Take care

 
 
 

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