You are s rong woman. I hope you find help here.

YEAH! Only one of my twins are effected as well. We have a cousin that has alopecia as well, but when he was a child (he's 21 now) he used to pull his hair out.

The link is: http://www.mdanderson.org/departments/alopecia/

I don't know if you are willing to do this, but I just registered for the National Alopecia Research at MD Anderson. They contacted me back right away because Della is a twin. I guess they are in real need of twins where only one is effected. I guess they get so much more information this way. Anyways, Della will be top on the list if they find a cure or a promising treatment. But, I read that you don't like to use medications much, unless it is life saving. But I bet it would be great if you could sign up your boys. All they need are some pictures, a history, and some blood samples. I am hesitant about the blood samples, but I figure maybe they will find a cure in Della's life time.

Hi Michelle! Yes my twins are identical. They had Twin to Twin Transfusion when I was pregnant. I was diagnosed when I was only 13 weeks along and had surgery to fix it. This only effects identical twins. Have you heard of this before?

Hi Michelle! I have twins as well. I want to thank you for the invite. I also want to say welcome to our group! Feel free to make an introduction! It's nice for everyone to know where everyone is coming from! Are your twins identical or fraternal?

How many kids do you have? LOL! I am glad you are here and I look forward to getting to know you. Take care, Cheryl

Thanks for the friend add- I have two boys one has alopecia- the other has mild sensory integration disfunction-My hat is off to you!

My goodness, don't you have your hands full! I have three daughters and thought I was busy! You deserve a medal! I went to a high school where the year before I went there were twin girls with alopecia. It was amazing how they coped, they had such strong self-esteems. I think that a major part of that was they were going through it together and constantly had someone just like them to pull them through. Does only one twin have alopecia? Is anyone concerned about the other twin having it as well?

Hi Michelle,

Thanks for inviting me. It is always good to have a friend that knows what you are going through. I have been reading your blog about your children and I take my hat off to you. You are such a wonderful mother who I can see is going through so much yet it seems that you have such strength.

Karen