Helen, I read somewhere you were looking for head coverings..My daughter wears a headband with hair sewn into when she does not wear her wig. She loves them. www.hatswithhair.com.

Lynn:

The hair piece with the velcro is from Hat & Hair. Their website is www.hatandhair.com. We purchased the "Jodie" stye for Emma and it is a nice length for her. As I mentioned in my earlier post we have found several cute hats at Claire's and even Children's Place has several cute hats out this spring. I just sew the velcro into the hats and it works perfectly. Thank you for your kind words. We are doing ok right now. Emma has really embraced this and is accepting it like a trooper. Our next challenge is to find some kind of wig that can be put into somewhat of a bun for an upcoming ballet recital. She really is not fond of wearing a full wig but wants to look like the other girls. So I don't want to spend a ton if she is not going to wear it much. If you have any suggestions for a piece that might work please let me know. I'm planning on posting something to the whole group about it sometime soon. BTW... your daughter is a cutie!!

Lynn,
Thanks so much for contacting me. Helen is absolutely adorable! How wonderful that she is experiencing regrowth! I really hope that it continues for her. We have been dealing with this for a relativley short time compared to you guys. Genevieve was diagnosed about a month ago, and about a month prior is when I noticed her first bald spot. That spot has definitely grown and she now has about 4 or 5 others along with it. She is also starting to lose a portion on her eyebrow. I guess what is killing me is the not knowing. Is this going to be it or will she lose everything? Sometimes it seems like it is happening so fast, then other times it is agonizingly slow. How was it for you when Helen started losing? I would love to share experiences and stories with you sometime. You said you live localy? We are in Pearland. Perhaps we can meet sometime to talk about this crazy alopecia thing!
Melani

Hi,

I am stopping by to see how Helen's regrowth is going. Are you still using the Rogaine? I have just started Amber on rogaine as well wanted to get your advice as to how you found the product.

Thanks

Karen

hi therem your daughter is soooooo gorgeous!!! hope you are all ok.xx

Thanks for the tips. I have actually bought her a wig, but she doesn't really like it. So, I guess I will just wait to see and keep it on hand for the day she wants HAIR. There is a picture on our site with her and wig.

Thanks again.

HI! I really wish the kids were closer,also. I don't know if the sterols make a difference, but this is the longest time for regrowth since he lost his hiar at 11 months. He started in January and is still "growing" strong-we just take it one day at a time

Hi Helen's Mom!

I was just wondering if Helen has ever asked for hair? Leah doesn't really understand about the hair loss thing yet, but has asked for a haircut and some hair right here (top of head).

Thank you so much. Your words means alot to me.
they made me smile from within

cheers:)