"Bonjour,
Je trouve cette situation inadmissible, présenter une émission télé sans connaître la maladie en elle même c'est un manque de respect pour les malades et surtout une incompétence…"
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coccinelle replied to Jen's discussion I need someone who knows what I'm going through/been through"I understand you, I life the same thing(matter), I stay at home and I find nobody to speak or to understand(include) that I life in the quotidient and especially which I do not support(bear) to see myself in the ice(mirror). Then I asked of the…"
coccinelle left a comment for alopeciachangedmylife"Courage, I have even ideas, the same reactions, face to face people, I stay at home, but in a few months I am going to have to turn(return) to work, because I do not have money(silver) anymore, and there, I am going to be even more bad, but how can…"
coccinelle posted a blog postThe morale is not any more there
Today I am bad, both months, a new disease adds in the others, since June it is a sarcoidose and the syndrome of laufgren I have not realized my alopecia, then the other disease yet moreover, I cannot it any more, my morale is in zero, I find help(assistant) or nobody who is in the same situation as me how make you? To have the air(sight) so happy in spite of the disease:-(
Cheryl, Co-founder commented on coccinelle's blog post always also difficult to live"Yes, alopecia is hard. Sometimes we have to pretend our way to where we want to be.
"Ne laissez pas les voir vous transpirez"
Not sure if that translates perfectly. But I think you understand what I am saying.
We need to continue walk…"
Cheryl, Co-founder left a comment for coccinelle"Bonjout Coccinelle, (excuse my french ;), Il ya aussi une group Francais, sur Alopecia World."
coccinelle posted a blog postalways also difficult to live
in spite of time, I do not arrive at living with l' olopécie… the glance of people… the glance in the ice… that is too difficult… I am not me… with when the miracle… I want to retrogress, to even find me… soon I will have to turn over to work or to find another employment and I cannot plan to be surrounded like an animal, of malevolent glance… I work with the public, commen to make not to undergo this situation, to manage to look at people without seeing surprise or pity?
coccinelle posted a blog postNews
Hello to all, last news:c'est is a disaster, after the fibromyalgia, the disease of bottom dow, the universal alopecia, the prediabetes and a goitre, I have been supposed to be 3 weeks at the hospital for a sarcoïdose I'm fed up I cannot it any more and then I suffer, so physically as morally diseases after which the medicine does not know how to look where the search does not make any progrée. but why I?
Profile Information
- Relationship Status:
- Married
- About Me:
- Total alopecie
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Coccinelle's Blog
The morale is not any more there
Posted on September 22, 2011 at 8:16am 0 Comments 0 Favorites
Today I am bad, both months, a new disease adds in the others, since June it is a sarcoidose and the syndrome of laufgren I have not realized my alopecia, then the other disease yet moreover, I cannot it any more, my morale is in zero, I find help(assistant) or nobody who is in the same situation as me how make you? To have the air(sight) so happy in spite of the disease:-(
always also difficult to live
Posted on July 23, 2011 at 10:37am 1 Comment 0 Favorites
in spite of time, I do not arrive at living with l' olopécie… the glance of people… the glance in the ice… that is too difficult… I am not me… with when the miracle… I want to retrogress, to even find me… soon I will have to turn over to work or to find another employment and I cannot plan to be surrounded like an animal, of malevolent glance… I work with the public, commen to make not to undergo this situation, to manage to look at people without seeing surprise or pity?
News
Posted on July 5, 2011 at 4:57am 0 Comments 0 Favorites
Hello to all, last news:c'est is a disaster, after the fibromyalgia, the disease of bottom dow, the universal alopecia, the prediabetes and a goitre, I have been supposed to be 3 weeks at the hospital for a sarcoïdose I'm fed up I cannot it any more and then I suffer, so physically as morally diseases after which the medicine does not know how to look where the search does not make any progrée. but why I?
Need of help and support
Posted on May 16, 2011 at 5:29pm 5 Comments 0 Favorites
Hello,
And please excuse me for my English
Need of help and support
In France I do not find a doctor or a treatment
I have just read your messages, I can announce you my situation which looks like your problems, > > > in a sense(direction) different, > > > with much more pathology.
I am always in search of a solution,
I ruin myself in doctor, medicine
And most of the answers are " I can nothing for you "
And hooo! I am… Continue
And please excuse me for my English
Need of help and support
In France I do not find a doctor or a treatment
I have just read your messages, I can announce you my situation which looks like your problems, > > > in a sense(direction) different, > > > with much more pathology.
I am always in search of a solution,
I ruin myself in doctor, medicine
And most of the answers are " I can nothing for you "
And hooo! I am… Continue
Comment Wall (5 comments)
- At 5:09am on July 26, 2011, Cheryl, Co-founder said…
- Bonjout Coccinelle, (excuse my french ;), Il ya aussi une group Francais, sur Alopecia World.
- At 5:06am on July 26, 2011, Cheryl, Co-founder said…
- At 5:15pm on May 24, 2011,
LeslieAnn Butler said…
- Hello and welcome!
How are you today? Let me know if I can help.
Leslie Ann
- At 6:23am on May 18, 2011,
kastababy said… - Je voulais vous souhaiter la bienvenue à l'alopécie mondiale. Je peux honnêtement dire que nous sommes une grande communauté ici et j'espère que vous apprécierez le temps que vous passez avec nous!
YoKasta
- At 1:25am on May 16, 2011, Cheryl, Co-founder said…
- Hi Coccinelle, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Cheryl, co-founder
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