Susan Innes
  • Female
  • Waunakee, WI
  • United States
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Susan Innes's Discussions

Anyone aware of Harold Battiste Jr., New Orleans Jazz Musician?

Started Nov 16, 2011 0 Replies

Hi- Someone special is featured in AARP magazine, November 2011 issue. His name is Harold Battiste Jr, a New Orleans jazz musician who at the age of 80 is still actively participating in his music.…Continue

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Latest Activity

Heather left a comment for Susan Innes
"Thank you so much for the great message...I am very blessed in my life now...Dealing with AU has been a very big challenge...I am 29 and I have been with my husband for 4 years married 1 year now and we have 2 beautiful children a girl 3 in July and…"
May 26
Susan Innes left a comment for Heather
"Hello Heather - Glad to have you in the Wisconsin group. Alopecia may not be life-threatening but it can leave us feeling like a shell, and I'm not sure that we ever win the war. Fortunately, there are small battle victories which keep us…"
May 25
Heather joined Susan Innes's group
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Alopecians in Wisconsin.

A group for Wisconsinites to meet and greet. We also welcome Wisconsinite friends and folks who have been here and love our state as we do. Remember if you don't have anything kind to say about our Midwest accent, best not to say anything at all:).See More
May 25
Josh and Kiah commented on Susan Innes's group Alopecians in Wisconsin.
"Jean, I wish I would have known you were there! I would have made a point to say hi! Glad you could make it. I thought the girl scouts did a great job and from the sounds of things the event was a huge success. This brings me to the next event. My…"
May 24
Susan Innes commented on Susan Innes's group Alopecians in Wisconsin.
"Rose, thanks for including us. I won't be able to attend an evening meeting but please let me know if there is something else that I can do from the Madison area. I didn't see this on the August NAAF calendar; have you notified them of the…"
May 23
Rose Wickler commented on Susan Innes's group Alopecians in Wisconsin.
"Hi everyone. Dubuque, Iowa's first NAAF Alopecia supprot group meeting will be held Thursday, August 2 from 7-9 in Mercy Medical Center conference room 1-F. Our first meeting will be sharing stories and meeting everyone. Dubuque, IA is across…"
May 23
Susan Innes left a comment for Mark
"Hi Mark - My family is from Brainerd, MN, which I'll be visiting in August. You'll see from my profile that I'm trying to track the alopecia with 2 uncles (AU in their late 40s) and other family members now afflicted. When were you…"
May 21
Jean commented on Susan Innes's group Alopecians in Wisconsin.
"Hi Josh and Kiah, My husband and I attended the Bowl-a-thon. Even though we didn't bowl and only stayed for a short time, I was super impressed with the event! We ended up with several of the auction items. Everyone there seemed to be having a…"
May 8
Susan Innes left a comment for Josh and Kiah
"Hello Josh and Kiah - A donation for the Bowl-A-Thon is being mailed to NAAF this week. Although a friend and I were planning to attend the event yesterday, storms were passing through during the morning (close to leaving time) so we decided it was…"
May 7
Susan Innes commented on Susan Innes's group Alopecians in Wisconsin.
"Hi Josh and Kiah - Thanks for letting us know! Hope a friend and I can make it...as well as many others. I will take a peek at the NAAF website now."
Apr 27
Josh and Kiah commented on Susan Innes's group Alopecians in Wisconsin.
"Here is the info passed along to me about the Bowl-a-thon. "
Apr 23
Susan Innes commented on Alopecia World's group Alopecia Universalis
"Dad- It still baffles me that our society places so much emphasis on hair. I dearly love the people on this site who have become a family of compassionate, courageous, extraordinary human beings, very adept at functioning within a world that…"
Mar 31
Susan Innes commented on Susan Innes's group Alopecians in Wisconsin.
"Leenda - Very sorry to hear about your son's diagnosis but we do become stronger through friendships. Thanks, Josh and Kiah, for the fundraising information; I hope some of us can be there. With relatives in the Milwaukee area, I'll…"
Mar 29
Leenda commented on Susan Innes's group Alopecians in Wisconsin.
Mar 29
Josh and Kiah commented on Susan Innes's group Alopecians in Wisconsin.
"Hello all, I just wanted to share some information I have about a couple of events that will be going on in our area in the coming months. First, I have been talking with a girl scout troop leader in Brookfield who is planning a Bowl-a-thon to…"
Mar 29
Leenda commented on Susan Innes's group Alopecians in Wisconsin.
"My son was just diagonosed. It's a big sigh of relief to know that others in Wisconsin are sharing our same story."
Mar 29

Profile Information

Relationship Status:
Single
About Me:
Retired art educator and medical transcriptionist. Interests include figure skating and oil painting (animal portraits and ACEOs sold on eBay - SIT ACEO) Business email address: dusterdogbooks@att.net. Shih Tzu rescue. Attended 8 NAAF conferences since 2002. Recently widowed after 44 years of marriage.
SEEKING: Family Genealogy: Surname of DENIS. Tracking AU in family tree.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (33 comments)

