Cheryl, Co-founder's Comments

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At 9:38pm on July 24, 2017, Eric Graff said…
I live in the area of Detroit Michigan and wanted to share a small story. I was diagnosed in 2010 with alopecia universalis. Took about two years to fully lose about 75% of my body hair. I took a job working Outdoors and got lots and lots of sunlight on my bald head. I also started eating a little better. I feel vitamin D played a big part in my hair coming back even though the doctor said it wouldn't. It's been 4 years now and I've had a full head of hair and I wanted to share my story because I truly believe it has to do with a vitamin D deficiency even though my doctor tested me recently and told me I had zero vitamin D in my body so he prescribed me pills. I do now try to get out in the sun more often since I work in an office after I got my hair back. Feel free to email me if you had any questions or concerns just wanted to make sure one person heard my story considering I feel very lucky and concern for others that may have this condition. Eric email graffer1320@yahoo.com
At 8:52pm on March 30, 2017, PaulaR said…

Thank you Cheryl,

I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than  monthly injections. It would be wonderful if this could help others.

Paula

At 12:20am on March 24, 2017, Tallgirl said…
Doing fine. Retired, but still doing some teaching to cover dental, car, and fun. About to throw a big Polish Gourmet Dinner for AAUW...so I will be cooking and making name tags all weekend. Our area support group us doing great: Mike Chapman from SF spoke at the last meeting. Still single and sassy. How about you?
At 7:34pm on March 18, 2017, Lisafc2000 said…
Thank you! :)
At 9:58pm on March 17, 2017, Rhonda said…
So glad to have found this site. After thyroid tests, vitamin level tests, 2 dermatologists, endocrinologist and ordering my own hormone level tests, no one defined what was going on with my hair for the past 4 years. First thinning, then noticeable change in texture, right side of head and around right ear and nape 50% less hair than left side. I have to do my own diagnosis given the lack of a knowledgeable Dr.i have given up and started never going out without a wig. I have quite a few now.but frustrated about where to turn next
At 12:38pm on March 17, 2017, LVL said…
Hi Cheryl, Thank you very much for your message. I appreciate it
At 9:07am on March 17, 2017, Keyla Cordero said…
Thank you so much for welcoming me to this community. I was just diagnosed with Alopecia Areata and Im getting to know so many things I didnt before. I pray this joirnet teaches me a lot of positive things and I cant get to help as lany people as I can
At 2:24am on March 17, 2017, Beloved said…
Thank You!
At 6:37pm on March 8, 2017, nessabrown52 said…
I joined bc i have a sweet baby girl age 11 going thru this. It hurts to see her going thru losing her hair.
At 6:38am on March 8, 2017, 123me said…

thank you. i appreciate that!

At 2:50pm on August 27, 2016, Claudia DePalma said…

I love this community so much! :) 

At 2:15pm on June 17, 2016, Heisten said…

Doing better day by day. This website has helped tremendously by being able to stay informed and finding out you are not alone.

Thank you so much for starting it.

At 6:22pm on April 26, 2016, Divine said…

Peace Queen!  Thanks for creating such an amazing place.  You are truly appreciated.

 Peace & Blessings.

At 2:09pm on April 4, 2016, Caroline said…

Hi Cheryl,  

I think you are an amazing woman, I am so glad to be part of this community!  Hugs

At 4:17pm on March 10, 2016, ChristineAnne said…

Hi Cheryl,

Thank you; how kind!  I just read your profile and your positive attitude gave me pause.  Thank you for starting this wonderful group; it is inspiring and empowering.

Christine

At 2:38am on December 9, 2015, JeffreySF said…

Hi Cheryl.

Stopping in to say hello!

Wishing you and RJ a happy holiday season!

Jeff

At 10:09am on July 12, 2015, Dom said…

Hello Cheryl, sorry i was late in replying. I have been down Wimbledon. I saw Serena do the

"Serena slam". She is a machine....

Wore a Panama hat lol

I'm fine apart rom hayfever.

Stay cool.

dom

At 4:39pm on March 20, 2015, Essence said…
I'm great! how are you? haven't been on here in a while so I figured I'd drop by (:
At 9:20pm on February 22, 2015, Essence said…

Hello Cheryl! Hope all is well with you.

XO. -Essence

At 9:37pm on February 13, 2015, rebeccasuelin said…
Cheryl,

Thank you so much for reading my blog and all of your kind comments! You have a beautiful soul :)

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