Yes, I really trust my dermatologist to be careful and professional - that's really important. It calmed the areas immediately but, in turn, I have kept my hair. I think it is a bit like controlling something like eczema, in that you…"
"Hi Yummy Mummy. Thank you for your response. I am glad to hear you had a positive outcome with the cortisone shots. It sounds like your dermatologist was cautious and did things properly. Did you find hair loss slowed in those areas that were…"
"Thank you so much for your reply. I realised I had sounded so negative when I should have been reassuring LVL, my apologies. I have emailed one of the doctors involved in the research at Guys. I was desperately asking him if he had any…"
I'm so sorry that you are suffering and totally empathise with your sense of panic (I've been there too). I have had cortizone shots to my scalp at the recommendation of my dermatologist. It wasn't painful (he used a very fine…"
It is a cruel situation for us to find ourselves in. Also with little success rate with most treatments available. On a positive, the Doctors at Guy’s will soon be releasing the results of their research. I am hoping that…"
I’m also so sorry that you have been diagnosed with this awful condition. I noticed hair loss this year and was subsequently diagnosed in September with FFA & LPP. I am devastated and have become obsessed about the…"
"Yes I agree that it’s scary the risk of affecting your eye sight but it seems like a very low chance. I don’t think my doctor and I have talked about Dutasteride. That is another medication I’ll bring to her attention. It’s…"
"I'm also 34 and have been dealing with this for a couple of years, so I know how bad it sucks. I also had reservations about the Plaxonil and Doxycycline. For me, it's not worth risking my sight. Fortunately, I haven't had any side…"
"Hi Airam-FFA, thank you for your response. I was taking turmeric in tea, I should start doing that again. It is very good for inflammation. I am not going to get the injections. Based on everything I have read it sounds like it will cause more bad…"
"Hi Jess, thank you so much for the information. I will definitely mention to my dermatologist about isotretinoin. I haven’t come across that in my research. She wants to put me back on Plaxonil. I had taken it before but it was making me…"
"Hi Beez, thank you for your response and information. I had a biopsy done last year. That is when I got the diagnosis. I had noticed hair loss for a few years before and they originally played it off as nothing. I know there is nothing that will…"
For the reasons that Beez gives, I decided not to accept any treatment that would disfigure my head further; damage my eyesight etc etc. I use a scalp shampoo and ointment a couple of times a week to help with the itching and hair loss - but…"
I'm currently taking Dutasteride and using Minoxidil, which I believe has stopped or at least slowed my loss. I've had some success with Elidel, which is an immunosuppressant cream, in helping with the burning sensation.
"I am sorry you are having to deal with this at such a young age!! Have you had a biopsy to be certain of the diagnosis ?? My understanding is this is the only way to get an absolutely correct diagnosis. I had steroid shots every 6 weeks or so…"
Hello everyone. I am a 34-year-old with frontal fibrosing alopecia. Diagnosed a year ago I have tried a few medications but they have made me ill. I am now using a finastride and minoxidil compound on my scalp again. I had stopped using everything and my hair has falling out a lot and thinned immensely in the front and sides. I now have the burning sensation on my scalp in certain areas where it is scarring and it can be very painful. My dermatologist suggested Cortizone shots for my scalp.…See More
"I completely understand. I hate this disease sooo much. I noticed my hairline thinning even more today and it's been stressing me bad. Seems like nothing actually works. I'm only 33. It's so hard to deal with and not let it consume…"
I noticed you were asking about Monat. In the top right-hand corner of the site, there is a search bar. You can type "Monat" in and it will also show you other discussions that mention it. Hope that helps.
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