Erin Fraser
  • Female
  • Auckland
  • New Zealand
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  • Lynn Bell
  • Hilary
  • phillipa
  • Cherylnz

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Married
About Me:
Hi I have had alopecia for 40yrs and worn a wig for 25yrs I have 3 children and my 2 girls both have alopecia. My eldest daughter at 21 has just regrown the first patch of hair lose she has experinced. My baby at 13 has jsut lost most of her hair and we are waiting for her wig to be made so we can move forward and look at the positives in life.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 9:42pm on October 1, 2010, Lynn Bell said…
Hi Erin,

Thanks for the note. We didn't even know what alopecia was until last week. As you can imagine, it has been an unexpected shock to our systems. We go see a specialist on Monday. Stephanie (13) has lost most of the hair on the back and left side of her head. The right side seems to be staying intact, and her hairline is just thinning a bit. She seems to still be losing hair, though. So far she can cover it with an extra wide cloth headband over the back and hairline.

It seems your family has a lot of love and support for one another. Your girls are blessed to have a strong mom that lives with it and can help them adjust. Good luck to you and thanks again for reaching out.

Lynn
At 3:43am on March 18, 2010, Hilary said…
thats a good one "the best treatment is acceptance". thankyou for that :)
At 1:36am on March 18, 2010, Hilary said…
haha i go to the otara markets sometimes! awww tell your daughter to use the cancer thing to her advantage i do all the time it gets me free stuff haha nah i know its not funny and it does get annoying telling people you dont have cancer. it must be hard for you having alopecia and then your daughter does too because you know how much it hurts but its not really the worst thing ever well i have found that it isnt when my dad died out of the blue 11 months ago so ive learnt that having no dad is way worst then having no hair.anyway do you's do any treatments?
At 12:52am on March 18, 2010, Hilary said…
yay its good to have someone from n.z im from hamilton. awww your poor 13 year old, I lost my hair at 14, i used to wear a wig at first but I have been confident to wear nothing for ages now. how do you find living with alopecia in new zealand. I never see other bald girls so where i live i am known as "the bald girl". what nationality are you I'm half maori half irish. would love to hear from you.
At 10:04pm on March 13, 2010, LeslieAnn Butler said…
Yes, aa often runs in families! My mom's uncle had it.
Anyway, let me know if I can help...
At 11:36pm on March 12, 2010, LeslieAnn Butler said…
Hello and welcome, Erin!
How are you today?
I have universalis, too.
LeslieAnn
At 2:24pm on March 10, 2010, Cherylnz said…
Hi Erin,

Welcome to Alopecia World

Cheryl
 
 
 

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