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claudine's Discussions

Sore one day, fine the next

Started this discussion. Last reply by Karen Oct 6, 2009. 4 Replies

deity hair products

Started this discussion. Last reply by JeffreySF May 27, 2009. 2 Replies

cortisone shots

Started this discussion. Last reply by Tnabugg Mar 25, 2009. 3 Replies

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claudine's Page

Latest Activity

claudine replied to Bel's discussion Alopecia and teeth
"yes. there have been documented cases where tooth infections have caused alopecia episodes."
Nov 29, 2009
claudine commented on Carol Yuen's blog post 4 1/2 months since i noticed regrowth
"congrats carol. keep thinking positive! your hair looks great."
Nov 2, 2009
claudine commented on Christine Messner's blog post Kyler's treatment...
"yay! so happy for you and kyler. he is sooo cute... hair or no hair. xo"
Nov 2, 2009
claudine commented on eva's blog post "Fight or Flight" - lose your hair?
"when i get stressed or upset or angry, i actually feel my head (especially my patches) start to tingle. i'm convinced that emotional duress makes it worse."
Oct 24, 2009
Lee left a comment for claudine
"Hi Claudine, I agree that most doctors dont know much about alopecia..but I also think that they use that as an excuse...are they really trying to learn about it? There HAS to be treatments that work...and a cure...somewhere, but no one has found…"
Oct 16, 2009
Susanna Dahlstrom left a comment for claudine
"Hi again! I didn´t loose all my hair either. But I got so angry with my hair falling off so I shaved i dec. "Try falling out now", I thought, hehe... Now, when its growing back I feel that the new hair is much lighter and much…"
Oct 14, 2009
JeffreySF left a comment for claudine
"Hi Claudine, Glad I could put a smile on your face. Where do you live? Jeffrey"
Oct 14, 2009
claudine left a comment for Susanna Dahlstrom
"Hi Susanna! Well, I've never had the white fuzzy hair that you mention, but i've never been totally without hair either. My patches are large but not totally smooth. I started getting a lot of gray hair when I was young... something I…"
Oct 13, 2009
claudine left a comment for Karen
"hey karen - thanks for writing. how are you doing? still on the fence about the head shave? at this point, i have a decent amount of hair left, but who knows about tomorrow? it's definitely something i have thought about... if the time comes,…"
Oct 13, 2009
claudine commented on Kelly's blog post Ten Things I Love/Hate About AA
"that was great! love it."
Oct 13, 2009
claudine left a comment for JeffreySF
"Hi Jeff - thanks for the laugh. every time i hear the pussycat dolls from now on i'm going to think of you. hope alls well."
Oct 13, 2009
claudine and JeffreySF are now friends
Oct 13, 2009
Susanna Dahlstrom left a comment for claudine
"Hi! Thanks for writing. I know exactly how you feel. I had the thickest hair in town before all this started. But one thing I have to ask you. Have you been without hair at all?? Because I had this white fuzz all over my scalp from the very…"
Oct 13, 2009
Karen left a comment for claudine
"My pleasure, Claudine! I'm still getting injections, only going on the 4th round. And just like your post, I have some stubble but the patches are getting bigger and the spots that they miss are bald. I'm still shedding but not as bad.…"
Oct 13, 2009
Karen and claudine are now friends
Oct 13, 2009
JeffreySF commented on claudine's blog post what hasn't worked and what has
"Hi Claudine, I remember reading this post and apparently didn't leave a comment before.... Anyway, so whats happening now? Jeffrey"
Oct 12, 2009

Profile Information

Relationship Status:
In a Relationship
About Me:
Diagnosed with alopecia areata last August.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Claudine's Blog

what hasn't worked and what has

Posted on May 11, 2009 at 7:41pm 5 Comments

after a particularly devastating and painful period of my life, i was diagnosed with alopecia areata - almost a year ago. at the time of diagnosis, i only had two small quarter size patches. i immediately began getting injections, and continued to do so until two months ago. although i was confident in the course of treatment, i found that the injections did not seem to help me. altho some hair would grow in the center, the spots were still growing larger. and others one would start forming… Continue

Comment Wall (7 comments)

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At 5:50pm on October 16, 2009, Lee said…
Hi Claudine,
I agree that most doctors dont know much about alopecia..but I also think that they use that as an excuse...are they really trying to learn about it? There HAS to be treatments that work...and a cure...somewhere, but no one has found it. In my opinion, theyre not looking hard enough...but, there are other diseases that need cures first. That being said, when I went to Dr Daly, it was different. If you look up Garden City Derm, you wil lsee that he specializes in alopeica. Now, many doctors say they specialize in it, if you look on a health insurance website...but they really dont. They do what they can do...what they know...dont really try anything new or different. Daly gave me lots of meds...about 5. You can tell he really cared about making my hair grow back. I didnt get the alopecia is hard to treat speech...I just got the care I needed with no BS ; )


I dont think shots are a waste of time. There are a lot of risks though, and you have to g o every month to get them. They are also painful in that area.

I found a pretty good Dr here named Dr. Hobbs with Georgtown..shes good so far. Someone that woks there has AU and is getting shots in his brows too.
At 6:51am on October 14, 2009, Susanna Dahlstrom said…
Hi again! I didn´t loose all my hair either. But I got so angry with my hair falling off so I shaved i dec. "Try falling out now", I thought, hehe...
Now, when its growing back I feel that the new hair is much lighter and much softer, but it seems that its going darker and thicker every day... Well, I can´t accually see the difference every day, but I can see difference when a week passes. Hope you are good today! Susanna
At 1:21am on October 14, 2009, JeffreySF said…
Hi Claudine,

Glad I could put a smile on your face.
Where do you live?

Jeffrey
At 2:43am on October 13, 2009, Susanna Dahlstrom said…
Hi! Thanks for writing. I know exactly how you feel. I had the thickest hair in town before all this started. But one thing I have to ask you. Have you been without hair at all?? Because I had this white fuzz all over my scalp from the very beginning. On every patch where I lost my hair I had white fuzzy hair growing on it the second after... And today I have quite good hair growth. Its just me I think not wanting to show it to everyone before it gets thick as it used to be... I am so interested in hearing how you are doing in the future, so please stay in touch.

Susanna
At 12:06am on October 13, 2009, Karen said…
My pleasure, Claudine! I'm still getting injections, only going on the 4th round. And just like your post, I have some stubble but the patches are getting bigger and the spots that they miss are bald. I'm still shedding but not as bad. Pretty ugly under my pretty wigs. So I'm on the fence about shaving. Just can't get the guts to do it. I don't know why I'm such a chicken! haha
How are things with you?
At 7:47pm on October 12, 2009, JeffreySF said…
Hi Claudine,

How are things with you?

Jeffrey
At 11:46pm on March 17, 2009, LeslieAnn Butler said…
Hello and welcome, Claudine! How are you today?
LeslieAnn
 
 
 
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