Julie R's Page

Latest Activity

Julie R commented on josh's video
Thumbnail

Hair Loss Documentary - Alopecia Areata

"This was a really touching video. It was done so beautifully. Thank you for sharing and for spreading the word, encouraging support, and inspiring alopecians to look at life with a positive attitude. I especially liked the tomato plant shot, so…"
Jan 24
Julie R favorited josh's video
Thumbnail

Hair Loss Documentary - Alopecia Areata

Jan 24
Julie R and prince are now friends
Jul 5, 2011
Julie R and JeffreySF are now friends
Apr 27, 2011
JeffreySF left a comment for Julie R
"Hi Julie, Stopped in to say hello! Jeffrey"
Apr 26, 2011
Julie R commented on Ebasha's group Things to be Grateful for Today
"I'm grateful that I was able to go to a group exercise class and not worry about my bald spots."
Apr 26, 2011
Julie R commented on Amanda's blog post Bummed about losing hair again
"Yeah. . . I found a new spot recently too. It really sucks when you think you're doing all the right things, but then it's so unpredictable. Hang in there though. I have to remind myself that there are worse things that could happen. For…"
Mar 22, 2011
Julie R commented on Jocelyn's blog post "Coming out"
"Aww, good job girl! Glad you were able to come out, especially to people at work. It's such a relief to tell people. I don't like that feeling of sometimes living a lie. . .wearing a wig, and keeping the secret. I don't know if…"
Feb 25, 2011
Julie R and Angie are now friends
Feb 25, 2011
cho.haewon commented on Julie R's blog post Not again...please, not again
"You're very welcome Julie!! You know what, maybe your hair is responding to treatments, it can be growing back, but i just decided to have a different approach--to just be prepared for the hair loss so that i wouldnt be crushed. because its…"
Feb 21, 2011
cho.haewon and Julie R are now friends
Feb 21, 2011
Julie R's blog post was featured

Not again...please, not again

Things have been going so well. All the hair has grown back in my bald spots over the past few months with the help of cortisone injections and a tapered oral prednisone treatment. I'm all the way down to 5mg prednisone every other day. I have a derm appointment on Friday and I really thought it would be my last for a long time.But yesterday, I looked at one of my former bald spots, just to check out the regrowth. . . and I'm pretty sure I've discovered a new spot :.(. I can't possibly go…See More
Feb 21, 2011
3 Comments
Julie R commented on Julie R's blog post Not again. . .please, not again
"Thanks, Haewon (I think that's your first name). It really sucks not knowing what's next. I had so much hope with my hair growing back. I thought maybe I'll have my hair back for a few years before the next traumatic experience where…"
Feb 21, 2011

Profile Information

Relationship Status:
Single
About Me:
I'm a 27yo female, Filipina-American. I was diagnosed with alopecia areata in Feb. 2010 and it has been progressing more quickly than my dermatologist expected. I've been very upset about it, and have recently purchased a full wig. I've tried cortisone injections every month, Rogaine/minoxidil, and Olux (cortisone foam). The injections helped a little bit, but I'm still losing hair. My dermatologist has prescribed oral prednisone and it really helped for the past couple of months. My hair started growing back! But on 2/19/11, I think I may have discovered a new small spot :(
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Julie R's Photos

Loading…
  • Add Photos
  • View All

Julie R's Blog

Not again...please, not again

Posted on February 20, 2011 at 9:30pm 3 Comments

Things have been going so well. All the hair has grown back in my bald spots over the past few months with the help of cortisone injections and a tapered oral prednisone treatment. I'm all the way down to 5mg prednisone every other day. I have a derm appointment on Friday and I really thought it would be my last for a long time.



