Leslie Mader
  • Female
  • Overland Park, KS
  • United States
Share on Facebook
Share Twitter

Leslie Mader's Friends

  • bigelin
  • Cindy
  • susieq
  • Johnyette Sloan
  • Diana
  • Amy
  • Rachael B.
  • Susan Innes
  • Sandra Fournier
  • You can do it : )
  • Hannah Dennis
  • cindy Babs
  • Kim Karacz
  • Carmen West
  • Sanah Jivani

Leslie Mader's Discussions

Itchy eyelids, pink eyelids and itchy brow area

Started this discussion. Last reply by Johnyette Sloan Jan 27, 2012. 2 Replies

I am experiencing itchy eyelids and sometimes around the brow area. I lost my eyelashes and brows last year. But the itching just started a few wks ago.Has anyone had this happen to them? I really…Continue

redness/irritation/itchiness around eyelids and brow area

Started Jan 22, 2012 0 Replies

I have no eyebrows or eyelashes. Sometimes my eyelids and around inner and outer eye lid area itches and becomes red or pink. Same with my brow area. Does anyone else ever experience this.Not sure if…Continue

Abatacept drug

Started this discussion. Last reply by Tracey Nov 26, 2012. 7 Replies

Has anyone taken abatacept? A drug used for psoriasis and rheumatoid arthritis. There was an article in the "Fall 2011" NAAF newsletter about it and how they may test it for alopecia areata.Continue

 

Leslie Mader's Page

Latest Activity

Rose replied to Leslie Mader's discussion Yaffa wigs in the group Advice about Wigs
"Alice: I should explain... FREEDOM wigs are not hard to style. They are just like growth hair.  But because they do cost so much and don't grow, I get them cut/styled extremely cautiously.  I like to play with the style a bit,…"
Oct 18
Alice replied to Leslie Mader's discussion Yaffa wigs in the group Advice about Wigs
"Why is it hard to style ?"
Oct 18
Leslie Mader replied to Alopecia World's discussion NAAF: FDA-approved drug produces near complete hair regrowth
"This is the best news ever!!!! Thank you Dr. Christiano for stating this disease is NOT simply an appearance-altering disease!!! I hope that these breakthroughs with FDA approved drugs for AA lands on every dermatologists desk over the entire…"
Sep 8
Leslie Mader liked Alopecia World's discussion NAAF: FDA-approved drug produces near complete hair regrowth
Sep 8
Akaslowpoke commented on Leslie Mader's photo
Thumbnail

Follea Gripper

"Your hair is very cute. I am in the process of scheduling my consultations. Any advice or learnings you would like to share. My best stylist I have every had (and I have had a lot) right before I lost my hair in March has agreed to help select the…"
Jul 11, 2013
Rose replied to Leslie Mader's discussion Yaffa wigs in the group Advice about Wigs
"You will love your Freedom wig. I am on my second Freedom piece. I have been to the stylist twice and have to go one more time to make it more "me" but otherwise, once you get it cut for you, the styling is great. WITH proper product. I…"
Feb 26, 2013
Leslie Mader replied to Cindy's discussion New to head shaving!
"I have been using my husband's old electric shaver and it works but there may be something else that's better. I don't let mine get too long so it's easier to shave. I did let it grow for a few months to see what would happen but…"
Jan 13, 2013
Tracey replied to Leslie Mader's discussion Abatacept drug
"Yay! I am glad to hear that! Good luck!! :-)"
Nov 26, 2012
dreamscometrue replied to Leslie Mader's discussion Abatacept drug
"I was contacted by email by the national registry and was told my info was being forwarded to the hospital where I should call and make an appointment. I called to make an appointment early November then Sandy hit. What a mess! But yes the trial is…"
Nov 26, 2012
Tracey replied to Leslie Mader's discussion Abatacept drug
"Dreamscometrue, it appears this trial was interrupted due to a "halt in funding" if I have interpreted the info on clinicaltrials.gov correctly. Can you share any info you have? Also, I hope you made it through the recent storms unscathed!"
Nov 26, 2012
Karen Smith replied to Leslie Mader's discussion Abatacept drug
"How did you get accepted into the trial?"
Nov 8, 2012
dreamscometrue replied to Leslie Mader's discussion Abatacept drug
"I was accepted into this trial and I'm looking forward to it. Weather has been preventing me from getting to the hospital, but I'm on track to participate. Between the hurricane and noreaster,what could possibly happen more weather wise?…"
Nov 8, 2012
Tracey replied to Leslie Mader's discussion Abatacept drug
"Somewhere I read that participation was by invitation only. I think they pulled names from the national registry based on certain criteria. It's a stage 2 trial scheduled to be completed in June 2013. If successful, it moves to stage three…"
Nov 7, 2012
Leslie Mader commented on Nikki - Coley's Mama's blog post "I am so sorry!"
"Nikki - You sound like a great mother and I think that the more people or educated and made aware of AA or any other form of hair loss the better off we all will be. As an AU Alopecian, I take the opportunity when it comes to educate and bring…"
Oct 17, 2012
Leslie Mader liked Tracey's blog post Goodbye, yellow blonde hair
Oct 9, 2012
Leslie Mader commented on Elizabeth Glaspie's blog post I just want my husband to see the goodness of this disease!
"I feel overwhelmed some days also and just had a melt down the other day realizing and still in disbelief i have this awful disease. But, I have a very supportive husband and it hurts him to see me in pain and unhappy without my hair. I'm not…"
Oct 9, 2012

Profile Information

Relationship Status:
Married
About Me:
I have been experiencing alopecia areata for almost 6 yrs and currently as of July/August 2010 i have lost all of my scalp hair, eyebrows and eyelashes. I have stopped using Rogaine and cortisone injections.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Leslie Mader's Photos

