SabineTawni
  • Female
  • Boalsburg, PA
  • United States
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SabineTawni's Discussions

Xeljanz Question

Started this discussion. Last reply by Maris Feb 18, 2019. 5 Replies

I have a question about Xeljanz.  Is Xeljanz an immunosuppressant drug?  If so, isn't that dangerous?  How, if it is an immunosuppressant drug, is it any different than prednisone?  I really know…Continue

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Latest Activity

SabineTawni replied to nexoo's discussion pf-06651600
"I am just wondering whether or not getting into these clinical trials involves an age limit.  I am 72 years of age, and I would like to enter one of these trials (e.g. CTP 543, Xeljanz, etc.).  I really get fed up with some of these trials…"
Nov 13
SabineTawni replied to Suzie's discussion Blog from HerAlopecia Forum - I found this blog very interesting.....
"Very interesting post!  The old mantra, "It's not medically necessary", from insurance companies comes into play once more.  Funny thing is, they cannot even define "medically necessary".  However, insurance…"
Aug 28
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"What were the side effects, Anna?  I also always wondered if my AU was triggered by menopause (I had my last period at age 54).  However, I never had any side effects from menopause whatsoever--no hot flashes, no night sweats--absolutely…"
May 7
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"The only medication that I am on is Zoloft, and I started taking that at age 42.  I have been on it consistently since then and am on it still.  I saw some posts about nutritional changes that you implemented.  Can you direct me to…"
May 5
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"Very similar to my experience, Anna.  However, I first noticed diffuse alopecia at age 60.  Then it became advanced at age 65, and within about 2 months everything was gone, exactly in the order that you described.  Funny, because my…"
May 4
SabineTawni replied to Nicolas's discussion The cure!!!
"So true.  Do you. have any idea roughly what a stem cell treatment might cost? Just wondering."
Apr 15
SabineTawni replied to pablonitro's discussion Alopecia,the immune system & coronavirus
"Same here, Jessica.  I don't get sick either."
Apr 15
SabineTawni replied to Nicolas's discussion The cure!!!
"I agree, Danielle36, that it is not a very optimistic way to look at it.  But it is a realistic way to view it in light of what I have seen with Big Pharma and insurance companies who are. simply interested in making profits."
Apr 14
SabineTawni replied to Nicolas's discussion The cure!!!
"But when it does become available, no one will be able to afford it, and insurance companies will refuse to cover it."
Apr 12
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I am so sorry, Merry.  It is absolutely appalling that insurance companies insist on giving alopecia areata the short end of the stick!  WE HAVE A REAL DISEASE!!  When you have AU like we both do, you are literally stripped of a part…"
Mar 18
SabineTawni replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
""If you are criticised by friends and family for continuing to use Jak inhibitors you can truthfully say that not having hair can be detrimental in viral outbreaks- eye lashes, eyebrows, scalp hair and facial hair can inhibit bacteria and viral…"
Mar 17
SabineTawni replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole, So if a shipment is seized/destroyed, what happens then?  Do you get a refund of the money you paid back?"
Feb 23
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Please keep us posted concerning what your attorney says."
Feb 2
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"First of all, alopecia areata and psoriasis are not "cosmetic".  They are real autoimmune diseases that have real health consequences (both physical and mental).  Secondly, insurance companies have always covered…"
Jan 24
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I would also like to know if our disease is "cosmetic", why is eczema and psoriasis not cosmetic?  Hair serves a function other than just providing a normal appearance.  Just ask anyone with AU what it is like to have no hair…"
Jan 2
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"What I do not understand is that insurance companies will usually cover the cost of wigs for cancer patients, but do not cover wigs for Alopecia Areata patients.  Why???   Hairloss from cancer treatment is very short-term and temporary.…"
Jan 2

Profile Information

Relationship Status:
Married
About Me:
67-year-old female with alopecia universalis which began as alopecia areata at age 24. Never needed treatment as it only involved one spot every 5 or 6 years, and the hair always grew back by itself. Then about 7 years ago, a spot formed, then more and more spots, eventually leading to alopecia universalis. After 3 years of universalis and no treatment during those 3 years, the hair is slowly coming back by itself. Very unpredictable disease!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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