Susan S
  • Female
  • West New York, NJ
  • United States

Susan S's Friends

  • Hope2012
  • Donna S
  • hannah sophia holland
  • Eve
  • claudine

Susan S's Discussions

She says there's a cure

Started this discussion. Last reply by Gloria S. Mar 7, 2012. 13 Replies

I found this on an Alopecia Q & A in the NYTimes, just wondering if any of you have heard of it or tried it. Thanks, Susan…Continue

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Latest Activity

Susan S commented on Dark Wolf's blog post Trauma related hair loss
"I too am in my 60s and have had AA for 15 years. Bald spots have come and gone. This winter I was very sick, in the hospital for a month and finally had major surgery. A month later my hair is falling out by the handfull. Not in spots, all over. My…"
May 5, 2015
Susan S left a comment for Hope2012
"Hello Hope, I just got your email asking about my son but I'm afraid you have the wrong person... my son does not have alopecia areata, it is me. I've had a few bouts where I lost much of my hair but it grew back each time, and I've…"
Jan 7, 2013
Susan S and Hope2012 are now friends
Jan 7, 2013
itsmeehtalia replied to Susan S's discussion She says there's a cure
"Hi, I've been on it since Sept last year. I'm so glad to hear your daughter is having growth. I too am having growth, it is scarce, and has been showing growth. It takes time, patience, and a good attitude. The consistency is important.…"
Mar 7, 2012
Gloria S. replied to Susan S's discussion She says there's a cure
"itsmeehtalia, how long ago did you start to you dncb and when did it start to work for you? My daughter has been on it since April and showing growth."
Mar 7, 2012
itsmeehtalia replied to Susan S's discussion She says there's a cure
"I know this post was a year ago, but here is my feedback. I lost all my hair shortly after giving birth and saw dr Strick about it. Since then I regret the peach fuzz on my face and have been having hair growth sporadically. Slowly but surely. The…"
Mar 7, 2012
Susan S commented on Karli R.'s blog post Steroid injection side-effects? And other questions!
"I've had 3 "outbreaks" of AA and had injections all 3 times. I did not notice any side affects from the shots, and right now I've had 2 years of "normal" hair on my head:). That being said, I believe that shots or not,…"
Nov 8, 2011
Susan S left a comment for Donna S
"Hello Donna, I'm so sorry but I can't help you. The note I posted about this was not FROM me, it was from another website that someone else wrote, I was just asking the question about the treatment, which I had not heard of. Good luck."
Aug 31, 2011
Susan S and Donna S are now friends
Aug 31, 2011
Gloria S. replied to Susan S's discussion She says there's a cure
"DCP is a different agent from DNCB. I'm pretty sure it is used once a week, maybe twice, hence the strength of DCP is suppose to make a very itchy and scaly scalp. DNCB is tolerable."
Apr 21, 2011
mouna replied to Susan S's discussion She says there's a cure
"To me this sounds like DCP i've tried that years ago and the hair began to grow but you always have to use a higher medication because the skin gets used to it. So i was on the highest medication and the hair began to fall out again. Plus there…"
Apr 21, 2011
Gloria S. replied to Susan S's discussion She says there's a cure
"We are seeing Dr. Strick now. The cream he uses does not cause blisters. It is applied every day with a low dose your body can handle so it does not itch or cause any blisters. He has helped over 5,000 patients and is very knowledgeable of Alopecia…"
Apr 21, 2011
Angie P replied to Susan S's discussion She says there's a cure
"Never heard of it, but just now googled it. Lots of articles, but I only had time to skim. And, the Lancet appears to want money. :) Personally, I can't see myself adding such a toxin to my system just for my hair. Not to mention the…"
Feb 14, 2011
Angie replied to Susan S's discussion She says there's a cure
"Sorry Susan, Ya we misread. I posted some information about this medication.I hope that will help. Did you read about the blisters. This might not be to good. Stay tune."
Feb 12, 2011
Susan S replied to Susan S's discussion She says there's a cure
"no, you misread my post.... I did not post this NYTimes comment, I read it, and am trying to find out if anyone knows anything about it."
Feb 12, 2011
Angie replied to Susan S's discussion She says there's a cure
"I'm happy that this is working for your son. I researched some information about DNCB. Please see attach website."
Feb 12, 2011

Profile Information

Relationship Status:
About Me:
I'm a 62 year old woman who, since my alopecia areata got out of control this month, is acting like a 2 year old... I can't stop crying, I don't know what to do first, who I can talk to, who knows what I'm going through. Friends think I have a fatal disease I'm so upset... I know this won't kill me but I feel I might just die of embarrassment. This website seems like a great place to start.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 1:30pm on November 12, 2009, Husband of woman with Alopecia said…
Thank you Susan, the link you gave was very helpful!
At 3:06pm on September 24, 2009, LeslieAnn Butler said…
Hello and welcome, Susan,
I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Let me know if there's anything else I can do! I am here to help.
At 7:41pm on September 21, 2009, Ben Lainhart said…
HI Susan! Welcome to Alopecia World!
At 11:57am on September 18, 2009, Cheryl, Co-founder said…
Hi Susan, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

At 5:38pm on September 15, 2009, Roger said…





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