But yesterday, I looked at one of my former bald spots, just to check out the regrowth. . . and I'm pretty sure I've discovered a new spot :.(. I can't… Continue

I wish they could understand

Posted on August 19, 2010 at 10:09pm 15 Comments

I just got off the phone with my mom and I'm in tears. I'm feeling bloated and weak and tired, possibly due to my oral prednisone treatment. I'm scared and sad. She just kept telling me that I should distract myself and not think about my hair. I told her it's hard not to think about it every day when I look into the mirror. It's hard not to think about it when I run my fingers through the hair I have left and feel the bald spots. I told her that I'm thinking it's very probable that I will… Continue

Comment Wall (18 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 11:31pm on April 26, 2011, JeffreySF said…
Hi Julie,
Stopped in to say hello!
Jeffrey
At 9:27pm on October 18, 2010, Heather L said…
HAPPY BIRTHDAY JULIE!!
Hope it was a wonderful day! :)

Heather
At 12:07pm on October 10, 2010, Jocelyn said…
Hey Chica! How are you?
At 10:57am on September 29, 2010, Trish said…
Thank you so much for being there for me as I am for you Julie..I have read some of your postings and understand that it has been a long journey..I am too going through alot right now and trying to stay positive in hopes that some of this will resolve..The most important thing is to stay strong and focused for me to finish school, but it is hard...xoxo
At 12:38pm on September 28, 2010, charlotte said…
Hi Julie, You know what, I feel the same way.By the way were on the same age and I'm also a Filipina. I don't know if its a good thing, because of course I don't want anyone to undergo the same suffering and hardship that I have encounter. But you don't have to worry, always remember you are not alone... we are here for you!.And I'm still looking for someone in our country who has the same condition as I am.But sad to say I haven't found anyone yet.Good thing we have this site, where we can ask for some advice and for us not to feel that we are not alone.By the way I just turned 26 this month and I was diagnosed with alopecia areata when I was 10 yrs. old. So it was really painful on my behalf because I just keep it to myself. But I'm still proud of my self because I overcome all of it. Even if it affect my self confidence and self-esteem I can say proudly to anyone that I have achieve something unlike others who don't have AU but didn't achieve anything. And by the way I undergo I think anything that you can think off about medication and years had pass I have some improvements, my hair starts to grow again. And it was the happiest time of my life . But I didn't know that it will happen again. Because after 7 years I think, it starts all over again.From Alopecia Areata now I have Alopecia Universalis. I was really mad and sad. I said oh N0!!! NOT AGAIN PLEAAASSEE! I really pity myself, I cry most of the time because it was more complicated now rather than back then. It is more painful physically, mentally and socially but I just stay strong. And that is my only advice that I can give you. TO BE STRONG!!! I know we can do it... if they can I'm sure we can do it also. Even though I still have doubts with myself, I still continue to live my life for my family. Because I still want to achieve more. Hope to hear from you soon! Godbless :)
At 9:46am on September 11, 2010, Jocelyn said…
Hey Julie!

Just checkin in to see how you are doing .. also I don't know if it is too much of a shlep but there will be an Alopecia support meeting this Monday night at 7:30. I am posting the info in the Alopecian in NYC group if you can make it. It's the second monday of every month.

Speak to you soon
At 1:51am on September 11, 2010, kaitlin lavin said…
Oh wow, yes River Edge is extremely close! Aww, thanks for that.. Soo sweet! I'm glad my pictures are inspirational.. Definitely worth it (:
At 10:19pm on August 19, 2010, MiNAH said…
You should go to Jean Phillipe for a photo shoot in NEW YORK. He will make you see your beauty. Check him out on facebook. He will tell you to shave it off, cause you are adorable.
At 10:16pm on August 19, 2010, MiNAH said…
Shave it all off and show your beauty!
At 5:47pm on August 18, 2010, Marilyn Baez said…
Julie, I hope the meds work for you ...but remember you are so gorgeous...if you need anything let me know...

View All Comments

 
 
 
YOUR AD HERE

Latest Activity

Struth replied to Jennah's discussion Fusion Health Hair Tonic and Womens Balane
31 minutes ago
Sheena Tha Cody and Kelly are now friends
48 minutes ago
Karen Smith replied to shimmyshimmyya's discussion Multivitamins/Biotin May Have Triggered My Alopecia
1 hour ago
Rachel and Erick are now friends
2 hours ago

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2012   Created by Alopecia World.

Badges  |  Report an Issue  |  Terms of Service