Barbara
  • Female
  • Westminster, MD
  • United States
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Barbara's Friends

  • Karen Smith
  • Mckenzie
  • Eric Dane Mattson
  • Christy Cyphers
  • Ernesto
  • Annette Stewart
  • Carly Petko
  • Karen
  • Raychelle
  • Thomas
  • Tracy and Amanda
  • Heather L
  • Danette
  • Aimee
  • Jo Jo

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Barbara's Page

Latest Activity

Barbara replied to Beth Martof's discussion Celiac Disease/Alopecia Relationship?
"I picked up the book “Wheat Belly Diet” a few months ago. Since the author mentioned the connection with wheat-intolerance (or full-blown celiac) and autoimmune diseases, it really caught my interest. My husband has rheumatoid arthritis…"
Jan 5
Karen Smith and Barbara are now friends
Mar 23, 2011
Barbara replied to Lynn AKA Mom of 2 w/AA's discussion Treating With Decolorized Iodine
"My update is that I have basically given up on all – no shots, no meds, no shampoos as of last spring. With all those treatments (or perhaps just on its own – who knows!) my hair started growing back in the bare spots (had months of hair…"
Sep 29, 2010
Barbara commented on Jeannie Terrel's blog post WIGS and trying to cover my head!
"Have you tried www.tlcdirect.org?"
Aug 1, 2010
Barbara commented on Christine Messner's blog post treatment dr shmuel gonen
"was the diet hard to adjust to ?"
Jun 29, 2010
betsy slagle left a comment for Barbara
"Barbara - I live in Lutherville !! please keep in touch - I've been away from a working computer for awhile - I am AU and have been since '97 - give me a call 410-296-9434 happy to be a friend. betsy"
Jun 15, 2010
Barbara replied to Leslie's discussion Body is stiff and I'm so tired
"Boy that sounds like RA (or a similar disease in the same autoimmune family). My husband got Rheumatoid Arthritis 11 years ago. It causes stiffness (especially upon rising in the a.m. or anytime he is still too long, like a car ride or even a…"
Jun 15, 2010
Barbara replied to Heather Bloom's discussion How do you transition from hair to wig at a job?
"That's funny Sally! Someone a few months ago said the same thing to me: "Your hair always looks perfect!""
Jun 15, 2010
Barbara commented on Dana Kozlowski's blog post Unpredictable to say the least
"I just passed my one year mark – shock discover at the hairdressers on May 28th, followed by dermatologist appointment on May 29th, 2009. Yeah – as soon as I started to relax, BAM – more moth holes in the scalp. So discouraging.…"
Jun 9, 2010
Barbara replied to Heather Bloom's discussion How do you transition from hair to wig at a job?
"Funny thing happened this a.m., just after posting the above yesterday. My boss, who only comes into town every 2 weeks or so, said to me this morning, "You colored your hair! It's lighter! No more highlights?" Funny! I said, "Oh…"
Jun 7, 2010
Barbara replied to Heather Bloom's discussion How do you transition from hair to wig at a job?
"I was where you are just a year ago – and I mean almost to the date! I ordered a hairpiece that matched my color and style at a wig shop and then picked it up on a Friday when I had a day off of work. When I came into work on Monday I felt…"
Jun 6, 2010
Barbara commented on Barbara's blog post Repairing a wig? Is that possible?
"thanks Janet. the shedding and breaking stopped a lot, and I use different products than I did before, but good to know about the repair. Mine is a year old and I was told that the life is about 2-4 years. So planning ahead!"
Apr 15, 2010
Janet Pangborn commented on Barbara's blog post Repairing a wig? Is that possible?
"Hi Barbara, Almost all human hair can have hair added regardless of the base. But how old is your wig? If it is shedding, you need a qualified person to take a look and see if the hair is breaking or the knots are loosening. Knots can loosen if you…"
Apr 15, 2010
Barbara replied to Lisa's discussion Homeopathic Remedies for alopecia areata!?
"Which oils specifically are you using? I got my 10th round of shots this a.m. and am concerned about the build up of steroids in my body. thanks!"
Mar 26, 2010
Barbara replied to Carly Petko's discussion Recently Diagnosed
"I bought one of though spidery looking metal scalp massagers and used that, plus would lie on the sofa with my haead hanging down. Have to start doing that again. Don't know if it makes a difference or not, but what the heck!"
Jan 8, 2010
Barbara replied to Carly Petko's discussion Recently Diagnosed
"I am in the same boat. I got a wig right after diagnosis June 2009 just for confidence and to be so much less all-consumed with fear of the bald patches being apparent to someone. BTW - JUST yesterday got the letter from insurance that they would…"
Jan 8, 2010

