LVL
  • Female
  • Toronto, Ontario
  • Canada
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Latest Activity

LVL replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks Ruth. Sorry to hear you were diagnosed with FFA. May I ask you What medication you are taking? I was thinking the same thing. Take an anti-biotic/anti-inflammatory and use Monat. I know it won't help regrow the hair I lost but may help…"
Sunday
Ruth replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I started using the IRT system from Monat almost two months ago. Unfortunately I got diagnosed with FFA a few weeks ago. So now I don't know what's happening because of what. I can tell you that I definitely had less hair falling out and…"
Sunday
LVL replied to LVL's discussion What is everyone using to help prevent FFA from getting worse? in the group Frontal Fibrosing Alopecia
"That's ok. I appreciate your feedback and understand not wanting to take medication and injections if they don't know for sure it works. By the sounds of things there isn't anything proving to work and doctors are just grasping at…"
Saturday
Minter replied to LVL's discussion What is everyone using to help prevent FFA from getting worse? in the group Frontal Fibrosing Alopecia
"I actually stopped using anything except tea tree oil about 2 months ago- I couldn't tolerate the medications at all- after I stopped the medications, I was just getting steroid shots along my hairline and eyebrows every month at the…"
Thursday
LVL added a discussion to the group Frontal Fibrosing Alopecia
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What is everyone using to help prevent FFA from getting worse?

Hello, I'm curious what everyone is using to help halt hair loss and if anything actually works. By reading a lot of the comments, it doesn't seem there is one thing proving to help. I was on doxycycline but it was making me vomit. I was also using a compound of minoxidil and finastride on my scalp for 6 months and Didn't notice any regrowth so stopped using it in the fall. My scalp was itchy and flaking so I was using tea tree oil then Selsun Blue. Now I've noticed a significant change with…See More
Thursday
LVL replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Monat is shampoo and treatment systems. I have seen a lot of success stories with people who have alopecia but since ours is fibrosing I'm wondering if it helps halt the loss. It's frustrating that so many of us are just grasping at straws…"
Mar 17
MnM replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Hi there, I'm 34, diagnosed at 29, so I can definitely sympathize with you. I have not tried Monat, but will look into it. I've tried almost every drug without much success. Right now I'm using clobetasol foam and I take fish oil an…"
Mar 17
Cheryl, Co-founder left a comment for LVL
"I noticed you were asking about Monat.  In the top right-hand corner of the site, there is a search bar.  You can type "Monat" in and it will also show you other discussions that mention it.  Hope that helps."
Mar 17
Cheryl, Co-founder left a comment for LVL
"Hi,  I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out "10 tips for getting the most out…"
Mar 17
LVL replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thank you very much Christi. I appreciate that!"
Mar 16
Christi Q. replied to LVL's discussion Has anyone tried Monat?? Newly diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I have not heard of it, but I'll research it.  Hang in there!  FFA is an emotional roller coaster for all of us unfortunately.  We're here for you!"
Mar 16
LVL added a discussion to the group Frontal Fibrosing Alopecia
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Has anyone tried Monat?? Newly diagnosed with FFA

Hello. I am new to this group and I am grateful for all the support, information and advice. I am 33 years old, and was diagnosed a couple of months ago with FFA. I noticed my hair falling out a few years ago and my hairline receding. My doctor thought it was nothing and my dermatologist thought it was just hereditary and did nothing at the time. I had half of my thyroid removed two years ago and my hair fell out really bad after that. My dermatologist did a biopsy in the fall and it came back…See More
Mar 16
LVL liked Celia UK's group Frontal Fibrosing Alopecia
Mar 15
LVL joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Mar 15
LVL is now a member of Alopecia World
Mar 13

Profile Information

Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 1:30am on March 17, 2017, Cheryl, Co-founder said…

I noticed you were asking about Monat.  In the top right-hand corner of the site, there is a search bar.  You can type "Monat" in and it will also show you other discussions that mention it.  Hope that helps.

At 1:27am on March 17, 2017, Cheryl, Co-founder said…

Hi, 

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out "10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

 
 
 

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