Carlie
  • Female
  • Newcastle, CA
  • United States
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Carlie's Discussions

Latest on LDN? Any new users?

Started Oct 18, 2017 0 Replies

I have had Alopecia Totalis for a year. I started LDN about 45 days ago and I'm pleased to say that I have little vellus hairs all over my head. I'm also using minoxidil 7% with a steroid topically…Continue

The continuous search for help.....

Started this discussion. Last reply by Carlie Sep 25, 2017. 3 Replies

Hello everyone,I have been reading your posts for over a year now and finally decided to join in. I am 66 and last year I lost all of my hair, out of the blue, over a period of 1 week. I have a close…Continue

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Carlie's Page

Latest Activity

Carlie replied to NicoleT's discussion Xeljanz from India
"I'm in California and I've never been able to use transfer wise, for over 2 years now I transfer from my bank."
Feb 12, 2022
Carlie replied to NicoleT's discussion Xeljanz from India
"That's a great head of hair!"
Jan 5, 2022
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I live in California, I received my EMS, Beacon order in 10 days and my DHL order from my other source came exactly the same day, a Monday. The DHL was mailed a couple of days before the Beacon EMs order."
Oct 16, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Just to let everyone, both of my shipments have made it through customs in record time. If the tracking information is correct, the EMS order and DHL should arrive tomorrow. "
Oct 11, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Order is arriving tomorrow, DHL tracking. It took 10 days."
Oct 11, 2021
Carlie replied to NicoleT's discussion Xeljanz from India
"Hi Tiffany, just wondering if your order made it through. I just placed an order, I live in California."
Oct 10, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes"
Oct 10, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I've made to orders to India for my tofib. One from Beacon who just sent me the EMS tracking information. The second order from another source sent me tracking info from DHL. I paid my private source through PayPal so the order was processed…"
Oct 5, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is the rep that I use, mouree@beaconmedicare.com.bd. The cost per box of 30 tablets is 15.00, "
Oct 3, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have two sources, one is a bit more expensive than Beacon but very reliable so I order from both. I usually order enough for at least 6 months but if I receive these orders alright I will order again right away. it seems like big Pharma wants…"
Oct 3, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I just placed an order through Beacon, I'm in California. My last order was in Feb. it arrived fairly quickly. Where are you located?"
Sep 28, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Maybe a Prednisone push would help."
Sep 2, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have tried everything to get hold of Mouree, including the quick order and no response. Does anyone have another contact at Beacon?"
Jan 6, 2021
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No it was 300mg at one time. 6, 50mg pills. Once a month for 3 months."
Sep 14, 2020
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"When I asked my doctor to kick start the Xeljanz with prednisone she followed Dr. Kings protocol of 300 mg once a month for 3 months. My weight was 112 lbs. My hair took off and I felt no side affects."
Sep 14, 2020
Carlie replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat, I would panic and ask my derm to give me a shot of kenolog immediately, followed by some prednisone pills. It's taken almost 2 years to grow my almost shoulder length locks back, and I will do anything not to have to start over. I would…"
Sep 13, 2020

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Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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