I was diagnosed with FFA four years ago at age 49. My mother was diagnosed 10 years earlier. Both of us were under extreme stress at the diagnosis of Alzheimer's for my stepfather and my husband.
Up until the last year or so, I was able to conceal the two inch loss with what remaining hair I have. It is becoming more difficult, and I am beginning to look into hairpieces and wigs presently.
Like many of you, and this is difficult to admit, it has been hard for me to let go of wanting to be seen as an attractive woman, when I should be grateful that I do not have some sort of terminal disease. I am seen at University of California San Francisco for treatment. I receive steroid injections and take plaquinil.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older
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