Comment by paula on December 12, 2011 at 2:14pm

I have totalis and my 14 year old had been battling since 1st grade and one week ago put on a full wig. My My My alopecia is always so sad- thanks for expressing that and that you like us are in a comfortable means and not having to have poor economics too. Girls just need to have the choice of really good hair pieces. And that is soooo expensive.

Comment by John on December 12, 2011 at 2:39pm

outwardly, I have accepted my alopecia and most of my friends never mention it. but inwardly I always wish for my hair to grow back, have eyebrows and lashes at least to keep the sweat and things out of my eyes. as a man, most people don't notice or care until they see I have no eyebrows or lashes, then the questions start and the strange looks, thinking I have something contagious. I'm 62 and feel for those younger and especially women with hair loss. someday evolution will have nobody with hair, and the way I see it, we alopecians are way ahead of everyone else.

Comment by paula on December 12, 2011 at 2:41pm

yes the eyebrows and lashes are hard to loose and are the last battle many of us continue with treatment on. What a drag!

Comment by paula on December 12, 2011 at 2:42pm

once took shots in my eyelids- ouchhhhh

Comment by John on December 12, 2011 at 2:44pm

had those shots too, but it didn't last at all and wasn't worth the pain

Comment by Craig Albuck on December 12, 2011 at 2:44pm

Hi. Thanks for posting the video. I have had a long trip with Alpecia since I was 12 years old. From AA to my current condition of AU, just like you. You can read more about me if you search for my blog "My Story - From one tiny spot to hairless. What a crazy ride it has been!"

Keep your head up. The people that love you will love you for who you are and not what you look like. Take life one day at a time...that is a cliche but true. Some days are tough and some are awsome.

I have had AU for around 2 years now. I did Tattoo my eyebrows. That was a great decision. I used to put on makeup from Eyebrowz.com but it was a real pain. The tatoos are great and pretty lifelike. As men, we do have it a little better since baldness is more accepted from society more than women being bald.

My children, 8 yr old boy, 3yr old girl and my wife love me just the way I am. I shaved my head when I was around 50% hair loss on my head. I wrote a blog called "The big reveal" on Alopecia World. Read it, you will get a laugh about my kids reaction.

Laughing is important, it really goes a long way. I rattled on hear for a while. I just want to say stay positive. Who knows, maybe we will both get our hair back one day.

Comment by Nicole on December 12, 2011 at 2:58pm

Your video was very touching and you explained all the feelings I went through when I first discovered I had alopecia. I developed alopecia at the age of 19 as well and it was devastating because no doctor could tell me why it happened nor could it be cured. I am 31 today, and I still suffer from alopecia and have been through all the stages. It does make you wake up to the real important stuff in your life like knowing who you are as a person, becoming a stronger and spiritual individual, loving yourself more, and accepting people for who they are and not what they look like. What is important about living with alopecia is being POSITIVE and not allowing it to take charge over your life.

Comment by Margaret Brennan on December 12, 2011 at 4:07pm

Lovely video. Great job. Tim's head has a lot of fuzz on it and he told me that after so many years without hair he does not want his hair back. Everyone knows him like he is and he is use to it. I wish I felt that way... Guess it makes a difference when you are still in the closet so to speak..

Comment by Ali Kolahdoozan on December 12, 2011 at 5:30pm

Hi

In my opinion , you became more handsome than before.It means after you lost your hairs your face became more attractive so do not worry at all.

Comment by Dee Dee Bridgewater on December 12, 2011 at 6:55pm

My now ex-husband has Alopecia since 1999. I feel he is beautiful without hair. In 2007 I shaved my head because his 'look' seemed so spiritual to me. I was losing my hair due to stress in our marriage, and was tired of being judged by my external looks. True I have eyebrows & lashes, but I have found an inner beauty and spiritual strength being bald. I want to inspire women who have Alopecia or hair loss due to cancer that feminine beauty comes from within if we embrace who we are as individuals. Dare to be different, stand tall, love the total "you". Check out photos if me bald. I'm a triple Grammy winner, Tony Award winner, UN Goodwill Ambassador for the FAO, host of NPR's "JazzSet w/Dee Dee Bridgewater" and will never grow my hair out again. I feel good in my skin, and you should too. Never let outward looks define who you are. Dee Dee Bridgewater

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