Carlie
  • Female
  • Newcastle, CA
  • United States
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Carlie's Discussions

Latest on LDN? Any new users?

Started Oct 18, 2017 0 Replies

I have had Alopecia Totalis for a year. I started LDN about 45 days ago and I'm pleased to say that I have little vellus hairs all over my head. I'm also using minoxidil 7% with a steroid topically…Continue

The continuous search for help.....

Started this discussion. Last reply by Carlie Sep 25, 2017. 3 Replies

Hello everyone,I have been reading your posts for over a year now and finally decided to join in. I am 66 and last year I lost all of my hair, out of the blue, over a period of 1 week. I have a close…Continue

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Latest Activity

Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have tried everything to get hold of Mouree, including the quick order and no response. Does anyone have another contact at Beacon?"
Jan 6
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No it was 300mg at one time. 6, 50mg pills. Once a month for 3 months."
Sep 14, 2020
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"When I asked my doctor to kick start the Xeljanz with prednisone she followed Dr. Kings protocol of 300 mg once a month for 3 months. My weight was 112 lbs. My hair took off and I felt no side affects."
Sep 14, 2020
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat, I would panic and ask my derm to give me a shot of kenolog immediately, followed by some prednisone pills. It's taken almost 2 years to grow my almost shoulder length locks back, and I will do anything not to have to start over. I would…"
Sep 13, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Hi Bibby, how did you make your payment to Abdullah and what brand did you get from him? It sounded like all he could get was the 10 pill boxes, is that correct?"
Aug 12, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Awesome news, was that through Mouree?"
Aug 12, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"I like the details, he sort of dropped off when I suggested I wire the funds instead of Western Union. It doesn't cost me anything to wire but Western Union is expensive."
Aug 12, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Hi Tori, I have been trying to reach Mouree for literally months and have not had so much as a hi. So you might have to pay more with Ujwala but he gets the job done quickly and I like his product better. It's not 5 time more, it's 3 times…"
Aug 12, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"She never responds to my emails."
Aug 11, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Here's the email thread with the number for Costco at the bottom:"
Jul 27, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Anna, I have friends that live in Canada and when I was having a hard time getting my meds for a decent price, I checked with Costco in BC. I couldn't believe the price was so cheap! But I'm sure you need a prescription. I was a landed…"
Jul 27, 2020
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, but I would keep a back up source as they can cancel at any time."
Jul 20, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"I did."
Jul 18, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"I will probably place an order with Zubaidul, who is on here. I like having several sources."
Jul 18, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"Thank you Zubaidul.  What is the brand and what is the cost?"
Jul 18, 2020
Carlie replied to NicoleT's discussion Xeljanz from India
"I've emailed Mouree at least 20 times, absolutely no response! I need another Beacon contact."
Jul 17, 2020

Profile Information

Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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