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Lynn Bell
- Female
- Minneapolis, MN
- United States
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Lynn Bell replied to Lara (Becca's Mom)'s discussion The "do nothing" approach in the group Parents of Children with Hairloss"Thank you sooooo much Angie!
This is the kind of information I am definitely looking for. I appreciate you sharing it with me! Your postive approach is so encouraging. I will let you know what we decide to try. God bless you!!!
Lynn"
Lynn Bell replied to Lara (Becca's Mom)'s discussion The "do nothing" approach in the group Parents of Children with Hairloss"Hi Angie,
My fourteen year old daughter was diagnosed seven months ago, and now has no hair anywhere on her body. Thankfully, she is doing pretty well - finding her strength on the inside, and knowing she is beautiful with or without hair. In fact,…"
Kristy left a comment for Lynn Bell"Hi Lynn, I"m sorry I'm just getting back to you. You had asked me a few weeks ago about false eyelashes...I have never worn them personally, but there are a lot of people who do. if you look at naaf.org website, they have a marketplace…"
Matt (Mikayla's Dad) left a comment for Lynn Bell"That is awesome!! How wonderful for her to have so many friends be there to support and encourage her! The key to dealing with this is just that...realizing that she's not a different person, and her friends are still her friends. Believe…"
Lynn Bell left a comment for Kristy"Hi Kristy, thank you for your insight. I appreciate it! Do you know much about false eyelashes?"
Lynn Bell left a comment for Matt (Mikayla's Dad)"Hi Matt,
Thank you for your encouragement. Stephanie shaved her head at her 14th birthday party with 30 friends around her. Everyone was so supportive. Now she is losing her eyelashes and eyebrows. She only wore a wig to her choir concert, otherwise…"
Matt (Mikayla's Dad) left a comment for Lynn Bell"Just thought I'd stop by to see how you and your daughter are doing? I know in our case, it was harder for us than for her, but everybody is different. Hope you are doing well while learning to deal with this stuff from the beginning. :o)"
Kristy left a comment for Lynn Bell"Hi Lynn, I'm so sorry to hear about your daughter, I know how rough this can be. A lace front piece has just that...a piece of lace that is on the front of the wig that blends right into your forehead so you can wear a no bang style and have it…"
Lynn Bell commented on Kristy's photo
Peggy Knight Lace Front 14 Inches
"Do you mind if I ask what a lace front wig is? My 13 year old was diagnosed just three weeks ago and has lost half her hair. We think she is on her way to a wig, but I don't know where to begin... Thank you!!!"
Lynn Bell left a comment for Erin Fraser"Hi Erin,
Thanks for the note. We didn't even know what alopecia was until last week. As you can imagine, it has been an unexpected shock to our systems. We go see a specialist on Monday. Stephanie (13) has lost most of the hair on the back and…"
Erin Fraser left a comment for Lynn Bell"Hi Lynn,
I know your pain, My daughter is 14 and has lost all her hair, eye lashes and brows included. Thirty yrs ago I was that girl , lost my hair and have lived to support my daughter going through the same. Best cure is acceptance although a…"
Lynn Bell replied to Lara (Becca's Mom)'s discussion The "do nothing" approach in the group Parents of Children with Hairloss"Hi, just wanted to thank you for your post. My daughter is 13 and was just diagnosed last week. Acceptance is very very hard. We are just so sad. She had the most beautiful, thick, wavy, light blonde hair. Anyways, just wanted to thank you for the…"
Lynn Bell commented on Miranda's group Parents of Children with Hairloss"Hi! My 13 year old daughter was diagnosed with AA last week. Our first dermatologist visit is Monday. Do you have any suggestions for what to ask about? Treatment options? Thank you all, and I am so glad you are here."
Profile Information
- Relationship Status:
- Single
- About Me:
- I am the mother of a 13 year old daughter just diagnosed with alopecia aereta on September 22, 2010.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (7 comments)
- At 8:46am on December 1, 2010, Kristy said…
- Hi Lynn, I"m sorry I'm just getting back to you. You had asked me a few weeks ago about false eyelashes...I have never worn them personally, but there are a lot of people who do. if you look at naaf.org website, they have a marketplace that sells false eyelashes that are specifically for people with AA, as regular ones don't stay on well with no eyelashes to rest on. I had my eyeliner and brows tattooed on last month so I wouldn't have to worry about it. I just got back from Germany, as I had a treatment done that is not specifically for AA, but is helpful for other auto-immune conditions, so we'll see if it helps with this. I'm keeping my fingers crossed as it could help a lot of people if it works. Hope you and your daughter are doing okay. Hugs, Kristy
- At 9:37am on November 15, 2010, Matt (Mikayla's Dad) said…
- That is awesome!! How wonderful for her to have so many friends be there to support and encourage her! The key to dealing with this is just that...realizing that she's not a different person, and her friends are still her friends. Believe me...her friends will take up for her too. Mikayla has had several different times at school when one of her friends have overheard somebody else talking about "that girl that wears the wig" just because they've heard about it, and they are quick to "jump" right on that and take up for their friend. :o) The fact that Stephanie is already so open and accepting about it is amazing...she will only get stronger from here. These kids never cease to amaze me!!
Mikayla is doing really well...thanks for asking. :)
- At 9:26pm on November 3, 2010, Matt (Mikayla's Dad) said…
- Just thought I'd stop by to see how you and your daughter are doing? I know in our case, it was harder for us than for her, but everybody is different. Hope you are doing well while learning to deal with this stuff from the beginning. :o)
- At 9:58am on October 17, 2010, Kristy said…
- Hi Lynn, I'm so sorry to hear about your daughter, I know how rough this can be. A lace front piece has just that...a piece of lace that is on the front of the wig that blends right into your forehead so you can wear a no bang style and have it look very natural. You can get both synthetic pieces and human hair pieces made this way. check out wigs.com, and look at the Jon Renau lace front wigs. They have videos on most of the wigs that they sell that will show you the construction and you can see exactly what they mean by lace front. And they are one of the few online places that has a decent return policy. I am not an expert, but there are plenty of people on here that might have suggestions for resources in your area if you need to look at some options in person. I know what and emotional ride this is, I too had amazing long thick blonde hair and was so sad to lose it. Best to you and your daughter, Kristy
- At 12:58pm on October 14, 2010,
LeslieAnn Butler said…
- I know it can be very hard. Sounds like Stephanie is a wonderful girl.
Let me know how you both like the book, okay?
I am here to answer any questions and talk if either of you needs it...
Hugs!
- At 3:06pm on October 11, 2010,
- Hello and welcome, Lynn!
How are you and your daughter doing today?
Leslie Ann
- At 10:32pm on September 29, 2010, Erin Fraser said…
- Hi Lynn,
I know your pain, My daughter is 14 and has lost all her hair, eye lashes and brows included. Thirty yrs ago I was that girl , lost my hair and have lived to support my daughter going through the same. Best cure is acceptance although a bitter pill to take. My eldest daughter also has AA and she choses to have steriod injections in the paches that appear, painful but they give her something to hope for, she is 21 and emotionally it is harder on her than myself and younger daughter that have no hair at all. WE both wear wigs and I can say Sophie is stronger than what I am but together we have a special bond that only people with alopecia can understand. good luck
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