"Hi Lara. I apologize because i only saw your friend request just now. This forum is not the best and I never got or saw any messages in my email and I rarely come around here. When I do I never actually notice activity in my…"
"Hi Dragon & Fox,
your post was really informative! Since I suffer from both, alopecia areata and ffa, I am very interested into JAK-inhibitors like tofacitinib ('Jakafi') regarding their potential to maybe adress both diseases (Jak…"
"I called the office again and Pam said that the form was the usual procedure and that after my form has been revised they will contact me to make an appointment...she also said that the earliest available appointments will be in the fall, so I am…"
"Lilly and Incyte Announce Webcast to Discuss Baricitinib Phase III Data
By a News Reporter-Staff News Editor at Pharma Business Week Eli Lilly and Company (NYSE: LLY) and Incyte Corporation will host a webcast on June 11 to discuss…"
"Hummm, thanks a lot for replying, because this is weird indeed. When I phoned the office I was told to send an email to alopeciaareata@ yale (don't remember the address clearly). Anyway, I received an automatic reponse which contained a form…"
"Regarding treatment under the supervision of Dr King I have a few questions - I 'd be really grateful if someone could answer
-given that you now have to fill out a form before the office contacts you to make an appointment, I have no idea how…"
"@ DJ88 maybe you had this in mind: (starshine's post on an email exchange with dr king in january)
I was lucky to get a response from Dr. King regarding an inquiry as to the results of the initial trial for Xeljanz. I had spoken with him…"
I'm sorry for the late response but I was incredibly busy the last weeks. I am very happy to hear from you and can relate to your experience. Before this disease I never could have guessed what eyelashes mean to me ...
"Most market research articles indicate that baricitinib will be introduced to the market in 2023, if I'm correct (?), and filgotinib has only completed phase 2B
Their availability seems a pretty long way off, especially for people who do not…"
"To all Europeans who come to this discussion and are interested in Xeljanz: Are you interested in starting a discussion on this?
I don't know about the attitude dermatologists in your country express towards this treatment but in Germany they…"
"Thank you for your reply starshine!
Since I am not an American citizen, I do not have an American insurance anyway, and German insurances never pay off-label medications, so I am aware that the payment would be my own problem. As I am going to study…"
since I read that you have diffuse aa as well and took steroids in the past ,as a newly diagnosed (quite an odyssey to get the right diagnose if you have the diffuse pattern -.-) i would like to know what your opinion on oral steroids…"
Hi Lara. I apologize because i only saw your friend request just now. This forum is not the best and I never got or saw any messages in my email and I rarely come around here. When I do I never actually notice activity in my account, such as a friend request. :(
SO, did you ever go see Dr. Bordone? She has never mentioned JAK-inhibititors to me. Unfortunately, I have stomach issues and can't take ANY anti inflammatory meds which she has said works for many people. She put me on a lotion I make myself with the powder from the capsules of Tacrolimus, but that has NOT been working for me AT ALL! She's trying to get me off of the Clobetasol because I am experiencing skin Atrophy, but it is the ONLY thing that works for me. She told me to hang on they're coming up with "something". My hairline is increasingly decreasing. I have super thick nice hair other than that. But the chance for bangs is slowly becoming an issue and I'm feeling a bit panicked since the hairline is "scaly."
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