Lynn Bell
  • Female
  • Minneapolis, MN
  • United States
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Lynn Bell's Friends

  • Erin Fraser
  • Matt (Mikayla's Dad)
  • Dee Connelly

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Relationship Status:
Single
About Me:
I am the mother of a 13 year old daughter just diagnosed with alopecia aereta on September 22, 2010.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 8:46am on December 1, 2010, Kristy said…
Hi Lynn, I"m sorry I'm just getting back to you. You had asked me a few weeks ago about false eyelashes...I have never worn them personally, but there are a lot of people who do. if you look at naaf.org website, they have a marketplace that sells false eyelashes that are specifically for people with AA, as regular ones don't stay on well with no eyelashes to rest on. I had my eyeliner and brows tattooed on last month so I wouldn't have to worry about it. I just got back from Germany, as I had a treatment done that is not specifically for AA, but is helpful for other auto-immune conditions, so we'll see if it helps with this. I'm keeping my fingers crossed as it could help a lot of people if it works. Hope you and your daughter are doing okay. Hugs, Kristy
At 9:37am on November 15, 2010, Matt (Mikayla's Dad) said…
That is awesome!! How wonderful for her to have so many friends be there to support and encourage her! The key to dealing with this is just that...realizing that she's not a different person, and her friends are still her friends. Believe me...her friends will take up for her too. Mikayla has had several different times at school when one of her friends have overheard somebody else talking about "that girl that wears the wig" just because they've heard about it, and they are quick to "jump" right on that and take up for their friend. :o) The fact that Stephanie is already so open and accepting about it is amazing...she will only get stronger from here. These kids never cease to amaze me!!

Mikayla is doing really well...thanks for asking. :)
At 9:26pm on November 3, 2010, Matt (Mikayla's Dad) said…
Just thought I'd stop by to see how you and your daughter are doing? I know in our case, it was harder for us than for her, but everybody is different. Hope you are doing well while learning to deal with this stuff from the beginning. :o)
At 9:58am on October 17, 2010, Kristy said…
Hi Lynn, I'm so sorry to hear about your daughter, I know how rough this can be. A lace front piece has just that...a piece of lace that is on the front of the wig that blends right into your forehead so you can wear a no bang style and have it look very natural. You can get both synthetic pieces and human hair pieces made this way. check out wigs.com, and look at the Jon Renau lace front wigs. They have videos on most of the wigs that they sell that will show you the construction and you can see exactly what they mean by lace front. And they are one of the few online places that has a decent return policy. I am not an expert, but there are plenty of people on here that might have suggestions for resources in your area if you need to look at some options in person. I know what and emotional ride this is, I too had amazing long thick blonde hair and was so sad to lose it. Best to you and your daughter, Kristy
At 12:58pm on October 14, 2010, LeslieAnn Butler said…
I know it can be very hard. Sounds like Stephanie is a wonderful girl.
Let me know how you both like the book, okay?
I am here to answer any questions and talk if either of you needs it...
Hugs!
At 3:06pm on October 11, 2010, LeslieAnn Butler said…
Hello and welcome, Lynn!
How are you and your daughter doing today?
Leslie Ann
At 10:32pm on September 29, 2010, Erin Fraser said…
Hi Lynn,

I know your pain, My daughter is 14 and has lost all her hair, eye lashes and brows included. Thirty yrs ago I was that girl , lost my hair and have lived to support my daughter going through the same. Best cure is acceptance although a bitter pill to take. My eldest daughter also has AA and she choses to have steriod injections in the paches that appear, painful but they give her something to hope for, she is 21 and emotionally it is harder on her than myself and younger daughter that have no hair at all. WE both wear wigs and I can say Sophie is stronger than what I am but together we have a special bond that only people with alopecia can understand. good luck
 
 
 

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