Jess
  • Female
  • Stillwater, OK
  • United States
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  • pauliegirl

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Latest Activity

Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"Pauliegirl- I have a couple questions about your Accutane use. What is your dosage? Are the side effects still manageable? Last time I asked, I think you said you weren't really having any. Finally, and most importantly (to me : )), are you…"
14 hours ago
mc replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Could it be that new chemicals have been have been added to sunscreens over ther recent years?"
Apr 10
Beez replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Interesting but it's ONE person.  In my hand now I have a bottle of the sunscreen I had used for 25 years. It has no titanium or titanium products listed on the label.  and I rarely used it on my forehead (always wear hats).  At…"
Apr 3
Mel replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Whoa. Very interesting. i didn’t understand why they might link FFA to sunscreen but studies like this would explain it. I use all non-nano zinc oxide now though one “Kiss My Face” product in my cupboard has 6% non-nano titanium…"
Apr 3
Pascal replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"My sunscreen also contains titanium oxide, a few days ago I posted it. I used it abbundantly over the years."
Apr 3
Jess added a discussion to the group Frontal Fibrosing Alopecia
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More Tentative Evidence of a Cause: Sunscreen/Titanium

I just thought some of you may be interested in the article that will soon be published. It is a case study of one woman with FFA. They analyzed her hair and found titanium nanoparticles in the shaft. This chemical is found in many sunscreens and other cosmetics. The article is attached.…See More
Apr 2
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"@Pauliegirl. Yes, I thought titanium was safe as well, along with zinc. I was a little confused by the findings. I have also been looking for a safe sunscreen. I think EWG rates titanium oxide as fairly safe, like a 3. Maybe I will stick just zinc…"
Mar 31
Jess replied to Torgal's discussion Eyebrow regrowth in the group Frontal Fibrosing Alopecia
"Microblading is on my radar. There are two main reasons I hold back: 1) I've had a lot of skin issues (little bumps, wrinkling) that I think are related to FFA. I also have rosacea. I want to get the skin issues cleared up first because I know…"
Mar 31
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"My post to the forum is awaiting approval, so I thought I would add it in both place, since there is talk of it. A new article just came out that showed titanium nanoparticles in the hair shaft of a woman with FFA. Just a case study, nothing…"
Mar 31
Jess replied to Torgal's discussion Eyebrow regrowth in the group Frontal Fibrosing Alopecia
"I haven't. I use it on my hairline thought. My brows have been totally gone for about 2 years now, maybe longer. I'm not sure that there's any hope for regrowth at this point. Although, I guess I have nothing to lose."
Mar 31
Jess replied to Torgal's discussion Eyebrow regrowth in the group Frontal Fibrosing Alopecia
"This really makes me wish I would have acted sooner. I didn't seek treatment until all of my eyebrows were gone. After my thyroid test came back normal, I just kept telling myself it was a phase...a very long phase. When I was finally seen by a…"
Mar 30
Jess commented on Celia UK's group Frontal Fibrosing Alopecia
"AnnieMay, a study was just published that reports a link between FFA and rosacea. I also have rosacea. It was at its worst about 18 months ago. My cheeks were flushing and super hot for no reason almost every evening. It seemed to have calmed down…"
Mar 19
Pascal replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"I begun loosing my eyebrows six months before I had my first ever missed period; I tested the hormons and the levels are still normal, but I'm in perimenopause (my FSH is high), I'm pretty sure that FFA is somehow connected to the…"
Mar 17
Marytee liked Jess's discussion Low Estrogen and Tamoxifen as Risk Factors
Mar 17
Beez replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"If the vast majority of women who have true FFA (by biopsy) are menapausal, then there is clearly a link. My doctor said "oh for sure they are connected, they just haven't found the connection yet." "
Mar 16
Plf replied to Jess's discussion Low Estrogen and Tamoxifen as Risk Factors in the group Frontal Fibrosing Alopecia
"Arrrgh!  Not fair, you were far to young...doesnt life hand out challenges"
Mar 16

Profile Information

Relationship Status:
In a Relationship
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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