MnM
  • Female
  • Chicago, IL
  • United States
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Latest Activity

MnM commented on Celia UK's group Frontal Fibrosing Alopecia
"I have to find a new hairdresser and I don’t know where to start. Right now I can still hide my loss, but it’s obvious when I’m getting it cut & colored. I’m dreading finding someone new and having to rehash the whole…"
Aug 27
MnM replied to jmh485's discussion Hairline lowering / forehead reduction in the group Frontal Fibrosing Alopecia
"Jmh485, I’m 35, diagnosed at 29. I agree about the Aldactone, I gained weight and decided to stop taking it after 9 months. My issue now is that my forehead is starting to look “weird”. The veins in my forehead are getting…"
May 13
MnM replied to Donelle's discussion Information about upcoming international CICATRICIAL ALOPECIA RESEARCH FOUNDATION Conference in the group Frontal Fibrosing Alopecia
"I’d be interested to know how many members of this group are going. My mom and I are attending. "
May 2
Maz replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"I'm not surprised. Doctors may claim that FFA isn't inherited but I claim that there is an inherited predisposition which is triggered by something like a hormonal imbalance or stress or whatever. My guess is that it is something like a…"
Feb 13
MnM replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Maz that’s interesting, my mom and I both have ffa, she was diagnosed shortly after me. Hers has been less active than mine. She is not treating at all, whereas I have/am doing it all. "
Feb 11
Maz replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Ha ha, only half an hour. You haven't even scratched the surface. By the look of your good side you have time up your sleeve. When I was at that stage I didn't even know I had FFA. I was a LOT further on before my daughter pointed it out.…"
Feb 11
Halfbakedwho replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"No shelves show up here - another picture. Thanks again. "
Feb 11
Halfbakedwho replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"So okay, this is actually my « good » side. Here you get a nice view of my ear, and my shelves.  I see you what you mean about having to figure this out yourself. I just killed a half hour trying to find my hair - the only thing I…"
Feb 11
Halfbakedwho replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
Feb 11
Minter replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Maz, you look beautiful and thank you for posting your quick tutorial, it is very clear and to the point- I have a topper that I also thought I needed, but maybe one of these days I will do something similar to what you have done.…"
Feb 11
Maz replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Hi again, My research tells me that what I have is a frontal made in the measurements I asked for. Amy called the first one a closure but, since it goes from ear to ear I think it is actually a frontal. Apparently they are often sewn onto caps to…"
Feb 11
Halfbakedwho replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Hi and thank you SO MUCH, you look lovely in this BTW.  So if I see this correctly, it’s a band that goes around your head, with hair in front and some hair in the back? You have a closure and not just a frontal piece, correct?  My…"
Feb 11
Maz replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Hi Halfbakedwho, Sorry I can't do a youtube tutorial but I don't think you need one. If you want to go ahead look at things called a closure, or a frontal hairpiece. I mistakenly thought I needed a topper but obviously they aren't…"
Feb 10
Halfbakedwho replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Hi MnM we seem to have the same problem. I too have a ton of hair, and am having a hard time being taken seriously when I go to ask about solutions for the rapidly receding hairline. My hairloss on the sides, which I cover with what I’ve got…"
Feb 9
MnM and akb are now friends
Feb 7
MnM replied to MnM's discussion Custom Hairpieces - Temples in the group Frontal Fibrosing Alopecia
"Thank you so much! I’m happy I’m able to hide it for now, but feel like those days might be numbered. I’m hoping to find a solution now and get comfortable with it so when I do make the transition I’ll feel somewhat better. I…"
Feb 5

Profile Information

Relationship Status:
Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 11:15pm on May 14, 2015, LeslieAnn Butler said…

Hello and welcome!

How are you today?

 
 
 

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