Ricky_1008
  • Male
  • Dar es salaam
  • Tanzania, United Republic Of
Share
  • Blog Posts
  • Discussions (52)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Ricky_1008's Friends

  • Meedo
  • Apple_eve
  • Ahmed
  • Brock
  • Nat
  • Newjack
  • Frida Rupert
  • singh
  • Anisha

Ricky_1008's Discussions

I CAN'T TELL WHERE THE JOURNEY WILL END, BUT I KNOW WHERE TO START - AVICCI

Started this discussion. Last reply by Alo-mom Jan 22. 1 Reply

As humans suffering from Alopecia we don't exactly live a normal life. Do we ? Some of us take it as a curse and most of us take it as a blessing but its a choice we make through our circumstance. We…Continue

Gifts Received

Gift

Ricky_1008 has not received any gifts yet

Give a Gift

 

Ricky_1008's Page

Latest Activity

Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hello Everyone , its been a while since i posted my update. i started my journey on the 5th October 2019 with tofacinix from beacon 15mg per day as per suggestion from Nicole. After a month i got paranoid for not seeing immediate results and so i…"
yesterday
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I honestly feel that too"
Jan 25
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"What's your country code ???"
Jan 25
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"What's your treatment?"
Jan 25
Alo-mom replied to Ricky_1008's discussion I CAN'T TELL WHERE THE JOURNEY WILL END, BUT I KNOW WHERE TO START - AVICCI
"Hello there, your write up was heart warming and true. Please let us know how this medication is working so far. Sending good thoughts your way and keep us posted. "
Jan 22
Anisha and Ricky_1008 are now friends
Jan 1
Anisha left a comment for Ricky_1008
"Hello, do you take tofacinix?"
Jan 1
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
Dec 25, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello I hope everyone is doing well! Recently I came across an article that weed ( cannabis) can help us in alopecia. i am still carrying out my research but would appreciate everyone's opinion here. Yes its safe to say now that i am a res…"
Dec 12, 2019
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"I ordered 30boxes , got my parcel through DHL in about 7days. They even sent me a tracking number .Snapchat-1266279217.jpg"
Dec 4, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes I’m sure your dermatologist can guide you in the right path but I can confirm that with prednisone you can get vellus hair. My task now is to built from here and make sure tofacinix can help my hair grow back . One I start seeing black…"
Nov 23, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s my 4th week I have it after eating breakfast in the morning . Like I mentioned I started with 60mg/ week protocol but now I’m on 30mg /1 week protocol . Yes I do have side effects . I have gained weight, I get hungry all the time.…"
Nov 23, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I don’t think there is a pill of 300mg of prednisone . It comes in 5mg "
Nov 23, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey man, just hold on. Trust me even after having vellus hair i still feel like i don't think i will respond but we have to be consistent with this medicine. i think in the long run it will work out. Just try predisone if you think the side…"
Nov 23, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"If it's Prednisone. Take all 60mg in the morning with food. Prednisone is causing insomnia so morning is the recommended time. Take 5mg of Tofa a few hours later. Then take 10mg of Tofa at night. I would recommend to take Prednisone as…"
Nov 23, 2019
Ricky_1008 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"i started tofacinix on 5th of October so its been around 7 weeks now. i plan to reduce predisone to 10mg after two weeks. then i will stop it for 3 weeks and then start again from 60mg 1 week protocol. (every week i will reduce it ) ."
Nov 23, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 11:12am on January 1, 2020, Anisha said…

Hello, do you take tofacinix?

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2020   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service