LVL
  • Female
  • Toronto, Ontario
  • Canada
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Latest Activity

LVL replied to AnnieMay's discussion Your experience with topical steroid lotions? in the group Frontal Fibrosing Alopecia
"I completely understand. I hate this disease sooo much. I noticed my hairline thinning even more today and it's been stressing me bad. Seems like nothing actually works. I'm only 33. It's so hard to deal with and not let it consume…"
May 16
LVL replied to AnnieMay's discussion Your experience with topical steroid lotions? in the group Frontal Fibrosing Alopecia
"Hang in there Annie May. We are here for you. So sorry to hear about your father passing. Can't imagine what you're going through. Hope you are holding up ok I used a compound of minoxidil and finasteride. I had used it for about six or…"
May 15
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy I replied yesterday but my post hasn't appeared. I took the meds for 8 weeks until the end of January. I didn't notice any easing of my symptoms. I have another prescription to continue the treatment but I am reluctant to do so…"
Apr 28
Tessa replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi, I've been on plaquenil for 2 -3 years now and no side effects. I regularly see the optometrist to make sure no damage is being done to my eyes. However, it doesn't seem to be doing anything about the hair loss that continues…"
Apr 28
Kathy in Denver replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Airman, how long have you been taking the medicine? Has it stopped or eased the inflammation and hair loss?"
Apr 27
LVL replied to Jess's discussion Help with finding a doctor-CARF referral list in the group Frontal Fibrosing Alopecia
"Hi Jess. You can go to a dermatologist and they will perform a mini biopsy on your scalp and then determine if it's FFA. That's how they diagnosed mine. From what I know there's no 'specilist' for FFA. Some dermatologists…"
Apr 26
Airam-FFA replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy It is good to read that your symptoms are subsiding. Very positive. I have been reading up about Plaquenil - it looks like it is the same as the medication that I have been given in the UK - UK Hydroxychloroquine Sulfate 200mg tablets…"
Apr 24
LVL replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Kathy! Thank you very much for your encouraging reply. I started Plaquenil on Monday and also started using Monat hair treatment system. I'm glad to hear a positive response to Plaquenil."
Apr 23
Will Be Healed replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"I don't drink a lot either, but when I drink the occasional wine I see no negative reactions."
Apr 23
Kathy in Denver replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"I went through this decision back in December and decided to go for it. I have a great eye doctor who has-patients who have been on it for 20 years for things like lupus. He gave a very thorough explanation of how they monitor the risk and how the…"
Apr 23
LVL replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi Will Be Healed. Did you have any reaction if you drank alcohol on Plaquenil? Not that I drink a lot. Just socially, but am wondering if alcohol makes you sick on this medication? Thanks"
Apr 17
LVL replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Hi will be healed, thank you for your response. That is very encouraging. I just got Plaquenil today and will start this weekend. I am also going to try Monat hair system. Hopefully the two combined will help the fallout and receding hairline.…"
Apr 15
Will Be Healed replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"I have been taking Plaquenil for 2 years. It helped me with inflammation and I did experience hair growth on my temples. I no longer have the red bumps on my scalp and itching has gone away. I had no side effects. I am now also on Finastetide. I…"
Apr 14
LVL replied to Dragon&Fox's discussion Localized spot at hairline/forhead on left side burning non stop (or frost bite burning feeling) also Atophied skin.... in the group Frontal Fibrosing Alopecia
"Hi Dragon & Fox. I experienced a small burning/throbbing pain on my hairline a week ago for a few days where it is receding the worst. I also read that means that the follicles are scarring over. I've read that FFA can be itchy and painful.…"
Apr 7
Dragon&Fox replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Well, Doxy is an antibiotic and Plaquenil is an Anti inflammatory.  Personally, I detest antibiotics because they have a great deal of side effects and thanks to anti inflammatory's I've had an ulcer since 2014!  it was mostly…"
Apr 7
LVL replied to LVL's discussion Thoughts on Plaquenil?? in the group Frontal Fibrosing Alopecia
"Ok thanks for the information Agneta :)"
Apr 6

Profile Information

Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 1:30am on March 17, 2017, Cheryl, Co-founder said…

I noticed you were asking about Monat.  In the top right-hand corner of the site, there is a search bar.  You can type "Monat" in and it will also show you other discussions that mention it.  Hope that helps.

At 1:27am on March 17, 2017, Cheryl, Co-founder said…

Hi, 

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out "10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

 
 
 

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