Patchylatchy
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  • Wheaton, IL
  • United States
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Patchylatchy's Discussions

who has information on when will we have drug available

Started this discussion. Last reply by Alo-mom May 20. 1 Reply

Hello all,does anyone know what the current status for availability of drugs such as xeljanz or whatever for alopecia? why is taking so long? are there safer drugs similar to xeljanz being tested…Continue

for alopecia universalis general questions

Started this discussion. Last reply by Anna May 8. 8 Replies

Dear all,For those who became universalis what was the process, was it losing head hair first then brows then lashes? I seem to read this is the most common case. But I have been losing lashes first…Continue

For those of you with alopecia universalis like myself at what age did you develop it?

Started this discussion. Last reply by Hannah Jun 21, 2018. 30 Replies

Just wondering at what age did you develop alopecia universalis? And if it was in areata stage at what age did I first see your first spot and by what age did it become universalis?Thank you.Continue

Is alopecia TH1 or TH2 dominant?

Started this discussion. Last reply by Patchylatchy May 11, 2018. 6 Replies

Hi everyone I continue to learn alot from this website and thank you all for the updates. I have a question I hope someone can help me. I been reading about autoimmune diseases and found out that…Continue

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Latest Activity

Alo-mom replied to Patchylatchy's discussion who has information on when will we have drug available
"Hello, are you a member of the National Alopecia Areata Foundation. They are the best resource for information regarding medications and clinical trials. They have a great website and you can call them anytime."
May 20
Patchylatchy posted a discussion

who has information on when will we have drug available

Hello all,does anyone know what the current status for availability of drugs such as xeljanz or whatever for alopecia? why is taking so long? are there safer drugs similar to xeljanz being tested out? what is the envisioned date to have drugs suitable for us other than cortisone shots?See More
May 10
Anna replied to Patchylatchy's discussion for alopecia universalis general questions
"I am convinced that menopause triggered the AU - it's too coincidental not to have. Apart from the AU, I did have some hot flashes and night sweats, but that's it. I am on HRT as I reasoned that it might help rebalance my hormones to help…"
May 8
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"What were the side effects, Anna?  I also always wondered if my AU was triggered by menopause (I had my last period at age 54).  However, I never had any side effects from menopause whatsoever--no hot flashes, no night sweats--absolutely…"
May 7
Anna replied to Patchylatchy's discussion for alopecia universalis general questions
"So interesting Sabine - I went AU at age 48 (at menopause exactly) after having had two episodes of one AA patch, once at age 17 and once at age 27. Both grew back the same way yours did, with no intervention. And no other episodes at all until I…"
May 7
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"The only medication that I am on is Zoloft, and I started taking that at age 42.  I have been on it consistently since then and am on it still.  I saw some posts about nutritional changes that you implemented.  Can you direct me to…"
May 5
Cocopuffz17 replied to Patchylatchy's discussion for alopecia universalis general questions
"I would be very curious on medications. I have had mine reverse with nutrition changes and removing medications from my life."
May 4
SabineTawni replied to Patchylatchy's discussion for alopecia universalis general questions
"Very similar to my experience, Anna.  However, I first noticed diffuse alopecia at age 60.  Then it became advanced at age 65, and within about 2 months everything was gone, exactly in the order that you described.  Funny, because my…"
May 4
Anna replied to Patchylatchy's discussion for alopecia universalis general questions
"For me, it started on the scalp, but then quickly spread to brows and lashes then body hair, with everything gone within 6 weeks from the first hair loss. I think it can be very different from one person to the next."
May 1
Anne Williams replied to Patchylatchy's discussion for alopecia universalis general questions
"My scalp hair started to go first. I still had some brow hair when I finally shaved my scalp. Lashes were last to go. I think it is different for each individual. I developed Alopecia areata in my 40’s. Didn’t finally shave my scalp…"
Apr 30
Patchylatchy posted a discussion

for alopecia universalis general questions

Dear all,For those who became universalis what was the process, was it losing head hair first then brows then lashes? I seem to read this is the most common case. But I have been losing lashes first then brows faster.. Also how long did it take since the first spot to become total universalis? is it years days months?Thank youSee More
Apr 30
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"when will xeljanz be the mainstream insurance approved drug for alopecia? In 2016 they said it would be 2020, now that we are in 2020 what has happened"
Apr 27
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much!!!!"
Jul 2, 2019
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Can you please let us know which food you avoid? Thanks"
Jun 30, 2019
Youknow and Patchylatchy are now friends
Jun 4, 2019
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Three years ago was when my alopecia started and eevery year I been hoping xeljanz will become the standard drug for it. Why is it taking so long? When should we expect it to be the drug naturally and insurance accepted drug? Thanks"
May 11, 2019

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 12:35am on August 17, 2017, Niece said…

sorry PAtchylatchy just saw this message..very late! You asked about my AU and if I had AA first. No, I did not. First noticed hairline thinning and within about 3-4 months lost all my hair. Its been over 3 years now..getting easier but to be honest I still struggle with alopecia. Have my hopes set on a treatment/cure in the years ahead. How are you doing?

At 3:45pm on December 21, 2016, D Costa said…
Postpartem spots got very progressive. I started using Thymuskin and feel it really helped slow the process. I'm currently about 50% hair loss right now (same going on five years). Hope this helps.
At 5:49pm on December 19, 2016, D Costa said…
Hi my profile probably needs to be updated. I gave birth back in 2011. I was 19 when I noticed my first spot though. Congratulations on your pregnancy!
 
 
 

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