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RENEE's Discussions

Lupus and hairpieces

Started this discussion. Last reply by Monica Witt Feb 25, 2011. 2 Replies 0 Favorites

Cyberhair

Started this discussion. Last reply by Pat Nov 24, 2008. 22 Replies 0 Favorites

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Georgia Kay Jarman commented on RENEE's blog post 'Joseph Paris Salon in NYC????'

Where did you get your vacuum wig? Is it really reliable as far as being secure to your head? Thank you. I've been struggling with what to do. It's such a problem I need to shave my head. Thank you.

Sep 2, 2011

Monica Witt replied to RENEE's discussion 'Lupus and hairpieces'

i make my own wigs now,i use youtube for guidance,i hope that she gets the answers that she is looking for.I have Lupus as well,take care:):):)

Feb 25, 2011

Garden Girl and RENEE are now friends Nov 12, 2010

Dawn left a comment for RENEE

Hey Renee! I've been searching this site like you mentioned.. still haven't located the groups for people with Lupus though! But somehow I did find you! go figure.

Nov 14, 2009

Karen's Wigs replied to RENEE's discussion 'Lupus and hairpieces'

Hi Rene - There is a feature called a monofilament top which provides comfort to the wig wearer. Hand-made wigs are lighter than machine-made while synthetic pieces are easier to care for than human and are less expensive.

Nov 3, 2009

Lupus and hairpieces

Dear All,I need some help. My stepdaughters mom has lupus and she has come to me since I have AU to help her with finding a wig. Does anyone have lupus or know someone who does that can help me advice her the best type for her needs. She has some hair left, but it is not growing. She has a very sensitive scalp, and I am not sure what to recommend to her. Anyine with info please help me advice her what would be best.See More

A discussion started by RENEE was featured Oct 25, 2009

2 Comments 0 Favorites

Lupus and hairpieces

Discussion posted by RENEE Oct 25, 2009

2 Comments 0 Favorites

Meghan left a comment for RENEE

Thanks! Its a Flora wig.. the website is designbyflora.com

Sep 4, 2009

Profile Information

Relationship Status:: Married

About Me:: I AM A 32 YEAR OLD ACCOUNTANT WITH ALOPECIA UNIVERSALIS SINCE I WAS 5.

Do you have alopecia?: Alopecia universalis

Are you age 18 or older?: Yes

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RENEE's Blog

Joseph Paris Salon in NYC????

Posted on January 12, 2009 at 7:33pm 2 Comments 0 Favorites

Has anyone every heard of Joseph Paris or Hair rx? I am not sure how I found this website, but I sent away for literature and the owner Mr. Joseph Paris called me himself. He has two websites. www.josephparis.com and www.yourhairx.com. The pictures of the pieces that he creates are amazing. I have never seen such natural looking hair lines ever. I would love any feedback that you can provide if anyone knows about him and his pieces.

Thanks in advance for your… Continue

Comment Wall (27 comments)

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At 6:41pm on November 14, 2009, Dawn said…: Hey Renee! I've been searching this site like you mentioned.. still haven't located the groups for people with Lupus though! But somehow I did find you! go figure.

At 1:41pm on September 4, 2009, Meghan said…: Thanks! Its a Flora wig.. the website is designbyflora.com

At 11:51pm on August 9, 2009, Mary said…: Hi Renee. Welcome to the National Bald Out Group!

Mary

At 12:03am on August 1, 2009, Dotty said…: Hi Renee,
Love the tattoo. My head has a total of 22 tattoos. I got them over a period of about 3 years. The total sitting time was a little over 40 hours. My tattoo artist was absolutely amazing. I did the tattoos by piece work, picking out what I wanted and when I was done with the ones I picked, I just went in and he filled in the spaces with colorful flowers, vines, and a great butterfly. I absolutely adore my head and I haven't worn anything except baseball caps and scarves for warmth. My head definitely tells a story as most of the tats have great meanings behind them. If I can find my pics, I will post some of my head while under construction :-)
Love and Hugs,
Dotty

At 10:06pm on July 28, 2009, Dotty said…: Hi Renee,
Thanx for the add. Hope you are doing well. Hope to chat and get to know you better.
Love and Hugs,
Dotty

At 2:36pm on July 28, 2009, Debbi Fuller said…: Hi Renee,
There's a page here at alopecia world. Just look for Children's Alopecia Project. Or you can go to their website at childrensalopeciaproject.org
If you can't find it, write me back.

At 11:19pm on August 28, 2008, Kayla said…: Hi Renee
I have Hachimotos Thyroid Disorder... I would have never known if I didn't pass out one day from rapid heartrate and heart palpitations.. It didn't show up on regular bloodwork I had to seek out a specialist, Dr. Meckelnberg (in Christiana- let me know if you need his #, he is wonderful!). He did a thyroid uptake and scan; a sonogram on your thyroid, and discovered I had a problem. I now take Syntheroid and have it under control, but still have regular bloodwork done... It is basically another autoimmune disorder, like Hypo Thyroid...
Hypo Thyroid runs in my family..
Hope this information helps. Feel free to contact me if you would like my doctor's number. He works miracles! I knew a woman from Milford, where I'm from, who has A.A., went to him for treatment and her hair grew back!
I hope you are well. I would love to hear back from you!
Kayla

At 8:43pm on July 26, 2008, Peyton said…: It's ok
:)

At 4:00pm on July 25, 2008, Peyton said…: hi:)
i'll ask my om if she got your message:)
(and my names spelled pEyton not pAyton)

At 7:38pm on July 24, 2008, Debbi Fuller said…: Hi Renee,
I've been married now for almost 21 years to my great husband. My hair fell out less than one year after we married. From the beginning he was cool with it. I wear my prosthesis for most of the time when I go out, but around the house I don't. He could care less!! I've gotten to the point now that I will take it off whenever the spirit moves me, especially when I want to show off my tattoos!! I've been to Mexico and not worn it when swimming too!! I figured why have to style my hair when I could just leave it in the room until it was time for dinner!! EASY!! My husband is very good at doing stuff. He can do electrical, carpentry, etc. He used to be a machinist so he thinks like an engineer. Luckily, he also has a great sense of humor!!
Debbi

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