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At 8:31am on May 26, 2012, Heather said…

Thank you so much for the great message...I am very blessed in my life now...Dealing with AU has been a very big challenge...I am 29 and I have been with my husband for 4 years married 1 year now and we have 2 beautiful children a girl 3 in July and a boy he is 7 months....He loves me for who I am and supports me through ....He is basically my support system and my sister and sister in law and that's about it...My mom well...that's a long story..She just says this is what you have and get out of denial....SO...after 11 years of this condition it is hard and I have to find it in myself to find it in my heart and soul some where that this is me..But, not having the support that I really needed I think that's the problem....So, I am trying...I thank God every day that I am not dying or anything like that...And that some one actually loves me for who I am is the greatest feeling in the world....I know some day...I will find it in myself and get to where I need to be....=)

At 5:26pm on March 25, 2012, Nicole said…

I agree, although after my first visit to this site it really hit me that I HAVE ALOPECIA!! I think I was in a bit of denial before. I was always looking to when my hair would come back instead of accepting that it is gone. Its still difficult but I'm getting stronger with time.

At 5:07pm on February 6, 2012, Rose - shaving and wigging said…

You're welcome! I don't know what my avatar puppy's breed is. I found the pic online.

At 5:10pm on January 30, 2012, Deborah said…

Hello Susan thank you so much for your lovely message.nice to know that I am not alone with this.it sure can get to you.I some time's say why me but on the over hand why anyone.whish it would grow back but have been told that will never happen .I was scanning ebay this evening they have what they call a thin skin full lace wig on the but it cost some.looked good it was indian hair around £500.00 it was for a small head as well witch came as a shock.really wanted to get it but it's alot of money.think I will have to save for it.will let you no if I find anything,until then do take care and thank you god bless

At 2:35pm on January 29, 2012, Deborah said…

Hello Susan
Thank you for your message I have alittle hair on top witch I do shave because it become's sore.the lace wigs I am fine with.it's the cost I have spent so much on so call human hair lace wigs you would be shocked.I have even gone out of my own town.gone with out food and all sorts.can not look at myself do not have a partner because of my hair loss so very much alone..if you no anyone you can put in in touch with to make me a wig I would be so greatfull.by the way I have a small head but a big heart

At 2:17pm on January 2, 2012, Tallgirl said…

Nope. Wore Sandy NYEve and to work the 1st, and will test drive Rizzo soon. No work scheduled yet, but I will print out the syllabus and get started on assignments at the college tomorrow for my class. Must go to some personnel agencies or network...but at least some friends came to my financial rescue this holiday, George Bailey Style. The NYEve friend lives 40 minutes away, and my local friend may go out-of-state this week, so I will be on my own!

At 1:26pm on January 2, 2012, Tallgirl said…

Hope your start to the new year was reflective and peaceful. I ushered it in at the home of someone from my hometown (high school, church), and we got to talk like sisters. Felt good.

At 8:06am on December 14, 2011, godfreygirl143 said…

Hi Susan...thanks for the compliment. Your dogs are darling. My puppy is a rescue too...her mamma was rescued and she had 4 pups...I adopted my Missy and they drove her 199 miles to get her to me. No I haven't tried any hats or scarves. I've never been a "hat person"....don't think I've ever wore one. Hey...we're almost the same age but I have a couple of years on you. As soon as I can afford it I'm going to get me some cute turbans, hats and so on. Yes I do need to get out more. I did when the hair loss wasn't so bad, but when it got to having to wear a wig all the time, I'm not dealing with it as well. Haven't been to the gym in ages. I've just GOT to get a grip on this thing for my own good. The combination of the hair loss and the weight gain has kept me in even more. I have a whole closet full of clothes that don't fit...even my underwear (blush) doesn't fit anymore...so that keeps me in even more. I think I'll get a LOT of help and encouragement here. I have already and it's helping a bit...but I just joined. You have a great day and thanks for writing.

At 10:14pm on December 4, 2011, Jean said…

Hi Susan,
I received your invite to Wisconsin Alopecians. I am the mother of a young women with alopecia. Where do you meet and what dates? I am interested in possibly joining the group. It would be nice to talk to other mothers who have experienced their child's journey with this disease.

At 7:26am on December 3, 2011, Natalia said…

Hallo Susan,
thank you very much for your good warm message. You gave me a very good advise. I felt myself very often alone ,I was sitting very often about my problem, but I decided to begin another life now. I will make my life more interisting and be more aktive, maybe I will find Mr Right also, If not, I will be happy alone.
I saw you photos and I found you are a very nice woman. I think, it was also a large problem for you at the beginning when you have lost your hair, but you have managed this problem, I must manage this problem too.
I was in your country 1 year ago, I was in California.
Best wishes from Duesseldorf,
Natalia

 
 
 
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