"Thanks for all your comments Beth -
this is all so interesting - and i am going to continue to check and change all the things \i am doing as like you I am convinced that diet is a major part of my problem - have just discovered that mushrooms are a…"
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Article in the press
Started this discussion. Last reply by Michelle Jul 6, 2010. 3 Replies 0 Favorites
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Ali T commented on Galena's blog post Healing Haiku"Bald is not for me
People stare - cancer they see
Wigs let me be me"
Michelle replied to Ali T's discussion Article in the press"Hi yes. Someone posted something about it yesterday. I read through it but it is all Greek to me. they said that they hope to do clinical trials soon. But i don't have to much hope for the people(me included) in south-africa."
Maritza Stern replied to Ali T's discussion Article in the press"Can you post where we can find the article online? Interesting news."
Ali T replied to Beth Martof's discussion Celiac Disease/Alopecia Relationship?"Wow this is so interesting - I came to a similar conclusion (about diet) a couple of months ago and have been trying to manufacture my own diet that will be good for me. have cut out refined sugars and breads (yeast being muted as a common problem)…"
Ali T posted a discussionArticle in the press
There has been a small piece in the English press about someone finding proteins in human blood that cause alopecia and that they are hoping they can start clinical trials - has anyone else seen this or heard of the trials?
margaret watson left a comment for Ali T"Don't suppose you would like to come wwith me to B'ham tomorrow afternoon to their coffee afternoon. I'm passing your door and could collect you on route? (tuesday 4th Aug)
Margaret"
Profile Information
- Relationship Status:
- Married
- About Me:
- I am married and had alopecia for about 3 years now - still hoping to find out why...
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (10 comments)
- At 6:35am on August 3, 2009, margaret watson said…
- Don't suppose you would like to come wwith me to B'ham tomorrow afternoon to their coffee afternoon. I'm passing your door and could collect you on route? (tuesday 4th Aug)
Margaret
- At 8:47am on May 17, 2009, margaret watson said…
- Hi, I’m trying to arrange a get together this coming Saturday 23rd May. Can you meet up? When I find out who can make it I’ll arrange a mid way meeting place. I’m from Exeter – please let me know which town you coming from. I can’t wait to (at long last) meet others in the flesh who have alopecia. Margaret xx
- At 5:39pm on February 4, 2009, Julie said…
- Hi Ali great to hear from you. Jules
- At 12:32am on January 10, 2009,
Rose Marie' said… - Hi
If you go and have a wee looksee at the following webpages you will be able to get a good idea of what Freedom Wigs are like.
You might also like to pop into Fitzy's and Cherylnz's page here. They have worn the Freedom wigs for over 10 years. Just nice to talk to others including me.
The website for Freedom Wigs is www.freedomwigs.com. While on the site go to the 'contact us' page and have a look at the sites of out agents around the world. Karen Peteriks www.newlifehair.com has some good piccies to have a look through. Her site also has the Freedom Newsletters which you might also find helpful. All the international agents have their own sites. So, spend a little time looking through them all.
There are three Agencies in the UK. I would ring all three and have a chat to them. I feel it's always important to get a good rapport with your Agent of choice. (They are all lovely so it might come down to whoever is closest) I just think it is helpful to talk to someone in your own country. They will have information on NHS help etc. and they will be able to tell you exact pricing etc.
Good luck with everything. I hope this helps.
Rosy
I won't be around much on AW in the next two weeks as I am about to go overseas. So, if you contact me and I don't answer I'm sorry but I won't have my computer with me.
Take care
- At 1:13pm on January 9, 2009,
LeslieAnn Butler said…
- Sweetie, let me know how you like it, and keep me up on how you are doing, okay?
Hugs!
- At 2:15pm on January 8, 2009, Rose Marie' said…
- Hi Ali
Yes, there are wigs you can buy that you can put up in to a ponytail. Freedom Wigs are the wigs of choice for my daughter and I. Pop into my page and have a look. My daughter wears her long hairpiece in a pony, or pigtails or plaits about every second day. They look great. If you'd like any info just drop me a comment and I'll pass on webpages etc.
- At 8:01pm on January 1, 2009,
- Hi Ali,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. You can find out more about it on my page -- and let me know how else I can help.
LeslieAnn
- At 2:58am on December 31, 2008,
Cheryl, Co-founder said… - Hi Ali, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
- At 10:23am on December 30, 2008,
3wwasha said… - Hello,
Welcome to Alopecia world.
Aysha
- At 6:56pm on December 29, 2008,
rj, Co-founder said… - Hi, Ali. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
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