Loading…
  • Add Photos
  • View All

Leslie Mader's Blog

Contemplating on a Freedom Wig

Posted on October 15, 2011 at 7:30pm 3 Comments

Hi all -



I don't believe i have ever posted here but i wanted to now and get feedback on Freedom Wigs. I have total baldness on my scalp, 1st time, and doubt it will come back from the look of things. I have had to wear wigs off and on over the last 4 yrs. I am to the point now where thinking about wearing my wig forever makes me depressed. It's a good one but i am constantly adjusting it, ha, sort of like a bra. I want to know as much as i can about the Freedom Wigs. I usually wear… Continue

Hair systems

Posted on October 6, 2011 at 12:03pm 0 Comments

I just joined this group. I was reading Britney's comment on her hair system. I have a bald head and no eyelashes also. As of 3 mths ago. I want hair that stays on longer than my wig.



I have been to Hair Club but not for a bonded system. I think they are too expensive.



Your information was very helpful. I am going to go to a place close to where i live in Leawood, KS called Arista. they have hair systems for women called Virtuesse, sounds like it may be the bonding… Continue

Comment Wall (40 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 8:45pm on September 6, 2012, Cindy said…

My profile pic is human hair, I liked it for about the first 3 months then it seemed to be uncontrollably frizzy and no longer stays in place. We are active and it is constantly sliding back. Could be my really baby fine hair that is left on my head also. Anyways talk to you soon. Cindy

At 1:50pm on March 18, 2012, Lexi said…

From one cat lover to another - I had 6 but as of 2009 all have passed. I am searching for a new baby now. This is the longest time I have not had a cat. I love your wig....in the pictures....the short reddish hair....looks totally natural. What kind is it,and if I might ask, how much? I am always searching for something that will look natural, and be comforatble and not excruciatingly hot here in FL.

At 10:45pm on February 25, 2012, Izzy said…

Thank you for your very kind words : ) I think in time we will all be strong but some days are better then others I guess.. Take care

At 10:40am on January 22, 2012, Rachael B. said…
I meant to say strong Hahahaha not string :)
At 10:40am on January 22, 2012, Rachael B. said…
Hi there! Thank you very much for the compliments! :) it is very hard but the beginning was even harder. I had to drop out of school for the first half of my senior year because I was so scared and depressed that I couldn't even get out of bed! :( each day gets easier but I start school back up this coming Thursday an I'm finding that the closer that it gets, the more scared I am becomming again. :/ I'm trying to be string though. I know that i have to do this. :)
At 11:59am on November 28, 2011, Jennifer Krahn said…

LOVE your profile picture by the way!

At 8:56am on November 27, 2011, Jennifer Krahn said…

Hi Leslie,
I understand the nerves, but once you get your hair styled and start wearing your Freedom piece you will be at total peace with your decision. It is like a great pair of leather shoes, or a really good bra...you forget your wearing a hairpiece until I said something! When I first wore my hairpiece out to our friend's pool party, all the girls thought my hair had grown back! You will love it! Excited to see your pics!

At 9:59am on November 26, 2011, Jennifer Krahn said…

Hi Leslie,
Thank-you! You will LOVE your Freedom Wig...I do! I wear it to do everything...they are beautiful, natural and best of all...Comfortable!! So excited for you!!!!! Post pictures once you have it styled!

At 6:27pm on November 25, 2011, LeslieAnn Butler said…

Hi Leslie!
I had both my eyeliner and eyebrows tattooed several years ago and I would NOT recommend it.

First, the eyebrows never looked natural. The ink spreads out and the hairs never look fine enough. Then, you have to continue to do it about every two years because it fades. Oh, except for the part that turns blue and never fades! So I use temporary eyebrow tattoos which are really natural looking, can last for days, and are affordable. You can get them at www.beauti-full-brows.com.

The eyeliner tattooing was a horribly painful experience with the needle going in my eye (and this was an experienced technician) which also faded. So for eyelashes, I just use a lot of eye makeup for every day -- a smoky eye is a good camoflage as well as bangs (you can find out step by step how to create that look in my book), or for dates, photos and when I know people will be looking at my eyes, I do false eyelashes (also step by step guide on which ones are the best, how to trim, how to put them on, clean them, etc in book).

That being said, I know a lot of women who like their tattooed brows, but I have never seen any that look natural enough for me.

Does that help? Do you have more questions? I am happy to help!

At 8:59pm on November 21, 2011, Imaxtrading said…

Hi,

I never had any hair loss until some stupid doctor told me to take DHEA. I took DHEA for 6 months which caused my hair loss. I tried everything until I read that link which I posted. After reading everything I could about Gerovital on Google I concluded it was not a scam and could work. After about 7 or 8 months taking Gerovital shots my hair started to regrow. Gerovital works on your whole body. Before you start taking the shots (not pills) write down all of your problems, Gerovital will cure most of them. After my first 4 week cycle I saw my skin improve dramatically. Then during my second cycle my sex drive improved, then my chronic fatigue improved. My anxiety which prevented me from drinking coffee also improved, today I drink coffee all day. I was so happy with Gerovital that I was not upset that my hair loss did not improve until around the 8 month when I realized my hair regrowth. To cure alopecia you have to cure your body as a whole, especially your nervous system. Thats exactly what Gerovital does, it is not directed specifically at your hair. I only take 7 shots per cycle, 1 shot then a 3 day interval. 1 cycle is 28 days, then I take a 14 day break and start again. 3 shots per week is to much (what is instructed), might be ok if you are 80 years old with very low metabolism. Good Luck !

 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2014   Created by Alopecia World.

Badges  |  Report an Issue  |  Terms of Service