" It’s late here in Chicago and I had decided to start dictating these posts versus typing on my phone. So I hope that the typos/AutoCorrects that I didn’t proof for have, if nothing else, given you a laugh :-) I do actually…"
"As far as medications are concerned, I believe that the best thing going right now is treatment with Accutane. Jess shared a research study out of Poland back in October and after taking Accutane for one year and then stopping for one year.…"
"I believe that there is a genetic predisposition to this disease. I believe that there is at least one environmental trigger to this disease, namely chemical sunscreen. Chemical sunscreens are known endocrine disruptors and I believe…"
"I have been writing a terribly long post and see more of you all chiming in. Such a truly good group of women!! I have to send my reply in parts as it’s so long. So much to say! I do apologize for the lengthiness but wanted to share and…"
"I really thought the Dutasteride was helping. I went all year without losing much more that I originally had. I also believe in Rogaine. I had to go to the emergency room about a month or so ago during a very stressful time and I…"
"Hi all, I too have been a vigilant user of sunscreen both in make up and general sunscreen for the body, have now gone out and bought one from the health food shop that is a zinc based one. In the last week I have noticed my skin is developing…"
"Sadly, no improvement since stopping using SPF creams! I think the once FFA is ‘triggered’ you need to wait until it ‘burns’ itself out! Oh, that they can find something else to ‘trigger’ a reversal of hair loss!!!"
I was going over recent research and came across this article: Ultraviolet filters in hair-care products.
It basically says that various types of sunscreens are used in a lot of leave-in hair products and color-protectant shampoos…"
"Jess, I had found an article re facial papules in FFA and isotretoin (“accutane”) use shortly before the publishing of the one from Poland using isotretoin and good success halting FFA that you shared with us last October. I will attach…"
"Wow. This was an "aha" moment for me, too. I have used SPF 100 on my face for years. I never had connected it with my hair loss and recent diagnosis. I will stop tomorrow. Has anyone noticed an improvement in hair since…"
"We had this conversation in this group a couple of years ago. There were two dermatologists at the hair conference who, without a lick of evidence, declared spf the source of our issues. Not just my regular dermatologist, but Dr Bordone,…"
"I used a moisturiser with sunblock for years before diagnosis but sunblock used elsewhere hardly ever. I lost
leg and arm hair also. My dermatologist is one involved in this research. The result was inconclusive. I do not use sunblock any more…"
"Hi Rachel,Me too, super sensitive skin and very prone to allergies, food intolerances. Since stopping eating dairy the eczema I had all my life has disappeared. I'm also gluten free now and feel much happier, less bloating, skin a lot calmer.Liz"
"Hi Ladies, I have suffered with eczema all my Life, until I moved to Germany I uses Aqueous Cream all oder. On moving to Germany at the age of 26 I turn started to use Eucerins Intensiv Lotion F. I have only ever used sun screen in…"
I am a 50 y o female dx'd with FFA 1/2016. Devestated, like everyone with this disease which I look back and realize was in progress for at least 1.5 years starting with brows and progressing to both temples rather swiftly shortly before dx. History of autoimmune disease of Raynaud's with fingers and toes since later teens, and bad migraines since age 16. Interestingly had mono (Epstein-Barr virus) age 16. Wondering if that started all my autoimmune issues as well as migraines. Intense stress of son having a sudden cardiac arrest in 2012 (survived it well!!) and intense work stress as a nurse since about 2013 contributed? No known family hx of alopecia though there are autoimmune issues both sides of the family. I have an incredibly supportive husband as well as sister who has been my hero in navigating things from physical to mental since dx. I see a derm in Chicago who specializes in hair loss and I think she is great. She also offers an alopecia support group quarterly. Treatment-wise... Plaquenil 200 BID since bx confirmed in 1/2016. Biotin; Iron also as I have anemic hx. Vivisacal for about a year. Topical steroids Fluocinanide since dx adding clobest.... sp... for past 6 months. Off them since 5/17 when I noticed flare includes progression at top of forehead and skin too thin to continue steroids :( Added Tacrolimus topical, Finasteride 1mg and Doxy. Have been on Vit D 4000IU for years. Oh, I got microblading of my brows done 1 yr ago. Huge boost to my self-esteem...highly recommend. The mental lows are terrible and I am ready to seriously investigate hair pieces people are talking about with hopes someday of the disease stopping so i can get a transplant. I, like most or all hair loss patients, desperately want research to happen and yield a treatment! Whew that's a big gush of info ! Appreciating this site for commraderie in this crappy hand we have for some reason been dealt!
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