SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Discussions

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Kevin, Thank you so very much!  I am seriously thinking about trying Xeljanz and had no idea where to begin in terms of ordering and/or from whom to order.  I will definitely add you as a friend.  Again, I very much appreciate your…"
Friday
SabineTawni replied to Jim In Cali's discussion Pfizer Trial
"Again, another trial that excludes older people.  I am 72 and really resent the age discrimination factor in these medical trials.  Before someone chimes in with "But they are worried about the effects on people over a certain age…"
Thursday
SabineTawni and San are now friends
Jan 4
SabineTawni replied to San's discussion Received my tofacitinib tablets
"Thank you for your kind response, San.  I will definitely be following you online and, most likely, asking you questions.  Again, I am wishing you every success in your battle against this frustrating condition."
Jan 3
SabineTawni replied to San's discussion Received my tofacitinib tablets
"San, Very glad that you received your shipment, and I wish you every success with it.  I have been with Alopecia World for some years now.  Unfortunately, I rarely get any response or feedback to my questions or concerns.  I am 72…"
Dec 29, 2020
SabineTawni replied to nexoo's discussion pf-06651600
"I am just wondering whether or not getting into these clinical trials involves an age limit.  I am 72 years of age, and I would like to enter one of these trials (e.g. CTP 543, Xeljanz, etc.).  I really get fed up with some of these trials…"
Nov 13, 2020
SabineTawni replied to Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
"Very interesting post!  The old mantra, "It's not medically necessary", from insurance companies comes into play once more.  Funny thing is, they cannot even define "medically necessary".  However, insurance…"
Aug 28, 2020
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"What were the side effects, Anna?  I also always wondered if my AU was triggered by menopause (I had my last period at age 54).  However, I never had any side effects from menopause whatsoever--no hot flashes, no night sweats--absolutely…"
May 7, 2020
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"The only medication that I am on is Zoloft, and I started taking that at age 42.  I have been on it consistently since then and am on it still.  I saw some posts about nutritional changes that you implemented.  Can you direct me to…"
May 5, 2020
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"Very similar to my experience, Anna.  However, I first noticed diffuse alopecia at age 60.  Then it became advanced at age 65, and within about 2 months everything was gone, exactly in the order that you described.  Funny, because my…"
May 4, 2020
SabineTawni replied to Nicolas's discussion The cure!!!
"So true.  Do you. have any idea roughly what a stem cell treatment might cost? Just wondering."
Apr 15, 2020
SabineTawni replied to pablonitro's discussion Alopecia,the immune system & coronavirus
"Same here, Jessica.  I don't get sick either."
Apr 15, 2020
SabineTawni replied to Nicolas's discussion The cure!!!
"I agree, Danielle36, that it is not a very optimistic way to look at it.  But it is a realistic way to view it in light of what I have seen with Big Pharma and insurance companies who are. simply interested in making profits."
Apr 14, 2020
SabineTawni replied to Nicolas's discussion The cure!!!
"But when it does become available, no one will be able to afford it, and insurance companies will refuse to cover it."
Apr 12, 2020
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am so sorry, Merry.  It is absolutely appalling that insurance companies insist on giving alopecia areata the short end of the stick!  WE HAVE A REAL DISEASE!!  When you have AU like we both do, you are literally stripped of a part…"
Mar 18, 2020
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
""If you are criticised by friends and family for continuing to use Jak inhibitors you can truthfully say that not having hair can be detrimental in viral outbreaks- eye lashes, eyebrows, scalp hair and facial hair can inhibit bacteria and viral…"
Mar 17, 2020

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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