Jess
  • Female
  • Stillwater, OK
  • United States
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  • pauliegirl

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Latest Activity

Overthis2018 replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Cranwell_et_al-2018-Australasian_Journal_of_Dermatology.pdf This case study describes total regrowth after stopping sunscreen use on the forehead.  A quick Google Search shows there has been a lot of research in this area over the past couple…"
Thursday
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"AnnieMay, did you mention before that you used Retin-A? I think in the notes provided about the CARF conference, Retin-A and laser treatment (I'm assuming IPL or V-beam) were recommended. I'm still exploring options myself and am curious…"
Jul 15
Jess replied to CurlyK's discussion CARF Conference 2018 Notes in the group Frontal Fibrosing Alopecia
"Thank you for taking the time to write this up and share it!"
Jun 13
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Thanks, BubbaLu! I'll check it out."
Jun 6
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi All, Has anyone else noticed an increased sensitivity to sun? I recently went on a trip that included visiting Black Canyon City, AZ to see Saguaro cacti (super cool!). I was not in the sun much, but did spend about 10 minutes taking pictures in…"
Jun 4
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi, Lynn555. Here's an article about how FFA can have different presentations. There's the classic presentation with the frontal band at the top and sides of the hair line, there's the frontal band loss, along with diffuse loss), and…"
May 16
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Pauliegirl- I wish! He seemed reluctant to code my last appointment as being for rosacea since I also inquired about the isotretinoin for the bumps. I think the only reason he did was because he ultimately only prescribed medicine that's…"
Apr 29
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Pauliegirl- I have a couple questions about your Accutane use. What is your dosage? Are the side effects still manageable? Last time I asked, I think you said you weren't really having any. Finally, and most importantly (to me : )), are you…"
Apr 24
mc replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Could it be that new chemicals have been have been added to sunscreens over ther recent years?"
Apr 10
Beez replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Interesting but it's ONE person.  In my hand now I have a bottle of the sunscreen I had used for 25 years. It has no titanium or titanium products listed on the label.  and I rarely used it on my forehead (always wear hats).  At…"
Apr 3
Mel replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Whoa. Very interesting. i didn’t understand why they might link FFA to sunscreen but studies like this would explain it. I use all non-nano zinc oxide now though one “Kiss My Face” product in my cupboard has 6% non-nano titanium…"
Apr 3
Pascal replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"My sunscreen also contains titanium oxide, a few days ago I posted it. I used it abbundantly over the years."
Apr 3
Jess added a discussion to the group Frontal Fibrosing Alopecia
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More Tentative Evidence of a Cause: Sunscreen/Titanium

I just thought some of you may be interested in the article that will soon be published. It is a case study of one woman with FFA. They analyzed her hair and found titanium nanoparticles in the shaft. This chemical is found in many sunscreens and other cosmetics. The article is attached.…See More
Apr 2
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"@Pauliegirl. Yes, I thought titanium was safe as well, along with zinc. I was a little confused by the findings. I have also been looking for a safe sunscreen. I think EWG rates titanium oxide as fairly safe, like a 3. Maybe I will stick just zinc…"
Mar 31
Jess replied to Torgal's discussion Eyebrow regrowth in the group Frontal Fibrosing Alopecia
"Microblading is on my radar. There are two main reasons I hold back: 1) I've had a lot of skin issues (little bumps, wrinkling) that I think are related to FFA. I also have rosacea. I want to get the skin issues cleared up first because I know…"
Mar 31
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"My post to the forum is awaiting approval, so I thought I would add it in both place, since there is talk of it. A new article just came out that showed titanium nanoparticles in the hair shaft of a woman with FFA. Just a case study, nothing…"
Mar 31

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Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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