"I love reading the comments, I do wear wigs in public but at home I am mostly always bald. I have had many people when I go to the beach and wear just a ball cap stop me and say things like, "I know what you are going through", assuming I…"
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Susan VanOrder
- Female
- Montgomery, PA
- United States
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Susan VanOrder commented on Mary's blog post A nice experience at the gym - Rock the bald look, get jewelry from strangersSusan VanOrder left a comment for julie"Julie,
I have read some of the other posts that you have written and received. First of all, I see that you are from Charlotte, NC. I lived there for 1 1/2 years and it is a very beautiful city with a lot of opportunity and great people. After…"
"do you know much about female pattern thats what i have and even if i'm not bald i have taken it as such.. i cant help it as it just doesnt lay right and is hard to explain... you are so pretty.. and i've had 2 breakdowns already and lost…"
Susan VanOrder commented on rj, Co-founder's video
Alopecia on Irish Morning Show - Liz Shiel
"I also had the injections and found it excruciating. I had them approximately 25 years ago and thought they may have improved the process. I also agree that the loss of the eyebrows and eyelashes are the hardest, not only for practical purposes but…"
"Hey! That is so exciting about your business. I wish you were closer so I could come to your grand opening!
Can't wait to see the photo of you in your wig(s).
I'm thrilled that you are buying my book! I think you, your daughter and your…"
Susan VanOrder left a comment for LeslieAnn Butler"I am well, actually things are looking up for the fist time in awhile. I am just setting up a boutique to sell wigs, scarves, hats, etc. I have a very good friend who also has alopecia that owns a wig store and she is expanding. I had not seen her…"
"Hello and welcome, Susan!
How are you doing today?
LeslieAnn"
Susan VanOrder replied to Per Kjellqvist's discussion Hairdressers"I have gone to a lot of hairdressers in the last 26 years who, first did not know I was wearing a wig, and second were afraid to cut my hair for fear of showing the bald spots that I was sporting at the time. I ran across a lot of hairdressers that…"
Tracy and Amanda left a comment for Susan VanOrder"Welcome Susan,
Your story sounds like how my daughter got diagnosed with her alopecia. This is a great site to meet others with alopecia and know you are not alone. I hope to be chatting with u soon.
Tracy"
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- I am a single mother of a 17 year old daughter. I have suffered from alopecia areata for the last 26 years. Mine started out as two quarter size spots on the back of my head, then they grew very large. I had the injections, the creams, etc., nothing helped. Yes, my hair did grow back but it kept falling out is different spots. Finally, some of it just stopped coming back. I have been wearing wigs very successfully for quite a few years and I actually shave the hair that I do have off to stay cool.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (5 comments)
- At 3:41pm on September 19, 2009,
julie said…
- do you know much about female pattern thats what i have and even if i'm not bald i have taken it as such.. i cant help it as it just doesnt lay right and is hard to explain... you are so pretty.. and i've had 2 breakdowns already and lost my job from it.. and i am having a hard time with it, plus living down the things i had happen to me... what should i do..... i just look in the mirror and wish i were dead.
- At 11:37am on June 20, 2009,
LeslieAnn Butler said…
- Hey! That is so exciting about your business. I wish you were closer so I could come to your grand opening!
Can't wait to see the photo of you in your wig(s).
I'm thrilled that you are buying my book! I think you, your daughter and your sister will enjoy it! Please let me know!
LeslieAnn
- At 7:18pm on June 19, 2009,
- Hello and welcome, Susan!
How are you doing today?
LeslieAnn
- At 11:42pm on June 16, 2009,
Linda said… - Hi Susan, welcome to alopeciworld, I've had alopecia since I was about 8 years old, nothing helped me either, but it's all good, I shaved my head and I love it!
- At 5:08pm on June 16, 2009, Tracy and Amanda said…
- Welcome Susan,
Your story sounds like how my daughter got diagnosed with her alopecia. This is a great site to meet others with alopecia and know you are not alone. I hope to be chatting with u soon.
Tracy
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