Susan S
  • Female
  • West New York, NJ
  • United States
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Susan S's Discussions

She says there's a cure

Started this discussion. Last reply by Gloria S. Mar 7, 2012. 13 Replies

I found this on an Alopecia Q & A in the NYTimes, just wondering if any of you have heard of it or tried it. Thanks, Susan…Continue

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Susan S replied to Snowflake's discussion Hello.....I'm new..and new to talking about all of this...not coping
"I haven't been on this site for a few years but it is time again. My hair has come and partially gone 3 times in the ten years since diagnosis. It doesn't get any easier. I am a grandma with other health issues, but this is the thing I…"
May 21, 2013

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Relationship Status:
Married
About Me:
I'm a 62 year old woman who, since my alopecia areata got out of control this month, is acting like a 2 year old... I can't stop crying, I don't know what to do first, who I can talk to, who knows what I'm going through. Friends think I have a fatal disease I'm so upset... I know this won't kill me but I feel I might just die of embarrassment. This website seems like a great place to start.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (8 comments)

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At 9:57am on December 25, 2009, Lois said…
Susan, thanks for your nice note..yes, I've got regrowth happening where I thought hair normally (for me) just didn't grow, lol. Strange alopecia ~ it has a mind all its own.
.pax.
At 4:57pm on December 23, 2009, Lois said…
Hi Susan! How are you? Haven't heard from you and hoping you've turned the corner psychologically speaking and have found a healthy way to kick alopecia's ass and let life tumble along as you kick your heels, lol. Merry Christ*mas and hope your new year starts out better..take care.
pax.
At 1:30pm on November 12, 2009, Husband of woman with Alopecia said…
Thank you Susan, the link you gave was very helpful!
At 3:06pm on September 24, 2009, LeslieAnn Butler said…
Hello and welcome, Susan,
I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com. Let me know if there's anything else I can do! I am here to help.
LeslieAnn
At 7:41pm on September 21, 2009, Ben Lainhart said…
HI Susan! Welcome to Alopecia World!
At 11:21am on September 21, 2009, Lois said…
Hi Susan,,, glad we could chat today..you are in my prayerz and hope you find moments of peace and clarity to help you through these troubling days. Your wee grand-daughter will be so accepting of you - don't worry about that! She's head-over-heels-in-love with you already! Do something fun today and relax.
pax.
At 11:57am on September 18, 2009, Cheryl, Co-founder said…
Hi Susan, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 5:38pm on September 15, 2009, Roger said…
Welcome.

Roger.
 
 
 

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