Patrish
  • Female
  • Iva, SC
  • United States
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Bloomingdalekid and Patrish are now friends
Aug 13, 2018
Patrish joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Aug 13, 2018
Plf left a comment for Patrish
"Hi patrish, thanks for taking the time to add to the discussion, I too am 57 and as my hair dresser says far too young to lose my hair.  My dermatologist did not take a biopsy but really my hair loss and the resultant look pretty much classic…"
Feb 3, 2018
Patrish updated their profile
Feb 3, 2018
Patrish commented on Plf's blog post Just diagnosed with frontal fibrosing alopecia
"I would like to add to my above comment.  In some people, the condition stops on its own and doesn't progress any further.  I have read that many times it is caused by an autoimmune problem which, through blood work, can be determined…"
Feb 3, 2018
Patrish commented on Plf's blog post Just diagnosed with frontal fibrosing alopecia
"I know exactly how you feel.  I have been battling the same for the past two years.  From what I have read and researched there is no cure for frontal fibrosis alopecia.  However ... this may not be what you have. Did your…"
Feb 3, 2018
Patrish is now a member of Alopecia World
Jan 1, 2018

Profile Information

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Married
About Me:
I have slowly watched my hair thin for the past three years and am now at the point of devastation. I have what appears to be frontal fibrosis alopecia. I suffer from fibromyalgia and not sure if this may be response to the autoimmune or genetics, as my maternal grandmother suffered hair loss. This has been one of the hardest things I've ever had to endure in my life. I've always been a very "girly girl" and have loved doing all those things most women love doing to make themselves feel attractive. It's very hard for me to even want to get dressed these days! I am a mother of two... A daughter who just married, and a son who just graduated from college. The hair loss hit during the empty nest time and, of course, that isn't easy either. I am 57 years old and this condition makes me feel much older than I am. I am now exploring and researching wigs. That has been very difficult as they are sooo expensive, especially human hair. Human hair is my choice as it looks more natural. I find myself not doing the things I use to do ... not as sociable and active. This loss has pretty much changed my life. I want to try and find ways to move forward, accept myself, and make the best of this loss. I am interested in finding on this site new options as far as wigs, etc and also how others find comfort and acceptance. I hope to meet people who understand and can share their journey.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 5:55pm on February 3, 2018, Plf said…
  • Hi patrish, thanks for taking the time to add to the discussion, I too am 57 and as my hair dresser says far too young to lose my hair.  My dermatologist did not take a biopsy but really my hair loss and the resultant look pretty much classic FFA presentation.  I have lots of lovely support but my younger sister really think "it's life, buy a wig and it could be worse", ..ha I'm glad she doesn't work in a health professional role" .will do more homework on drugs , but what concerns me is that they r for life.  As you say the condition often halts itself but I cannot find many facts and figures regarding this, if the disease burns itself our out after you have lost 5 -8 cm from the front of your hairline..you would be wearing a wig anyway.  Being a predominantly female conditions means it won't get the research into it that it would if it was a male disorder.. I'm sorry to hear you also suffer fibromyalgia, I have a colleague that suffers from that also it sounds horrible.  Congratulations on your son's graduation and your daughter's wedding, two lovely milestones in family life, I hope FFA didn't spoil these occasions for you, at this moment I'm trying to focus on the good stuff...despite being very angry and sad about this awful condition. Will keep you updated re how medication s go, enjoy your sunday
 
 
 

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