Hello Ria - There is a new group for Wisconsinites in AW called "Alopecians in Wisconsin"; we'd love to have you join us. If you're still in Madison, we are not far apart..I'm in the Town of Westport (between Madison and Waunakee). Love to hear how you and your little boy are doing. Susan
hey sorry it's been so long. but you're moving to beloit? thats awesome. and i just get very good support from friends and family. but knowing another person that has it is always the best way to cope. let me know when you're in beloit. :)
Hi that would be cool.. I actually have a full lace wig.. I got it from RPGshow.com. I really like how realistic the lace wigs are.. I am looking into ordering another one from Mslola.com. All of my pictures on my page are my lace wigs..
Thanks for the friend request.. We are only like an hour an a half away.. I have been dealing with AA since I was 16 and I am now 28. For me, it seams like one day will be ok and the next I just wish I was "normal" and had hair again.. It's a never ending battle..
What kind do you buy? How much about? I have one its a 100% human hair, I don't know if I like it. It seems so thick and gets tangled easy. I want to dye it but I am nervous it will get ruined. I spent way to much money on it. I only lost hair on my head that is all, just patches at a time.
Hello and welcome, Maria!
I know how hard alopecia can be; I have had it for about 30 years. I don't have any eyelashes and eyebrows, either. In fact, NO hair at all anywhere!
Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has helped a lot of women! There is lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com. Let me know if there's anything else I can do! I am here to help.
Hey girl! how do i cope with my AA? ....well. it's not easy. i've never had my hair short, ever. with this episode though, i actually cut my hair short for the first time. i cut it because, well...i LOVED my long hair but couldn't always stand it on my neck for long so i always clipped it up. but this time my patch is where it's very noticeable so i figured the easiest thing to do would be to cut it so my hair lays down, but not on my shoulders and it hides my patch. and trust me, losing my hair because of AA sucks, but i also cut my long hair i've had all my life, which can be quite upsetting as well! but i've adjusted. i just....have to. i do cry and get depressed. i'm very self-conscious. but, i just learned to use the hair i do have to cover it and if someone says something, i just explain to them what it is. thing is, my patches so far have been places that i can hide them or cover them. thankfully. but it's still stressful. i can't do anything with my hair that i want to. i can't put it up or do fun things with it. i guess i just deal with it. im also a full-time student and i work and just recently became an aunt, so i think other things help keep my mind off of it. and i've opened up to a few people, and it's made me feel so much better, because now i feel comfortable putting my hair up around them and not like i have to be embarrassed because now they understand. it's not always easy, but people really can understand if you give them a chance. then they no longer have a reason to stare because now they know what it is and they don't "see" it anymore. i know this is all pretty much rambling, but maybe some of it will help.
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