Kristy
  • Female
  • Schaumburg, IL
  • United States
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Kristy's Discussions

Keeping long human hair wigs tangle-free?

Started this discussion. Last reply by laurenseav Dec 29, 2017. 14 Replies

Does anyone have any suggestions for keeping long human hair pieces free from tangles? I love my piece, but even if I just wear it out to the grocery store for an hour it is a tangled mess in the…Continue

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laurenseav replied to Kristy's discussion Keeping long human hair wigs tangle-free?
"Can you tell me where you buy your hair products for a tangle free long piece. The exact names would help too  Thanks"
Dec 29, 2017

Profile Information

Relationship Status:
Married
About Me:
I'm 33, and I was diagnosed with Alopecia Areata in the Ophiasis pattern in 2009, about 8 months after the birth of my daughter. I had some success with Prednisone initially, but once I finished the taper, my hair began to fall out again. My ophiasis pattern returned, and I also had one huge spot on the side of my head, and my dermatologist renamed my diagnosis "diffuse" AA, as it began to fall out everywhere, not just spots, and my hairline began to majorly recede. Had to stop Kenalog as too much atrophy of my scalp.

So at the beginning of October 2010, I shaved off everything that was left and had a HUGE burden lifted off of my shoulders. Two months later I was totally hairless...no lashes, brows, body hair, you name it, gone. I initially wore wigs out but was bald at home and around all my friends and family. I never hid my alopecia...I worried more about a wig falling off than being bald in the first place. I'm okay with being bald now and I go everywhere hairless. I got my eyeliner and brows permanently tattooed and I love it.

It is now August of 2010 and I've been bald for almost two years now. I have learned to accept the hand I've been dealt, and I now just hope to bring awareness and acceptance for all of us who have to deal with this condition.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (23 comments)

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At 7:47pm on September 23, 2012, Alliegator said…

Hey girl, It was so nice to meet you as well along with your family. I've been wanting to send you a message. Two sick girls, that is rough. I hope they are better now. They are both so adorable. I had fun meeting them. That is so sweet of you... thank you! :) Kim sent me a message. She didn't recognize me since when we met I was wearing a scarf on my head. Lol. We should meet for lunch or dinner one day. Or if you ever want me to show you an area of town, I'd be happy to do that! Have a good week

At 7:36pm on July 7, 2012, Lexi said…

Welcome Kristy, brave girl, beautiful girl. Your picture #13 is me to a T.
I would not be as brave as you are. You also look very pretty in your long hair wigs....what kind are they, and where did you get them? Cost? Although I had a slew of tests at the dermatologist, no one ever told me exactly what was going on. Well, I guess, when I went I was just shedding like crazy, and hadn't lost the nape of my neck hair yet. Just diffuse. Hope you have a great weekend. Oh, I see Alliegator lives in your part of the world. Meet up with her, check out her page on wigs...it is soooo cool. She is very cool, and very nice.

At 10:29am on April 4, 2012, Alliegator said…

Hi Kristy! I am familiar with the Kingwood/Humble/Spring area! I currently live in the city in the Memorial area. I used to live in Spring/The Woodlands. I used to spend a lot of time in the Humble area too because I had friends out there. That is our nice airport! People also call it Intercontinental airport. We also have the Hobby airport in South Houston, but I like the other one better. Wow, you had 3 groups! That must have been nice. I think they are trying to get one started here. It is nice to talk to others who have experienced it. It is nice to meet you too!

At 11:16am on April 2, 2012, Alliegator said…

Hi! Do you know where in Texas you will be moving? It is a great state. I think you will love it! I don't know of any support groups, but I have tried to contact the NAAF representative to get it started. You should join the Texans with Alopecia group on this site if you haven't already!

At 12:52pm on January 19, 2011, Leah England said…
Hey, Kristy, thank you!!! I haven't been on AW for awhile, been trying to start school, joined the Board of the Theater department for my daughter at High School, she started Volleyball club (3 cities away, what was I thinking? it was the only one I could afford) and now closing down a business and desperately seeking new employment!

I have been getting my head steriod shots, and taking them orally and putting the steroid creams and foams on my scalp... I have fuzzy regrowth in places, but overall it still slowly dwindles away. My hair looks about 2 or 3 phases past your picture from the back of your head where you're holding up your hair and it's all gone down below and the baldness is creeping upward.. mine is EXACTLY the same, and now spots on the top and crown of my head are appearing, my temples have been gone for awhile, and working it's way upward and around my crown. Is that what yours did too?

How long did it take you before you were completely done with all this patchy-hopeful-not-hopeful-treatment-grows back- still falls out- stuff??

My head is tender, the skin on it hurts all the time,like .. bruises or a sunburn. The injections suck and the meds burn and itch. my scalp skin is now bumpy and wavy from the steroids causing atrophy in my fat tissue, so the bald areas look like ocean waves in the skin.

You look SOOO beautiful and SOO happy. What did you do, Kristy??
At 10:50pm on January 18, 2011, Jennifer Mahoney said…
Thank you Kristy!
At 9:14am on November 15, 2010, Lynn Bell said…
Hi Kristy, thank you for your insight. I appreciate it! Do you know much about false eyelashes?
At 5:58pm on October 20, 2010, Leah England said…
Hi Kristy, your post made me cry- thank you for your sweet words of encouragement!! Ya, i AM really scared and maybe disappointed is even more accurate or strong... I dont know if I want to go through the treatments, I cant find even ONE SINGLE person here that's had success and it's all so painful and the side effects (THEY scare me!).. right now it's so early on in my journey with alopecia that Im struggling to decide whether to hang onto hope with both hands and dive into research and treatments like mad - or skip it and try for acceptance... I still have about 3/4 of my hair, but it's falling out in droves. Just scared and confused and only taking thinking about it for an hour a day before I fall apart...

Leah
At 4:27pm on September 24, 2010, Jessica said…
How u b sista? what happened with the wig? hope is well have an awesome weekend with the fam and happy b day to little miss ava
hugs
jess
At 10:22am on September 18, 2010, kaitlin lavin said…
Saturday = No work! So of course I'm having a fabulous day (: Hahaha!! Hope it's going well for you!
 
 
 

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