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susan williams's Discussions

sentoo wigs

Started this discussion. Last reply by Rose Marie' Jan 19, 2011. 1 Reply

hi all, looking for advice as i have had conflicting information on my sentoo wig.....as it is so light but looks heavy i would like it thinned and due to see a lady on friday...but have been told…Continue

Not coping...thought I was :(

Started this discussion. Last reply by susan williams Dec 28, 2010. 18 Replies

hello all, hoping for some inspiration here.........been losing my hair since my birthday(oct 13th) due to work stress and bullying by manager!!!!!been on sick for 2 months but i need to go back…Continue

Sharp hair

Started this discussion. Last reply by susan williams Dec 7, 2010. 4 Replies

hello all, hope someone can give me so info on this strange alopecia i haveit all started on my birthday (13th oct 2010) daughter found a small patch on crown, it is now the size of my hand, general…Continue

 

susan williams's Page

Latest Activity

susan williams commented on susan williams's blog post couvre...mane....toppik
"can anyone helpme on this please? x"
Jun 11, 2011
susan williams posted a blog post

couvre...mane....toppik

hi all, started posting here late last year and received so much advice and support from you all, thought i would just do a recap and ask for a little more advice:)i have AA and have a few small spots and and a major size of the hand job......gave up using dermovate just too greasy...... finding now i have regrowth...woohoooooooo white but hair:)could not stand wigs so been wearing bandags, scarves etc.....do the job but now i am at the stage that they drive me nuts too!!!the crown hair is…See More
Jun 4, 2011
susan williams commented on susan williams's blog post Alone on this journey and need to vent
"hi all just a follow up and also more advice needed...what's new lol i am now on the waiting list for a total hip replacement should be done within six months so they say, not looking forward to it but pain is so bad now i am on sick yet…"
Jun 3, 2011
susan williams joined Alopecia World's group
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Alopecia Areata

Join today to meet, support and share information and resources with others who are also living with patchy hair loss.
Jun 3, 2011
susan williams posted a blog post

Sorry all!

I really don't know what is going on here, i have replied to all who have emailed me, it says message sent but when i check back i cannot see the reply????just a small update, so far i have white regrowth in the main patch which is large, bitty but hey, it's hair, not going to get too excited as i know i could lose it again......we will see !!! watch this space lol xSee More
May 12, 2011
susan williams commented on Lisa-Lynn Marini's blog post Excited - I have to share
"hair or no hair the person underneath counts and so glad you are enjoying being 'you' forget the other people just do what you feel is right for you :)"
Apr 2, 2011
susan williams favorited Lisa-Lynn Marini's blog post Excited - I have to share
Apr 2, 2011
susan williams commented on Hannah Dennis's video
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My alopecia journey

"you look stunning, with or without, a true inspiration .... you have taught this old girl a lesson :) xx"
Apr 2, 2011
Norm commented on susan williams's blog post Alone on this journey and need to vent
"Hey Sooz - great that you did the deed! Was there ever really any doubt it'd be anything but fab? But what's this about a hip replacement? Are you sure you're not getting confused with "being hip", now the mojo's doing…"
Feb 18, 2011
susan williams commented on susan williams's blog post Alone on this journey and need to vent
"well i did it!!!!! 3 airports, 2 flights in 1 day, alone, just had to prove to me i could do it...wow and so glad i did :) met some lovely people from all over, america, india, indonesia, chzech republic etc etc....spoilt rotten, fab food and…"
Feb 17, 2011
susan williams and alice are now friends
Feb 6, 2011
susan williams commented on susan williams's blog post Alone on this journey and need to vent
"hi all just an update and more questions lol i can feel hair is sprouting where the original patch was, can't see it but daughter says it is white, while that is trying to come back it is getting less everywhere else why? is it a trick or for…"
Feb 6, 2011
susan williams replied to Sally's discussion Work friends and the awkward truth
"i have returned to work part time this week after 3 months on the sick with a nervous breakdown, work changes and bullying by boss made my hair fall out.....i had to go back to work, what i did was have some pictures taken on my phone of the back of…"
Jan 27, 2011
susan williams replied to Aimee's discussion Iron injections?
"lol Norm...where do you get the jokes from.... :)"
Jan 22, 2011
susan williams replied to Angie's discussion Let's all take the pledge
"lmao...you nutter ;) x"
Jan 19, 2011
susan williams replied to Angie's discussion Let's all take the pledge
"thanks hun i keep missing you, on UK time here and never on in the day....we need to get it sorted :)"
Jan 18, 2011

Profile Information

Relationship Status:
Single
About Me:
new to alopecia (oct 13th 2010, my birthday and what a present)
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Susan williams's Blog

couvre...mane....toppik

Posted on June 4, 2011 at 11:13pm 1 Comment

hi all, started posting here late last year and received so much advice and support from you all, thought i would just do a recap and ask for a little more advice:)



i have AA and have a few small spots and and a major size of the hand job......gave up using dermovate just too greasy...... finding now i have regrowth...woohoooooooo white but hair:)



could not stand wigs so been wearing bandags, scarves etc.....do the job but now i am at the stage that they drive me nuts… Continue

Sorry all!

Posted on May 12, 2011 at 8:30pm 0 Comments

I really don't know what is going on here, i have replied to all who have emailed me, it says message sent but when i check back i cannot see the reply????

just a small update, so far i have white regrowth in the main patch which is large, bitty but hey, it's hair, not going to get too excited as i know i could lose it again......we will see !!! watch this space lol x

Alone on this journey and need to vent

Posted on January 15, 2011 at 9:04pm 38 Comments

well i have tried and thought i was doing ok.....the nervous breakdown i had from bullying at work i thought i was getting over it but it seems not, the last 2 days i am back to square one :(



lack of hair is really getting to me as no matter what i put on my head irritates, gives me headaches, will try shaving what is left off if that don't work will just give up..hope the guy responsible will feel the guilt for a very long time........sorry just need to vent



i am supposed… Continue

Comment Wall (8 comments)

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At 8:56pm on January 17, 2011, Mary gave susan williams a gift
Gift
Thanks, Susan!
At 11:01pm on January 16, 2011, Angie gave susan williams a gift
Gift
I got your message and I agree. Keep in touch. Let me know what is going on, I'll do the same.
At 8:13pm on December 28, 2010, Norm said…
Hiya Soo, thanks for the Pal Add.... and the lovely comments! I see you've discovered those tube thingies that they sell in biker shops - great to know you can make them work for you! Now you've no excuse for not getting out and about round Cardiff (sorry, CAERDYDD) on NYE and sinking a few beers... have one or two for me! Glug, glug, etc. :)
At 9:47pm on December 18, 2010, Larry Barbee gave susan williams a gift
Gift
Thank you for your gift.
At 11:23pm on December 2, 2010, LeslieAnn Butler said…
I'm so sorry you are having a bad day. Please let me know what I can do to help. I have had this for 30 years and even wrote a book about it so I could help as many women as possible. I am here to talk, listen or give advice. I care...
At 1:02pm on December 2, 2010, LeslieAnn Butler said…
Hello and welcome, Susan!
How are you today?
Leslie Ann
At 1:39am on November 29, 2010, JeffreySF said…
Hi Susan,
Hope you are enjoying Alopecia World. Let all the sparkling lights and bells embrace you!
Hugz!
Jeffrey
At 9:51pm on November 28, 2010, JeffreySF said…
Hi Susan,
It's Jeff from the AASC.
Welcome to Alopecia World.
Jeffrey
 
 
 
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