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Susan - Jon's Mum left a comment for petula hudson"Hi Petula
It seems to be a common that Alopecia sufferers feel like they are freaks because they have no or less hair. When I look at the photos of the members on the AW homepage, I smile because most of them look like they are enjoying life at that…"
petula hudson commented on Alopecia World's group Alopecia Areata"mine started AA 10 years ago, then what bit i had left i shaved,then AU it did grow about 3years later,i think the longest i have been with no patches was about a year,then the AA started again.i get my good days like anybody else,but do think i…"
petula hudson commented on Alopecia World's group Alopecia Areata"i agree ray,i am seriously thinking of shaving it all off.its the not knowing of when the next patch is going too visit"
petula hudson left a comment for Susan - Jon's Mum"hi susan
you'd think being as old as i am,and having itfor so long,it would get better,in alot of ways i am similar to jon,i isolate myself,wont answer the phone or the door.in alot of ways from what i have read children seem too cope better in…"
Susan - Jon's Mum left a comment for petula hudson"Sorry to hear that today is not a good day.
I sincerely hope that your day gets better and that tomorrow is a good one for you.
It is amazing the number of people that suffer from Alopecia. And everyone copes in different ways. I find reading the…"
petula hudson commented on Alopecia World's group Alopecia Areata"people say they know how your feeling,but how can they,when they have never had too expieiance what you go through"
petula hudson commented on Alopecia World's group Alopecia Areata"i coped better when i lost all my hair,its not knowing when its going too happen again then gets me down.i did so well i had no patches for a good year,now they have started again."
petula hudson left a comment for Susan - Jon's Mum"hi susan
i didnt realise there was so many sufferers,it's nice too know we're not alone.today's not a good day.how are you and jon?"
Susan - Jon's Mum left a comment for petula hudson"Hi Petula
Welcome to AW
Glad that you have joined
How are you?"
petula hudson joined Alopecia World's group
Alopecia Areata
Join today to meet, support and share information and resources with others who are also living with patchy hair loss.
"Thanks, Petula -- I am doing fine! Very busy painting and loving the fact that so many women are being helped by my book.
Hugs!"
"Hello and welcome, Petula!
How are you doing today? Let me know if I can help.
LeslieAnn"
Profile Information
- Relationship Status:
- Engaged
- About Me:
- i have sufferered with alopecia for about 10 years,i have a very supportive partner and family,but would be nice too talk too other fellow suffers
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (5 comments)
- At 11:49pm on October 25, 2009, Susan - Jon's Mum said…
- Hi Petula
It seems to be a common that Alopecia sufferers feel like they are freaks because they have no or less hair. When I look at the photos of the members on the AW homepage, I smile because most of them look like they are enjoying life at that time. To me they don't look freakish, they look beautiful. Beautiful eyes and beautiful smiles. I bet you are beautiful as well. Think of yourself as beautiful - look in the mirror and tell yourself you are beautiful.
To me you can find something lovable in most people - you just have to look.
As far as Jon goes - he hasn't talked to anyone on this site - i wish he would. He might not feel so alone then. He knows that I talk to people on here - hopefully this will help him join in at some point.
And as far as your moaning - isn't that why this site is here?
- At 6:28am on October 23, 2009, Susan - Jon's Mum said…
- Sorry to hear that today is not a good day.
I sincerely hope that your day gets better and that tomorrow is a good one for you.
It is amazing the number of people that suffer from Alopecia. And everyone copes in different ways. I find reading the discussions and blogs helpful.
I am a bit down myself. Jon has not gone to school for 12 weeks now and i am worried that he may not go back. He won't talk about what is really worrying him, other than he is uncomfortable about being bald - he hates it. He has isolated himself which is not good. I wish he would interact with others on this site. Talking is very important to help you cope.
I found a new saying today - i keep saying it to myself - BE- DO- THINK- POSITIVE
Praying you have a better day....
- At 7:00am on October 22, 2009, Susan - Jon's Mum said…
- Hi Petula
Welcome to AW
Glad that you have joined
How are you?
- At 6:18pm on October 21, 2009,
LeslieAnn Butler said…
- Thanks, Petula -- I am doing fine! Very busy painting and loving the fact that so many women are being helped by my book.
Hugs!
- At 5:37pm on October 21, 2009,
- Hello and welcome, Petula!
How are you doing today? Let me know if I can help.
LeslieAnn
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