Patrish
  • Female
  • Iva, SC
  • United States
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About Me:
I have slowly watched my hair thin for the past three years and am now at the point of devastation. I have what appears to be frontal fibrosis alopecia. I suffer from fibromyalgia and not sure if this may be response to the autoimmune or genetics, as my maternal grandmother suffered hair loss. This has been one of the hardest things I've ever had to endure in my life. I've always been a very "girly girl" and have loved doing all those things most women love doing to make themselves feel attractive. It's very hard for me to even want to get dressed these days! I am a mother of two... A daughter who just married, and a son who just graduated from college. The hair loss hit during the empty nest time and, of course, that isn't easy either. I am 57 years old and this condition makes me feel much older than I am. I am now exploring and researching wigs. That has been very difficult as they are sooo expensive, especially human hair. Human hair is my choice as it looks more natural. I find myself not doing the things I use to do ... not as sociable and active. This loss has pretty much changed my life. I want to try and find ways to move forward, accept myself, and make the best of this loss. I am interested in finding on this site new options as far as wigs, etc and also how others find comfort and acceptance. I hope to meet people who understand and can share their journey.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 5:55pm on February 3, 2018, Plf said…
  • Hi patrish, thanks for taking the time to add to the discussion, I too am 57 and as my hair dresser says far too young to lose my hair.  My dermatologist did not take a biopsy but really my hair loss and the resultant look pretty much classic FFA presentation.  I have lots of lovely support but my younger sister really think "it's life, buy a wig and it could be worse", ..ha I'm glad she doesn't work in a health professional role" .will do more homework on drugs , but what concerns me is that they r for life.  As you say the condition often halts itself but I cannot find many facts and figures regarding this, if the disease burns itself our out after you have lost 5 -8 cm from the front of your hairline..you would be wearing a wig anyway.  Being a predominantly female conditions means it won't get the research into it that it would if it was a male disorder.. I'm sorry to hear you also suffer fibromyalgia, I have a colleague that suffers from that also it sounds horrible.  Congratulations on your son's graduation and your daughter's wedding, two lovely milestones in family life, I hope FFA didn't spoil these occasions for you, at this moment I'm trying to focus on the good stuff...despite being very angry and sad about this awful condition. Will keep you updated re how medication s go, enjoy your sunday
 
 
 

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