Yes HUGE gut symptoms, bloating, not 'regular' etc. Diagnosed with leaky gut. I read as much as possible , great book is this one by Dr Michael Mosley " The Clever Guts Diet: How to Revolutionise Your Body from the Inside…"
"Hi illistr8r & Liz love, great to have open dialogue, at the moment I am being brave..but also realise I am heading down the path of wigs and microblading eyebrows. At that stage I look forward to your "wig wisdom" Liz, as…"
"Hi illustr8rI also was late getting diagnosed and decided against meds that most likely wouldn't work for me anyway. I've lost so much hair it looks ridiculous! BUT THAT made the decision for me that I would wear wigs- full time and my…"
"@Beez and PFl Thank you for your comments about being medicine free. I question whether I should have done more-like getting the steroid shots or trying Plaquenil-but my gut told me it was useless. The side effects are worrisome and exaggerated in…"
"Hi akb! The problem with knowing what 'stage' we are in with this damn disease is that many of us had it for awhile before we either decided it was time to see a doctor or even more commonly (as in my case) went from doctor to doctor…"
I've been reading more about them, especially since my latest derm, whom I really like, says that she has had success with them for FFA sufferers. I refused them after I was first diagnosed (in a pretty early stage) last spring, although if the dermatologist who diagnosed me had suggested them I might have tried; only a later dermatologist whom i saw about diffuse scalp pain suggested them, and by then I had heard so many horror stories of head dents and atrophy. I had resigned myself to…See More
"Thanks Jean, great to hear some good news, 10 years seems forever, hang in there Annie may, your not alone, I know that doesn't help much, hope you have something nice planned for the weekend, take care"
"Although I've been an avid reader of the discussions, I haven't contributed for a couple of years. I just wanted to report that after about 10 years, my FFA has finally burnt itself out - or at least I'm in remission! The…"
"Hi jmh, thanks for your brave story, I am waiting on a consultation with a pharmacist re commencing drug treatment for FFA. Like you the specialist has prescribed spirolactone and Minoxidil and dutasteride. I am at the cross roads as to…"
"I'm just about to start LDN, prescribed by my integrative medicine doctor . . . I have avoided all the other drugs other than topical steroids and am hoping that this might work in conjunction with my AIP diet to help a little! I'll report…"
"I take Plaquenil 200 mg twice a day and haven't experienced side effects. I've been taking it for about two years now. It has cleared up the flakiness on my scalp and I have less shed since I've used it. I see a retina…"
Thank you for sharing the info about the 3D system, it does seem similar to the Lucinda Ellery system, and the info about being suitable for sensitive scalps is useful to know. At the moment I am ‘coping’ with this…"
best of luck with your new treatment regime. I have read finasteride has the highest percentage chance of success. I know exactly what you mean about thought of shaving versus waiting and watching soul destroying progression.…"
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