Profile Information

Relationship Status:
Married
About Me:
DIagnosed with AA May 2009. Pretty darn depressed about it, especially the unknown aspect.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Barbara's Blog

Repairing a wig? Is that possible?

Posted on November 27, 2009 at 5:30pm 4 Comments

I have heard of sending a wig in for repair. What does that entail exactly? I have a 3/4 wig, medium or shoulder length. A couple times it has gone through what seems like a shed! I go through a couple-week period where more than a few hairs come out every time I run my fingers through it (which is often during the times I am worried about it), and there always seems to be some on my clothing and extra in the brush. I am careful of it and carefully untangle and unsnarl, but at least twice it… Continue

Comment Wall (10 comments)

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At 12:12pm on June 15, 2010, betsy slagle said…
Barbara - I live in Lutherville !! please keep in touch - I've been away from a working computer for awhile - I am AU and have been since '97 - give me a call 410-296-9434
happy to be a friend. betsy
At 9:51am on June 15, 2010, Mckenzie said…
Hey Barbara! Thank you so much! It is a full wig (but it is SO LITE), And its the Noriko Collectin by Aderans. The amazing man I worked with to find a wig I actually liked said it was modeled after victoria Beckham? .. It doesn't look like it so much when i have the side pulled back in that flower but it does look a little similar .. a little.. lol when its all the way down! ;) The color I have is nutmeg, but they had a ton of other colors in this style. Everyone asks me where i get my hair cut and who does the coloring.. Oh the secrets of wearing a wig! ;)
At 11:11am on October 15, 2009, Jaime Evans said…
Barbara.. good luck with your appeal, I hope that it works out for you I am about to do the same maybe if we cost them enough sorting through our appeals they will eventually start covering something : 0 )
At 12:12pm on October 7, 2009, Aimee said…
Hi, thanks for the add.
At 3:18pm on August 20, 2009, Heather L said…
Hey Barbara!

Not sure how I missed your entrance to Alopecia world- a little late but WELCOME! and HAPPY BIRTHDAY!

Heather
At 2:34am on August 15, 2009, Pamela Rosse said…
Hi Barbara, Thank You so very much. I agree this site can be a powerful force. The NAAF could probably assist, but first & foremost we should speak with Cheryl, for she founded this site & we should get her permission & blessing before we really go to town. It is because of this site & the wonderful people I have met here that I was able to find strength & my voice to speak out because it was not just for me it was for all of us who have been shafted by the lack of coverage for wigs, oops, cranial prosthesis. I will get off my soap box now, it's late & I'm tired, going to watch the news & shut the lights out.
Thank you so much again.

Pam
At 2:55am on August 9, 2009, Susan - Jon's Mum said…
It is hard for a child especially when it happens at the age where they are learning where their place is in the world and that how we look is a big part of that. He just wants to look 'normal' so that he can fit in and be like everybody else.
How are you coping?
At 5:34pm on August 8, 2009, Cheryl, Co-founder said…
Hi Barbara, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 12:35am on August 8, 2009, Susan - Jon's Mum said…
Welcome Barbara.
How are you?
Susan
At 11:23pm on August 7, 2009, LeslieAnn Butler said…
Hello and welcome, Barbara!
How are you doing today?
LeslieAnn
 
 
 
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