"Hi Jenn, We are moving to Houston (Champions Park Area) at the end of July/early August. I have universalis, and I have two daughters much younger than your son (3.5 years and 8 months) but we'd love to get to know your family. I know that the…"
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Kristy
- Female
- Schaumburg, IL
- United States
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Keeping long human hair wigs tangle-free?
Started this discussion. Last reply by Stephanie Jan 29, 2011. 12 Replies 0 Favorites
Does anyone have any suggestions for keeping long human hair pieces free from tangles? I love my piece, but even if I just wear it out to the grocery store for an hour it is a tangled mess in the…Continue
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Kristy left a comment for Kim Karacz"Hi Kim, thanks for the friend add and the info; we were in Houston for less than 36 hours over the weekend looking at homes, and will likely be in TX soon. I rocked it bald while there...strange looks from some and great service from others but I…"
Alliegator left a comment for Kristy"Hi Kristy! I am familiar with the Kingwood/Humble/Spring area! I currently live in the city in the Memorial area. I used to live in Spring/The Woodlands. I used to spend a lot of time in the Humble area too because I had friends out there. That is…"
Alliegator left a comment for Kristy"Hi! Do you know where in Texas you will be moving? It is a great state. I think you will love it! I don't know of any support groups, but I have tried to contact the NAAF representative to get it started. You should join the Texans with…"
Kristy left a comment for carol"Hi Carol, thanks for the friend request...well, all my lashes are GONE at this point...no more tormenting me! Everything has pretty much disappeared except for the tiny knuckle hairs...those are still persistent! Hope you have a great day!"
Profile Information
- Relationship Status:
- Married
- About Me:
- I'm 33, and I was diagnosed with Alopecia Areata in the Ophiasis pattern in 2009, about 8 months after the birth of my daughter. I had some success with Prednisone initially, but once I finished the taper, my hair began to fall out again. My ophiasis pattern returned, and I also had one huge spot on the side of my head, and my dermatologist renamed my diagnosis "diffuse" AA, as it began to fall out everywhere, not just spots, and my hairline began to majorly recede. Had to stop Kenalog as too much atrophy of my scalp.
So at the beginning of October, I shaved off everything that was left and had a HUGE burden lifted off of my shoulders. I am okay with being bald, and don't wear anything to cover my head around my house, but I got a great hair piece and I wear it when I go out.
UPDATE: It is now January of 2011. I have no need to shave my head anymore, and I have a total of 3, yes 3 lashes left on my eye. I'm very glad that I got permanent makeup...I love it! And I can't wait for warmer weather so I can get a tan on this little head of mine and venture out without my hair! I have accepted this for what it is...I'm hopeful it will come back, but if it doesn't, I will survive. I pretty much have universalis at this point. How crazy.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Kristy's Photos
Comment Wall (22 comments)
- At 10:29am on April 4, 2012, Alliegator said…
Hi Kristy! I am familiar with the Kingwood/Humble/Spring area! I currently live in the city in the Memorial area. I used to live in Spring/The Woodlands. I used to spend a lot of time in the Humble area too because I had friends out there. That is our nice airport! People also call it Intercontinental airport. We also have the Hobby airport in South Houston, but I like the other one better. Wow, you had 3 groups! That must have been nice. I think they are trying to get one started here. It is nice to talk to others who have experienced it. It is nice to meet you too!
- At 11:16am on April 2, 2012, Alliegator said…
Hi! Do you know where in Texas you will be moving? It is a great state. I think you will love it! I don't know of any support groups, but I have tried to contact the NAAF representative to get it started. You should join the Texans with Alopecia group on this site if you haven't already!
- At 12:52pm on January 19, 2011,
Leah England said… - Hey, Kristy, thank you!!! I haven't been on AW for awhile, been trying to start school, joined the Board of the Theater department for my daughter at High School, she started Volleyball club (3 cities away, what was I thinking? it was the only one I could afford) and now closing down a business and desperately seeking new employment!
I have been getting my head steriod shots, and taking them orally and putting the steroid creams and foams on my scalp... I have fuzzy regrowth in places, but overall it still slowly dwindles away. My hair looks about 2 or 3 phases past your picture from the back of your head where you're holding up your hair and it's all gone down below and the baldness is creeping upward.. mine is EXACTLY the same, and now spots on the top and crown of my head are appearing, my temples have been gone for awhile, and working it's way upward and around my crown. Is that what yours did too?
How long did it take you before you were completely done with all this patchy-hopeful-not-hopeful-treatment-grows back- still falls out- stuff??
My head is tender, the skin on it hurts all the time,like .. bruises or a sunburn. The injections suck and the meds burn and itch. my scalp skin is now bumpy and wavy from the steroids causing atrophy in my fat tissue, so the bald areas look like ocean waves in the skin.
You look SOOO beautiful and SOO happy. What did you do, Kristy??
- At 10:50pm on January 18, 2011,
Jennifer Mahoney said… - Thank you Kristy!
- At 9:14am on November 15, 2010,
Lynn Bell said… - Hi Kristy, thank you for your insight. I appreciate it! Do you know much about false eyelashes?
- At 5:58pm on October 20, 2010, Leah England said…
- Hi Kristy, your post made me cry- thank you for your sweet words of encouragement!! Ya, i AM really scared and maybe disappointed is even more accurate or strong... I dont know if I want to go through the treatments, I cant find even ONE SINGLE person here that's had success and it's all so painful and the side effects (THEY scare me!).. right now it's so early on in my journey with alopecia that Im struggling to decide whether to hang onto hope with both hands and dive into research and treatments like mad - or skip it and try for acceptance... I still have about 3/4 of my hair, but it's falling out in droves. Just scared and confused and only taking thinking about it for an hour a day before I fall apart...
Leah
- At 4:27pm on September 24, 2010,
Jessica said… - How u b sista? what happened with the wig? hope is well have an awesome weekend with the fam and happy b day to little miss ava
hugs
jess
- At 10:22am on September 18, 2010,
kaitlin lavin said… - Saturday = No work! So of course I'm having a fabulous day (: Hahaha!! Hope it's going well for you!
- At 4:18am on September 16, 2010,
Fox said… - Thanks for your comment,I have desided to order a human hair lace front wig and as cheap as possible :))
- At 1:13pm on September 13, 2010, Fox said…
- You look great! Does the wig hold up? (tangling etc)
I was looking at these wigs and thought they're expensive and they looked wiggy in the internetshop,but when I see yours I want to order one too! :)))
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