spoilmygurl
  • Female
  • Indianapolis, IN
  • United States
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Spoilmygurl's Friends

  • Sami
  • SabineTawni

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Latest Activity

Sami and spoilmygurl are now friends
Apr 8, 2022
SabineTawni left a comment for spoilmygurl
"Thank you for the Friend Request!  Delighted to have someone I can ask questions about Xjelanz.  No, I do not currently take it or have I ever taken it.  But, I am thinking about the possibility of trying it.  What a frustrating…"
May 19, 2021
spoilmygurl replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"I didn’t think we were allowed to sell on here. Otherwise I would’ve offered them up a long time ago. "
May 12, 2021
spoilmygurl replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"I was on Xeljanz for almost a year. Stopped December 2020. Went from 10mg/ day to 20mg/ eventually. Never grew a single strand of hair. I got it for free through the Xelsource program. I was so convinced it would work, I purchased 10 boxes of…"
May 2, 2021
spoilmygurl replied to NicoleT's discussion Xeljanz from India
"Ryan are you still waiting for a reply? I paid around April, package supposedly shipped in May but the tracking never showed anything other than “left Dakhar”.  After several ignored emails to Mouree in the past 2 months (the most…"
Nov 14, 2020
spoilmygurl replied to NicoleT's discussion Xeljanz from India
"It feels like I’m the only one who still hasn’t received their package. I sent payment 5/15/2020 knowing shipping was down due to COVID-19. Mouree emailed me 7/14 to tell me shipping resumed and sent a photo of my package with tracking.…"
Aug 24, 2020
spoilmygurl replied to NicoleT's discussion Xeljanz from India
"I sent my wire to Beacon on 5/15/20. They emailed me to confirm the payment and paperwork and said to wait about a week for EMS shipping to resume. After the week passed with no follow-up, I emailed to ask for an update. The reply was they expect to…"
May 31, 2020
Mishkatty replied to spoilmygurl's discussion Thinking FFA might be my new normal in the group Frontal Fibrosing Alopecia
"Hi I’ve just been diagnosed and I lost eyebrows but not eyelashes, arm and leg hair, still have underarm and vagina hair but this is also thinner, front hairline is thinning too. Still waiting for biopsy for a final confirmation but fairly…"
Oct 19, 2019

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 9:07am on May 19, 2021, SabineTawni said…

Thank you for the Friend Request!  Delighted to have someone I can ask questions about Xjelanz.  No, I do not currently take it or have I ever taken it.  But, I am thinking about the possibility of trying it.  What a frustrating condition!  However, I thinking having to deal with doctors who don't have a clue about it is even worse (LOL!).  I guess we are just not "lucrative" enough for Big Pharma to offer any real help.  Will be in touch if I have any further questions.

 
 
 

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